hello everyone !
i have been using this amazing forum since nearly two weeks now, since our daughter (28) has been diagnosed with grade3 breast cancer. she has been advised to do a genetic test - which i personally think is a right thing to do. but as much as it makes more than sense, i am also very confused.
sadly there is a high amount of cancer on my fathers side. his mother past away with only 36years of breast cancer. her 3 sisters all died of breast cancer. my fathers sister died of a rare cancer in her abdomen. my fathers father died of lung cancer and my dad has throat cancer. so not a good family history there. myself - in 2011 i had my right overy removed where a large cyst was attached to(which also was removed) the results came back at borderline. this year i was tested specific on ovarian cencer with a CA125 (i think) but thankfully the results came back as all clear. i go for my regular breast screening and i always state the issues on my fathers side. last time i was told, that breast cancer only can be past down from mother to daughter, so i would not have to worry, apart if my father did inherit the cancer genetic of his mum. so i am confused tbh. why has our daughter got breast cancer (and of course everyone can get it out of the blue without any family history) why has she been advised to do the test ? should i do the test also and should our son (he is 26) also make the test ?!
it would be great and very much appreciated, if anyone could give some advise, share simmilar experiances, or explain to get a bit more understanding…
Thank You so much already in advance 
T
Genetics are really complicated and they are learning and descovering more mutations by the day. They can be passed down from either side. It’s really important to go for screening as it may have implications for considerations for more treatment and family members. If something is found, the Genetics team advise if other family members need screening. If you are diagnosed under 40, (in UK) it is now a routine follow up, this is quite new. I was diagnosed years ago age 36. It was not offered then. My Mum was recently then diagnosed with exactly the same cancer, so they offered me screening. It came back negative, but the team strongly felt there was a genetic component, but they have not identified it yet. My sister is now on preventive treatment. It is such a complicated issue, but the geneticists will guide your daughter. Best wishes.
hello edp !
thank you so much, for your reply and sharing your insight in what you have experianced regarding the genetic testing- very much appreciated !
this unfortunately always seems to be the case, if something is so complex as genes and genetics, it normally always get very, very complicated ! thank goodness for research !!! all rather overwhelming and scary… not a great adition to ad to all the rest…
im so sorry that you, your mum and your sister are all in some form involved in all this and have to deal with what is thrown at you. hopefully you are a strong and supportive family unit, and you fight this together !
i wish all 3 of you all the best, strength and hope to stand united and fight this together !
Thanks for your kind words. Mum is doing great now nearly 84 after diagnosis at 80. I am 19 years since diagnosis. Your daughter will have a bumpy road, but will come out the other side. Best wishes.
… you are more than welcome edp ! im so glad and happy for you and your Mum, that all has turned to a more positive and happy side !! and i hope for all of you, that it may continue for a very long time to come !!!
thank you so much, for the well wishes regarding our daughter… means a lot !
T
Hi, I did the BRCA test last Nov when diagnosed as mine is a biological cancer HER2+ that could be gene related. Like you there are various cancers in the family but only 1 aunty with breast cancer. It took 4 months for the results but thankfully it was negative. A faulty gene can be passed down from either parent and there is a 50/50 chance of who gets it. It gave me great peace of mind doing the test, speak to your gp if the hospital does not offer the test. All the best to you and your daughter.
Hi! So, this information is wrong: “breast cancer only can be past down from mother to daughter”. I got my BRCA gene from my dad and ended up developing breast cancer. He and his sisters (who had breast cancer) got it from his mother (we assume, as she had ovarian cancer). He luckily didn’t develop breast or other related cancers, but was a carrier.
hello jacx70 !
thank you so very much ,for reaching out to me and sharing your personal experiance- means a lot- thank you !
im so sorry, that you have to be dealing and fighting this damn cancer, like so so many other woman (and men) on here… it is overwhelming … i hope you are in a good and strong state- in body and mind- to get through this, to fight this and to come out of it, well and ok !
i spoke yesterday to a wonderful nurse on this forum, and she also did say, that the person who passes the faulty gene on, does not even have to have cancer themself !!! its crazy and so complex ! i have already an appointment set up with my doctor and my son (26) also did say, in case the results from his sister come back positive, he definitely will do the test. thank goodness, that we have the chance to have all these tests done…
returning the same back to you also… all the best to you and please stay strong and positive !
T
my daughter also did find out yesterday that she has TNBC on top of her grade 3… very sobering, full impact results…
hello Nat1984 !
Nat1984, would you be so kind, and let me know, if i did already replied to you, as im not too sure, i try to catch up on replies but i cant find any reply to you but somehow i think, that i did reply already and i obviously dont want to do so twice- sorry about this… 
brain is a bit all over the place right now… would love to hear back from you
T
You are very welcome. There is a lot of “official” information out there on breast cancer but silly stuff you wonder about and info from others going through treatment is soooo invaluable, so do ask away on here. It can be very overwhelming to begin with and information overload sometimes, so my best advice would be don’t overload your daughter with info unless she wants it and asks for it. The BRCA takes months for results but takes away the wondering. I am a positive person generally and mid way in my treatment, I seem to be fairing ok compared to others so think myself lucky in that respect. Just got to persevere and get through this! Your daughter is lucky to have such a supportive mum; mine is a diamond too. Get a Little Lifts box for her, they are amazing (just google Little Lifts) x
Hi @templar-1310 no you didn’t. I had to check because my brain has been all over the place too for a while 
x
Hi
I’ve recently had genetic testing after triple positive breast cancer diagnosis and had the phone call today to say that I need to go in to get my results from the genetic testing, is this normal the nurse said my results would be back on Wednesday and when I said I had an oncologist appointment on Tuesday she said I could come in after that, so I’m assuming that they already have my results ( therefore she lied to me!) and that it’s positive for BRCA surely this will affect my treatment plan which I will get before my genetic appointment.