Going off Arimidex after 5 years

Hi everyone,

 

I am new to the forum and I need some information or if someone has been in this situation that would be great if you could give me advice. I had a grade 3 breast cancer stage 2b breast cancer in 2013 I had mastectomy and six months of chemo and cancer was found in 1 node now I have been on fermara and arimedex now a total of 5 years and I suffer from joint pain, I have had a blood clot and I get urinary track infections every few months which are very painful. I spoke to my oncologist and she suggested I go off the arimedex now as it is my chose and I have been on medication for 5 years and because of my side effects it will be a better quality of life for me.

 

Now I would like to know if anyone has been on these drugs for 5 years and have gone of and how do they feel and do they regret the discision to go off them and did the cancer come back.

 

Can someone please let me know as I find it very difficult to exercise and my movement when I wake up and after I sit for a while is painful can someone please tell me how they are going now.

 

thank you