Will find some ozzy red for tonight. Will try to remember to email claire as I didn’t when I said I would.
Trace - a second opinion would be good idea. I blame the 5FU - my brain is definately damaged or else I would have thought of that.
Spent last night in tears - it was my dad’s birthday yesterday and thinking about Moira. The last straw was that the new Vista computer appears to have died and even our expert friend doesn’t know what to do. It’s got all my emails from Moira and someone else who I was close to who died of bc in special folders that I didn’tt back up, all my ipod stuff but not much else. OH kept saying he would get a laptop but now mum is coming over tomorrow and going to borrow hers as I can’t sit for too long as my upper back hurts too much and I want to use the laptop in bed.
Surely a computer that will take a memory stick, upload photos, ipod and print and not lose my emails is too much to ask for in this day and age - just don’t have the money really!! Stupid how much this is upsetting me when I and others have so many more important things to worry about and get upset about but again in tears over a ***** computer - how stupid is that - got to pull myself together.
Don’t forget the wine tonight.
love to you all - my special friends
Kate
Hi kate, Sorry to hear you having a bad day today. yes, it can be the small things that get to us sometimes ! Sending you you warm wishes. Smith bradbeers has had an over haul and is very 21st century now. You won’t recognise it !!!.
speak soon
Rach
working tonight, but have a box of ozzie red waiting for when i get in
love to all and special thoughts xxxxxx
claire xxxx
Hey girls
Thanks for ur support. Iv always known this could be an option but like si says if kids are whats really important i dont have to go through with it i can take the chance…I have til nov to decide anyway just seems to be doing my head in a bit at the moment!
I had a shrink during treatment and when i was discharged she did give me her number as she thought this may become an issue further down the line but to be honest im not ready to talk to her or anyone else. I may decide to keep them but even if i do there is no guarantee i will come out of this chemical menopause…my heads all a swirl…
Didnt have red as dont like it but had white instead - does that count???
Debs its bank hol weekend im in towcester, think ur in florida then. If not would u mind if we didnt meet as just want some time with si without work , college or decorating getting in the way…
Thanks to u all for understanding, mates are just a bit rubbish as they dont really have a clue, the only good one is |G and he is so far away and has enough of his own to worry about.
Have a good weekend. xxx
Trace - have agood time when you go away. I think it is hard for others to understand if they haven’t been through it so I think we are so lucky we all found each other and get on well cos i would struggle without your help. Take care Trace.
I’m looking forward to going away with OH next weekend.
What a day!! Absolutely exhausted. Doctor thinks twin daughter has glandular fever and she had a horrible time having blood taken this morning without any local anaestetic so she was very brave but nearly fainted afterwards. It’s SATS week next week - you would think she was sitting GCSEs the trouble it has caused at school. They had to phone the SATS board to get permission for her to sit them at home with or without a scribe and so she can have breaks when she wants and do them over a longer period of time!! She wants to do them and has done loads of revision so seems so unfair. I don’t want her stressed and I don’t really believe in this pressure at YR ^6 but what can you do?
Went shopping for youngets’s party on sunday and going to theme park tomorrow with him and friend. Had to buy stuff for twin son’s scout competition and help him pack.
Had help from sister inlaw, mother in law and now my mum’s here. Wouildn’t have coped otherwise.
Next week got 2 hospital appointments so will need help to cover that time that daughter is doing SATS at home!!
Why is nothing simple!!!
Kate
Going to bed in a minute.
Hey ladies
Trace- really weird I had to have my ovaries out in the may after my chemo had finished they told me my ovaires were fried anyway…was really strange cause i hadnt thought about children then the thought of having the choice taken away from you is so f in damning! I was gutted so i cant imagine what you’re going through darling…none of us were bad people im so shocked at the amount of Bs out there swaning around and we’e all lovely (ill blow our tumpets for sure) and we’ve had to deal with this crap. Love to you hun and dont worry about saying the wrong thing every I love that ive got you guys for back up and support when so many people around me just havent got a clue including the bloody professionals!
Claire darling been meaning to catch up with you…was really sorry to hear that you’re going through other shite on top of this…when RGF walked out last year it destroyed me and to have my illness used against me as she did was soul destroying you hang on in there lass.
Sammy and debs i got the day wrong for Moira anna until debs text me- i cant drink alcohol at the moment but i just cant believe its been a year! So many of my friends couldnt either just so much has gone on my end i suppose its just flown by( my back has taken 6 months of my life so far). Theres not a day i dont think about Moira anyway a friend was talking about a wedding she went to and was put on table 9 with the other singles and she was telling me the storied flyin round the table… i smiled because it reminded me so much of us playing up at the younger ladies weekend was very very funny! From claires wigs, to the fire alarm, cracks in gin glass, tai chi without peeing ourselves laughing, writing bloody cards to ourselves when most of us didnt know where the hell we’d be!
Oh goodness Kate what will you have to do if daughter has glad fever?? will that be bad for you?? Whats your appoints for next week??
Well I had my second Tax yesterday!! Started well went in with my list of questions including why since ive been put on warfrin for my portacath and a note to doctor to measure my INR (??) was i surprise at my doctors annoyance when i went to see her that a proper referal wasnt made…turns out cause im such a low dose down need to…anyway my portacath has a bobble under it which they think is a design fault but it will be ok as long as i dont squeeze it like i tried (I thought it was a spot not part of the port!) bloods fine but told oncologist about sever pains ive been having in my right kidney and he said it was due to tumour on my right adrenal glad and didnt even look at the peasize lump under my armpit cause he said well we know what that is so hopefully all these things will settle. Why does it take so f in long for them to make up the perscription!! I was back from clinic at 11.30 (after getting there at 8.30) and still didnt get out til 4pm! I felt really really bad cause i got back from clinic and a lady had been put into the bed next to me and had drawn the curtains and i could hear her crying so me being me rolled my eyes at my mate, then over heard the convo she was having and it broke my heart! They basically cant do alot more and she had kids and it was horrible i never think about what its really like for you ladies on here with children and your fears and abso heartache at you having to think about whats going to happen when you’re gone…cant stop thinking bout it.
Anyway woke this morning at 5am with stomach ache my mst is trying to cause constipation and the Tax the other so having fun but can go toilet! Plus had pains in kidneys again, heartburn and just felt crap (plus with all the good weather the heat is killing me too) so Vikki got up with me and then we finally nodded off on sofa agin around 11am then up at 1pm for shopping…im bit hyper from last of steriods and falggin abit now (Vikkis pasted out on sofa again). My hair is really taking a battering but id rather hold onto it as long as i can see its starting to really thin at the front of my scalp…ill see how my 3rd chemo goes cause im being scanned to see if chemo if working dont want to have still lots of hair…then shave it off and be stopped on the Tax if that makes sense.
Anyway off for some sleep cause dont want to knacker myself out and with the weather so close im going to struggle tonight anway.
Not too sure if we’ve sorted a date for meeting, let me know i know we’ve all got alot on at the moment and its a bit crazy for all of us but would love to see you all.
Love to all, a tired but battling fit brit! xx
Lynn - sorry to hear about your long day in chemo. Mine are always like that -it’s a nightmare. I didn’t know or it didn’t register in my chemo’d brain that there was something in your right adrenal gland and what are they saying about this lump then - is it a new tumour too? What a worry for you on top of all this. Tax always made me constipated for first few days then the runs for next week. I could go on for ever about bowels - getting obsessed like all the old dears did when I was nursing in wards!!
Claire - feel really guilty - still not emailed you but will try. Hope you are OK as much as you can be.
trace - hope you are OK and Sam and Debs too.
Been overdoing it again. Youngest birthday so took him and friend to theme park and did some of the rides and then came home and slept for 2 hours before friends came over and only just left. Have been eating and drinking out in the garden till midnight. They bought all the food and drink with them and have done all the washing up etc so great. had a really good laugh and as the people were having a party and being noisy it didn;t matter we were out late and laughing.
Poor daugther - fell asleep on the settee at 8pm so OH had to carry her up to bed. I’ve had glandular fever so should be OK. My mum is now here and staying most of next week as seeing neurolgist about my left hand and chemo on different days. Still feel as if have chest infection so still on antibiotics and wondering whether just to cancel chemo for this week and go next.
Tomorrow - or i suppose it is npw today - got lots of friends and family coming for youngest’s birthday. i wanted us all to meet in countrypark and everyone else bring their own picnic but OH thought better at home. So had to buy food and have to make food and tidy up. Told him He can take the boys to the park to relieve the congestion in the house.
Longing for monday so can just have arest!!
Kate
Well blimey girls what alot is going on… claire never mind about coming on here for a moan, it sounds like you need too. Is there someone you can talk to about work issues, are you a member of a union, you should not have to put up with that cr*p.
I remember tax having that battle with me kate- do you remember Moira talking about it- or was that on the phone group- blimey we really had a laugh. Cant believe it has been a year.
Lord kate your posts make me want to take a rest! Good luck this week! I cant believe oyur daughter has g fever.
Girls too tired to post a long one but take care. Glad you got another tax out the way lynn and hope it is beating the cr*p outta the cancer.
xxsam
Hi All
Quickie from me too, we had a bood busy weekend. son played in local 6-a-side tournament yesterday under9’s and they won, how fantastic is that, OKH was over the moon (he is manager) the first 3 matches were league to get points, they went thru to knockout in last place so had to play the harder games and then won every match and knocked out county league champs, an academy team and an A league aylesbury team. the semi and final went to extra time and penalty shoot outs, us parents were nervous bloody wrecks and the boys were thrilled their first tournament trophies as winners. also have daughters annual dance show coming up, did I tell you I am fully experieced charperone who can do hair, makeup and quick change. no rest for the wicked as they say.
Lynn I got upset tummy on the tax and lets hope like sammy says its beating the crap out if all and thats why you are aching.
Kate my daughter has her sats this week they had science today, my sister went down to help, said she couldn’t believe it, they had them all set out in the main hall (like big school) I always thought it was supposed to be more relaxed at primary school. Daughter seems to be fine with it all she got good results in all the practice runs I think she is paying more attention to dance show coming up, perhaps its a good distraction to stop her fretting.
I’m off to bed, also have busy week at work and doing some extra hours(even missing my friday areobic class for them)
Lynn let us know when you having scans, fully understand the hair thing, I used cold cap all the way thru as just could not stand the thought of being bald and I was always kept waiting at churchill for my treatment, when I first had tax and herceptin and would also see onc same day, would get my mum to drop me off 9.00am and OKH would turn up at around 5pm to get me and I was never ready. I know the drugs are expensive but its crap how long thy keep you waiting.
Love to all, Debs XXXXXXX
had an unusual night last night. Had yet another powercut at midnight - got woken up by house alarms!!! Saw loads of neighbours in the street and found that the builders down the end of the road had a huge bonfire going with what looked like out of control flames. They are just trying to keep the costs down by not having skips. the fire brigade came but did nothing much so I phoned the out of hours environmental health people as the smoke was having an effect on my breathing and in the end used my portable oxygen as no power for the condenser!!!
The power came back at abput 130pm which was the same sort of time as the buildrer left. Apparently 1700 homes were effected last night in my area.
Today, I went to Exbury Gardens which was fab so many rhodendrons and azaleas out. It was truly beautiful and also gave us plenty of chatting time which is priceless as they say on the mastercard ad.
Poor daughter struggled today with the spellings and some other kind of englsih test I think. Tomorrow is mental maths and some other sort of english I think. She looks better but is still so dizzy and weak but at least she is eating now.
I’m a bot concerned tonight as had splinter down numb thumb on side with lymphoedema. I’ve pulled the splinter out but in the last couple of hours my nail is going purple and hurts. Seeing the neurologist tomorrow and having blood test for chemo thursday so may try and see a reg or someone tomorrow to see if need antibiotics. Last time I got phlebitis from a needle prick and cellulitis from a hangnail!!! Just finished antibiotics from chest infection as well!!!
Hope dance show goes well. OH and I are away this weekend and the weather looks crap!!
love to you all
Kate
Hey girls…am finding it hard to keep up!
Lyn, as the others said hope the tax is kicking the s**t out of the bu**ers. Cant believe the onc was that dismissive about the under arm lump, or so insensitive…what a w**ker. Completely understand where ur coming from about the hair, lets hope its good news with the scan. Have no advice on tax as didnt have it…
Claire, hope all is well with u darling and sorry about hubby. Are u doing moonwalk again this weekend?
Debs glad u had a good weekend, sounds great
Kate hope ur daughter is ok and its not glandular fever, and hope the sats go well. Dont no why they need to put kids under all that pressure they have enough to deal with anyway just growing up!
Hey sammy, hope u got some rest and bit less tired now…
Am feeling ok (well a bit better) about stuff. I have decided the decision doesnt need to be made until at least nov when i come off the zoladex so am going to try and keep it in proportion until then and stop fretting. Until then i am gonna do everything in my power to prevent the f**ker from coming back and maybe then they may let me keep the ovaries. Am walking 5 miles a day or swimming 1 mile a day to get fitter and have joined weight watchers to lose some weight (helps that its only a year til we trek everest - as have a bit of an incentive). Gave up smoking in sept except when drinking, have now completely given up and am back on the strictest rainbow diet ever!!!
He has said the ovaries will only need removing if periods come back, and if they did it would be a year before i am allowed to try for a child cos of tamoxifen in system if i decided to keep them, so have a new plan…assuming periods come back have child then remove them??? Its something i need to ask when i see him again but thats not til sept.
Why is it so easy for oncs to drop a bombshell then shuffle u out of their office for another 3 months???
Any plans on meeting soon???
Am working all this weekend (5 long days starting tomo) and gotta go to birmingham sat for a conference (what sort of tosser arranges a conference for a sat??) so prob gonna be knackered by the time we go away for the bank hol…
Take care girls. xxxx
Trace - that sounds better plan - at least it gives you time to plan what to do and get your head round it.
I don’t know why they have these conferences on saturday. My poor friend who is part time health visitor and part time sleep specialist for children with disabilities had to go to Scotland for the weekend to teach them about her sleep work and didn’t come back till tuesday and had an interview today for the full time sleep specialist post for which she needed to do a powerpoint presentation!! She phoned this evening to say she’d got the job so well pleased for her.
Is working 5 long days legal? I thought it would be against the working time directives?
After my wonderful day yesterday, it’s been a real struggle today. I had to get up early to go to see the neurologist who was pleased that my hand had improved but still wants me to have more electro-conductivity tests and see him again in 4 months. It feels a waste of NHS money and my time to have these tests as nerve damage takes months to years to heal and I won’t be here that long!!! There are no appointments available till october anyway. I suppose since they are so unsure what has happened I think I’d better look at it that I am helping them in research into brachial plexus injury caused by rads.Hopefully, it will help them understand why this type of injury occurs. Considering how bad my swallowing has been today - not sure I’ll make it to October. I ate fine yesterday all day and even managed a tuna mayo sandwich but today managed breakfast OK but regurgitated my dinner in a pub with OH. Haven’t stopped since. There is so much mucus coming up which seems odd. I had so much pain that I came home by 2pm and had lorazepam, diazepam and oromorph and slept for 2 hours. Felt better when I woke up but then tried to eat a piece of apple cake and have been regurgitating for last hour. Can’t even swallow water at the moment so can’t take more diazpam or oromorph which would help.
Not sure what to say to o nc tomorrow as scared he will not treat me with the chemo and I would like the full dose tomorrow and then have the remaining 2 monthly. My blood counts have been OK so sure I can manage the full dose again and should make my swallowing better.
Success - managed to stop and now had diazepam so will soon be in my happy world.
As for meeting up - think I’m free apart from 3rd June which is our wedding anniversary. Can do anyday of week or weekend.
Feel so much better now. Still not heard from Primark - will go into town on friday as need memory card for new camera so will go in and make a big noise at Primark.
One of OH’s friends has made me 2 new walking sticks made from wood foound in the New Forest. One is probably classed as a dangerous weapon as has an antler as a handle and looks quite sharp. It even has my initials on it. How sad at 46 to be excited about a new walking stick.
Not sure if I may appear accidently in The Daily Mail. A photographer was taking photos yesterday in Exbury gardens so if you see a person in turquise trousers and a white shirt posing on a bridge that’s me!!! Doubt it though - he was only interested in taking photos of elderly women!!!
Kate
Hey Kate
Just wondering what chemo it is that you are on. My friends mum has had this s**t disease for nearly 10 years now and has spread to lung and chest wall as well as oesophagus (is that same as you)??? She can no longer have regular chemo as doesnt work any more so they have put her on one which is actually classed as a controlled drug due to misuse…she cant even go on hols without special letters etc for customs. She takes it orally twice daily and although she doesnt feel 100% it seems to be doing the job for now. This for her is the last ditch attempt at keeping it at bay. Not sure of the name of the drug tho altho i could text and find out…wondered if u r already on it or if not could it be a possibility???
And something nice for once!!! Debs was in my massage class yest and had to work on a member of the public. During the initial consultation found out she got diagnosed 8 years ago, mast, full clearance of lymph with full lymph involvement, chemo, rads and herceptin and still on tamoxifen now after 8 years. Was given horrendous prognosis…but…8 years on she is still fine with no recurrence or mets!!! Just thought it was worth mentioning to give us all some hope!
Trace. x
I’m now on gemcetabine/carbo. Previously had vineralbine, capecetabine. taxoatre and FEC. I’ve got no idea what your friend’s mum is taking but you could post on secondaries and see if anybody can shed light on this. Taxol is my last option as had full whack of anthrocytes so can’t have recycled doxyrubicin/epirubicin and it didn’t work anyway and just made me bad tempered and tired!!!
They had a big meeting about me last week so now plan is to have 2 more gem/carbo after the one I’ve had today on a 3 weekly basis so that gets me to beginning of July and to have rads to my oesophagus now as my swallowing is so bad and been regurgitating all the time. Today, I regurgitated all over my top in the chemo treatment room. Would you believe we couldn’t find a nurse or vomit bowl? Really horrible and disgusting.
Said I wanted to get to sept before having weekly taxol but can’t see I can last 8 weeks without chemo as my breathing get so bad within 6 weeks of stopping chemo so wouldn’t have the summer I wanted unless I can get them to give me an extra gem/carbo.
Was in the chemo treatment room for 5 hours today as had an hour and a half to wait for the gemcetabine as the onc had crossed off this week’s gem and not next week. Why does this continually happen to me!!!
Met a lovely sailor and his mum today though!!! Very scrummy!!! They gave me a card to say how wonderful i was!!! I’m not that wonderful honestly - just in danger of getting big headed!! Just ask my OH - he won’t say I’m wonderful!!!
High on steroids so should have good weekend with OH and then can crash out next mon/tues. Although going to Look Good/Feel better session tuesday afternoon as in 3 years never been offered it and they had a cancellation for this tuesday. Also had reiki today and as it was a different lady and she couldn’t find my old notes in the MacMillan centre I had to sign yet another consent form for Reiki!!! Saw all pink today and felt that my dad was around me so felt happy - I’m sure some of you think I’m nuts saying this but it really helps me to come to terms with dying as I often feel people who were close to me around at times. Maybe an over active imagination but if it makes me feel better than I can’t see the harm and I do believe there is an afterlife of some description.
Did all of you get the email from Moira’s sister - if you didn’t email me and I’ll send it on. They have set up a trust fund in her name to help finacially hard upstudents in Law school in Brisbane. There is a gorgeous picture of Moira on the blurb. Hope they can get the money together to make this happen.
Poor daughter is a bit better but still not at all well. Tomorrow is final sats paper and is maths which she hates!!!
Probably won’t write again until monday now.
Have a brill weekend.
Love Kate
Trace, thanks mate, I love hearing stories of ladies with full node involvment out living the odds, it does lighten my load, I think due to blunt talks with my onc and prognosis I have just accepted to live with it as it will never go away and thats why I can now get on with life rather than constanty live in fear of it. I must search thru herceptin threads, swear I have read 2years and 8 months most vulnerable for return and if so nearly there and where after haven’t a clue, never did get those odds as I always felt I would be on countdown.
Agree with Kate, your new plan sounds far better compromise, I know with my local HA if you dont bleed on tamoxifen then they keep the rest in reserve as a just in case, and from the feeling of your post you seem to be much more at ease with this decision and if possible a baby as part of our GG and thread would be absolutley fab.
Well my lovely little accident prone son last night kneed his nose on the trampoline, he did cry which is unusual for him but it wasnt bleeding and we checked him over and thought he was OK. so of to school today and fine, then tonight we were eating dinner and I was sitting opposite at the dining table I noticed his nose was rather wonky, thought here we go again, yes another bloody visit to A&E and sat up there for 2.5 hours to be told yes probably broken and they will have to refer us to JR Oxford to the specialists. We go to Florida 2 weeks saturday, this is so why I dont get excited anymore until the night before events. Anyway banned from the trampoline. karate and most of football so he will now drive us insane wanting to play WII. He is only 9 and what with his other war wounds he looks like a little boxer, just role on the cauliflower ears and he has the whole set of sporting injuries.
Love to you all, Debs
XXXXXXX
Kate. Didnt get the mail so would love u to pass it on.
As for reiki, not sure if iv ever told u guys but am a reiki master…so kate whatever you feel is real and believe it, as for those that dont believe - they dont no what theyre missing. I have had many strange and wonderful experiences with reiki both giving and recieving and no 2 have ever been the same. My colours are purple and gold its all to do with ur chakras and ur aura. Will look up pink and let u no…
It is also known to help those who are seriously ill in letting go with thoughts and feelings they dont want or need to take with them and can also help you to accept what is happening (if thats possible). It may be good for your kids too and hubby…Id be happy to drive down one day and do it for u all if you felt it would help?
Have a great weekend guys. lots of love to u all.xxxx
Trace - thanks for the offer i’d love to take you up on it but not sure how rest of my family would take it but I will talk to them. I don’t understand anything about chakras. I just know I always feel very peaceful afterwards and if I’ve been surrounded by people I’ve lost in my life and that helps me to feel so unafraid of dying/afterlife but doesn’t help the actual thought of the process of dying or the fact i do not want to die and leave evrybody behind. I will send on Anita’s eamil to you.
had a lovely time on the Isle of Wight. Weather better today but OKish yesterday. Managed quite a bit of walking for my standards especially with the help of my new sticks especially made for me by OH’s friend. Eating still a struggle though but ate more this weekend than have been but also regurgitated a lot in restaurants which is horrible as I rarely make it to the loo and it ends up in spare container on the table - most unpleasant.
Debs - what are little boys made of? In your case it seems to be accidents!!! Poor thing!! I broke my nose when I was 3 - it has still a little lump on it which is only noticeable when I’m wearing sunglasses as they don’t sit straight!!
how’s evrybody else then?
Reducing steroids tomorrow and tuesday hence why I’m still awake now despite being up at 7am and doing a lot of walking, coming back on the ferry and driving over to Portsmouth this evening.
Think might try to send daughter back afternoons only this week as she needs to get back to some routine but is not well enough to be at school allday and SATS has finished so more fun now at school. They have a leavers photo this week and would like her to be in that. Not sure she will make it to scout camp at bank holiday weekend though and then we’re off to Ramsgate for a few days at the end of the half term.
Love to you all
Kate
hello GG
Kate glad you have had a good weekend, sounds Fab, you do make me laugh, loads of walking (and you know me and this is tongue in cheek (others might not) but you do make me laugh especially with your toys-r-us thread at the moment) and our shopping at reading and you telling the pushers in off. Go get em Girl!
So pleased, had audit on football accts last night, magistrate from oxford sat in my little dwelling for 2 hours (although get on with him fantastic) and my figures anre 100% correct, just as I kept on advising the spend thrift lot and kept refusing their stupid, irresponsible twatish ideas, at least we can buy end of season trophies and reg them for next season (just). Am so hoping they will be voted out at AGM but looks like they have been partying for their votes, if thats the case I will Vol out as not having my name against B/O bank acct. and personally dont need the sh*t.
Dance school show starts sunday after hols, and thats 5 straight days, then straight into florida and yes I’m helping again, I think I am stupid or is it busy keeps your mind of things, I tried to have chat with OKH as still feel if we dont do it now, will I ever take kids to Florida or will they go on my life insurance, as usual he went quiet.
This has now turned into bottle of wine thread, so leaving here and will get back.
Trace think I might look up local session. have always wondered, sounds good.
Love you all GG, Debs XXXXXXX
hello all,
been working tooooo much now its 10.40 and still not finished… oh dear. Will try and come on at weekend. Have sale tomorrow so wish me luck.
Kate do they not want to give you extra chemo as worried its not working? I pray you get your summer and I’m not even sure there is a god!! sorry no offence to those who believe
xxsam
Debs - I’m glad to make anybody laugh. The things that happen to me or the way I see things are often quite unbelievable and I’d rather laugh than cry anyday!!
Well done on getting the accounts spot on. Committees can be such a pain - having been on various ones - I know what you mean - but at the same time, so little voluntary clubs etc would run without them.
Are you thinking of not going to Florida now then? How’s little un’s nose? Has he big black eyes to go with it!!!
Sam - be careful - I know you need the work but don’t overdo it. hope the sale goes well today.
My poor daughter is still unwell and with bad joint pains. Now trying to get appointment to see if they will test for juvenile arthritis as a relative’s daughter had this and it started in the same way so would like her to have blood test just to rule it out. She only managed 1 afternoon at school but is going in this afternoon for school leavers photo.
The Look Good Feel Better session was fun. There were 12 of us and I think about half had bc and about a third of the women there would have been 45 or less so quite scary. Strange how we look at ourselves differently. One lady was happy to sit bald like I would have done but another changed her wig for a scarf in a very discreet way and it was so obviously more upsetting for her than others with wigs. Got some nice make up and perfume but rather a strange purply eyeshadow. I can never use them as it looks as if I’ve just been hit in the eye!!
had a big shock there though. One of the ladies aged about 50 who was diagnosed the same time as me and had been NED and was on the trial where you have 3 monthly zometa to see if it stops bony secondaries, found out last week that she has massive bone marrow infiltration so her blood counts are all over the place. She was so sad and it has obviously hit her so hard. We have bumped into each other at different places in the last 3 years but have swapped tel nos now so hope to keep in contact. I also met someone else off this site - we’d been PMing for a while so it was great to meet her and hope we can keep in contact but wth my poor prognosis can understand if no-one wants to keep in contact with me.
I forgot to say but if you read my blog you might have read about OH’s contact lenses and what I did!!! He’d forgotten to take a case with him so put them in a glass near the kettle. He never told me where he’d put his lenses and as I don’t waer them it never occurs to me to look for them in odd places. The next morning, I filled up the kettle using that glass and made a cup of tea with the water. When OH woke up, he was saying ‘where’s my contact lenses’ and it suddenly dawned on us that I’d put them in the kettle and boiled them and made tea. Luckily, we found them caught underneath the kettle element!!! OH (actually he was being a very calm and reasonable OH - much more than I would have been) soaked them in saline during breakfast and they were actually wearable for the day!!! We were very lucky as he needs new glasses andd wouldn’t have been safe driving with them on!!!
Still not had letter back from Primark!!! 3 weeks nearly now!! As I think I said I went into the local shop last friday and found out all the staff involved have all been given written warnings and I got a free nightie (£3) when I went in and HQ promised me that a letter would be coming out last friday afternoon and it’s now thursday and I still haven’t heard anything. will go into town at some point as i don’t want to phone again as I got put on hold for 10 mins last time!!
Must dash - just remembered the district nurse is coming in a few minutes to flush line and friends over to cook and clean etc and not dressed!!
Byeee
Kate