From what point do you count from being NED?

Diagnosed with breast cancer Triple negative and inflammatory breast cancer
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Do you count from diagnosis date? End of treatment? After surgery? Something else?

I did a TNBC zoom and the oncologist on there said it was from diagnosis date. But it was a recording so I couldn’t ask, why that was. So I am interested in what others do. I was diagnosed with Triple Negative Breast cancer and know the chances of it coming back, is high within the first 5 years. So was just wondering when I can class being 5 years NED :crossed_fingers:

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Hi @jadem

I am TNBC diagnosed July 2023. Yes I think the survival stats tend to be from diagnosis date so in that sense it makes sense to start from there? The usual phrase is “X% of patients survived Y years after diagnosis” - I could be wrong but this is what I’ve read, so maybe this why the oncologist suggested this? Me personally I would consider my surgery date as NED, but my diagnosis date as cancerversary x

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I agree, for me after surgery makes sense. I was just intrigued after hearing that from an oncologist.

Thank you

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