I am just doing this post, to hopefully help someone when they are going through the information collecting stage. A stage that I found horrible!
Through collecting all the info this forum was one of my biggest saviours.
I was diagnosed in January. Hormone positive, grade 2. I had two tumours and one was acting aggressive. The surgeon wanted to do a lumpectomy. When I had my mammogram, the lady told me to have a mastectomy. I felt it in my soul there was a reason. I convinced my surgeon to do so! Lucky I did, as there was two tumours.
The surgeon thought my lymph nodes were going to be negative but they were positive. I then had to have a pet scan. The waiting game was horrible! But I have found out my pet scan is clear! Yay yay .
I have tired really hard to stay positive.
Talk about - because this helps you see how common bc is. It helped me with my anxieties.
But there is hope! No matter of the stage.
We are tough and warriors!
I will be shaving my head next month for a fundraiser
Hi H
Loved your post does give people hope ,
My journey was tough at the time 4 operations countless appointments each time bad news , but you do come through it and reach the other side , met so lovely women along strong and supportive , so anyone just diagnosed or waiting for results you can do this .
Thank you so much for sharing!! I cut my hair last night and should be starting chemo this week. I’m holding onto hope but my tumors are causing some discomfort. I’m still working and hope to continue doing so. I’m trying my best to take things one day at a time but it’s hard on some days. Wishing you the best on your journey! We got this!!
I was the same as you, cut my hair before chemo, on approx day 18 post the start of chemo I noticed the first of it falling out in the shower (it’s a weird feeling so be warned)…. I decided to get my husband to shave it off as I couldn’t stand it falling out. I’ve always had short hair so it’s never bothered me but it adds to the list of what we have to put up with when we are on this “journey”. I wish you well for your start of chemo. You say you’re working and hope to continue. I hope you get to do that, I couldn’t, as time went on I found it very tough and I could never have gone to work. Be kind to yourself. Don’t feel you have to carry on working just because you’ve said you would like to, chemo is HARD work!
Hope is what keeps us going, never stop doing that!
Great post, thank you! You’re right, hope is what keeps us going. You sound like you’ve had some ups and downs like most of us, but still trying to stay positive. I can totally relate to that, I agree it’s not always easy to remain positive though.
Good luck with the fundraiser! At least it will be starting to warm up next month (hopefully) - says she who has had no hair since November! Brain mets discovered in October which means 2 weeks of cranial radiotherapy- never knew it made your hair fall out, but it does! : )
Hello H and fellow warriors. I am at my 3rd session of chemo (EC) next week, I am persevering with cold cap and have retained a reasonable covering albeit thinning. My journey similar to others - invasive lobular BC hormone positive Nov 23, 2 WLE (lumpectomy) and lymph node removal by end of December 23 and then chemo x 6, then a mastectomy. The waiting is the hardest and I have said before this forum has been my sounding board and confidant. We all have an uninvited visitor but we are stronger than we sometimes know and feel and we are here for each other.
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