It’s good to hear from you. I can imagine it’s very difficult typing with one hand.
Yes I did have an appt this morning but telephoned and cancelled it as my headache disappeared late on Monday night and hasn’t returned. I hope it’s gone for good but if it does come back the same as before I’ll have to make another appt.
You sound as if you are keeping your spirits up. I hope the 4 - 6 weeks is right, nearer 4 than 6 preferably. It must be difficult trying to do things, do you have plenty of help and support? I don’t know how I would manage if I was in the same position.
Look after yourself and don’t forget those treats. You can’t have too many.
Jan - great news that your headache has gone away. let’s hope it stays away.
well, had appt at fracture clinic today to see how it’s going. answer: not too well.
the fracture is very high up and one of the x-rays shows that the ball bit at the top of the humerus is not in the correct position.
the docs have replaced the sling so that it holds my wrist higher up and have told me to keep the top part of my arm in the hanging down position for the next week so that hopefully the ball will move back into the correct position.(i’ve been trying to keep it upright this past week but may, of course have lain on it at night despite starting the night sitting upright with 4 pillows behind me, but I may have slipped down the bed while asleep). i am not allowed to go to bed but have to sleep in a chair for the next week !! if there is no improvement at next week’s appt they will advise surgery - putting in pins.
fun - I have realised that if it comes to surgery they will need to put the cannula in my right (ANC) arm as they will be operating on the left, broken arm. does anyone know how dodgy this is? at the moment i have lymphoedema in my affected breast and - probably just a little in my right arm so am being very careful with my right arm.
best wishes everyone and take care. sorry to have moved this thread away from generics and onto my broken arm. do you think i should start another thread?
anthi x
I’m so sorry things aren’t going very well. You must be fed up. It must be difficult keeping your arm in one position all the time. I hope you have plenty of help and support for the next week and hopefully when you go back to the hospital your arm will be in the right position and you won’t have to have it pinned
I had lympho in my breast too but over the last 6 months it’s subsided, it does make a return sometimes for some reason but it’s only very mild.
Don’t worry about changing the subject of the thread. I do think though that you may get more advice about the cannula situation if you do start a separate post.
I was just thinking about you and wondering how you are doing sleeping in a chair? OK I hope. When do you go back to the fracture clinic to see if it’s done the trick?
I’m doing OK on the generic. Had dreadful headaches for most of the time initially but they have eased over the last week, touch wood. I don’t get them as often now so I’m hoping they’ll disappear all together. The stiff joints have gone, I still feel nauseous but that’s no different to Aromasin.
I do feel for Anthi. I hope she can aviod surgery too.
hello everyone. afraid i’m going in for surgery tomorrow evening. they’re going to put a plate in my arm to hold together the vertical bit of the humerus and the ball. they’re not lined up right now and this will hold them in the correct position.
it sounds excruciating and i’m terrified but i shall be very glad to get it fixed properly.
hello everyone. just a note to thank you all for your good wishes and to say that I’m back - (well I’ve been home since Saturday but have been feeling too sleepy to do much). I’ll post details on my other thread
Anthi x
I’ve been away, so hadn’t realised you’d had to go in, Anthi. Glad to hear that you are back and hope you make a quick recovery. Take care of yourself.
Eliza xx
Hello Jan. Good to hear from you. I’m doing fine thank you. I saw the consultant a couple of weeks ago and had the stitches out. That was only 2 weeks after the op and he said it was too early to see any signs of healing. I have to continue to rest the arm in a sling and go back in January to see how it’s getting on.
Luckily I don’t have any entertaining to do over Christmas and can just enjoy being looked after and cooked for.
With regard to the exemestane: my very nice GP has specified Aromasin on the prescription because of the problems I had with the generic.
Now, however, I’m thinking of coming off it altogether. I’ve been on it for four and a half years and even though my latest bone density scan showed a very slight improvement after a year on alendronic acid, the orthopaedic surgeon who operated on my arm told me that I definitely have osteoporosis. It’s certainly as a result of the aromasin as my scan before starting was good. It’s a difficult decision as obviously I’m frightened of a recurrence and/or secondaries. My ER score was 6 (out of 8 I think) and I was hoping to stay on the Aromasin.
Does anyone have any advice for me?
Take care everyone. Anthi x
Re osteoporosis - it is worth thinking about your risk of falling as well as the degree of osteoporosis - as it is falls plus osteoporosis that break bones. Also if you have only had alendronate for a year then you would have had a degre of osteoporosis before you started it and the alendronate is now maintaining the status quo.
So in that context it might look better staying on exemestane and alendronate.
You don’t mention your T or Z score - do you know what that is (degree of osteoporosis) - worth finding out rather than just being told it is osteoporosis.
Also worth considering bone stressing exercise if you are not already a fitness fanatic.
