Hi there just wondering what ladies out there in similar boat! Had stage 3 with lymph involement, had chemo then surgery then radio, I’m 37 with four kids and feeling a bit anxious! Just started tamoxifen not too sure how to feel and still feeling really tired and depressed!!
Hi Char and welcome to the BCC forums
In addition to the valuable support you will receive here I am posting a link to the specialist support for younger women you can access from BCC, one example are the younger women’s forums where you can meet other women in a similar situation to yourself and share experiences. The following links will take you to more information about the forums with dates and venues and also contact details and booking information along with our other support services information:
breastcancercare.org.uk/about-us/our-services/support-for-younger-women/younger-womens-forums/
breastcancercare.org.uk/about-us/our-services/support-for-younger-women/
Our helpline is open 9-5 weekdays and 9-2 Sat so please call for further support and a listening ear on 0808 800 6000.
Take care
Lucy
Hiya Char,
My diagnosis sounds the same as yours also the order of treatment but its behind me now,its almost 2yrs since I was DX. Ive still got 7yrs of tablets to go but I feel remarkably well now even though its left me with arm & shoulder problems. I was terrified and pessimistic at the beginning(always been a coward anyway)but the light at the end of the tunnel is shining brightly now,and youve got youth on your side,Im 58. Be good to yourself and accept all offers of help,lots of love, Mags xx
Hiya,
I just wanted to share with you that when I was diagnosed (not quite the same as yours -grade1 +lymph nodes and same treatment) the Onc ws simply elighted by the fact it was Tamoxifen sensitive - they kept going on about how good that was - I decided to make that the good news focus and it helps me get through…all good wishes Nicola
Hi
I too was grade 3 with lymph nodes and had the same treatment as you. My active treatment finished in May and I’m also on tamoxifen. I realise that I’m very fortunate to be hormone sensitive, as its like an insurance policy. I know a couple of people who are triple negative and they’ve reinforced that being hormons sensitive is good news.
I hate the hot flushes and night sweats, joint pains and weight gain but I’m dealing with it. Joined slimming world last week and the gym today. I’m on a training program to run the marathon!! I’m 43, by the way.
Julia xx
Hi,
Just popping in to say we’re in this sort of boat, grade 2 but stage 3c (luckily ?).
Just 2 weeks into 1st chemo and Sue really suffering with mouth problems but muddling through, before the joys of radio @ christies (again, seems like an annual trip now :() then the 7 year pill popping exercise (2 tam + 5 letro).
At least it helps not knowing we’re the only ones doing this, and for the first time since dx 3 months ago Sue has actually spoken to someone today about her worries and fears by calling the BCC helpline earlier today which has helped eased her mind.
One problem i am still trying to come terms with is that Sue will not talk to the Bc nurse or hospital staff about her illness or treatment and is unaware of what is happening as she keeps leaving the consultations and leaves me to try and “filter” information to her which i am finding quite difficult to do any longer, is that the best way to continue or do we get to a stage where Sue will have to confront the “truth” about her illness ?
Hi char i was grade 2 lymph just had suergery well 3 weeks ago after doin 6months of chemo awaiting radio i also am on tamoxifen been on them for 2 weeks not sure what to expect from then having few flushes but i had them b4 when i was on chemo as 4 weight gain i have maintained 3 stone have lost 1 and half since steroids have stopped im 44 will start doin a bit of excercise when my feet stop giving me jip
Hi there, i would just like to say, i agree with all te other ladies, i am due to finish my rads at the begining if next week and i feel a little apprehensive, i am on Arimidex for 5 years, like the other ladies, i have the hot sweats the weight gain and the aches and pains, but i am trying to stay as positive as possible, it isn’t always that easy, i know, but the gals on here are a lovely bunch of people.Hope you feel a bit better today, take care Sandrae x
Thanks all of you for remarks, had good few days this week went shopping and out with friends etc although today so tired and bones hurt so stayed in bed, but feel better for it. Thanks again good to know others feedback have good weekend all x
Hi there
I’m a bit older than you - 58. Was dx nearly two and a half years ago. Grade 3, 3 nodes involved, surgery, chemo & rads and femara for nearly 2 years.
It’s early days for you yet. Go easy on yourself. The treatment really takes it out of you.
Maybe you will see a big difference very soon (you’re a lot younger than me), but it took me a long time to recover my energy levels and feel more like me.
The first year I did feel a lot better but it’s really the past year when I’ve felt 99% better (the other 1% is down to memory loss).
It’s also only recently that I’ve become really positive about the future and can consider myself being here in 10 to 15 years time.
It will get better. Just give yourself time.
Mal xx
Hi Char
I’m 41 with a toddler son and am about to have Mx, recon and reduction on healthy side.
I recently attended the 2 day younger womens forum in London and can highly recommend it. It’s aimed at women under 45 with BC and although the reason we were there was not nice, it was nice to talk to others in the same boat as us.
It was relaxed, informative and I met some lovely women who I have remained in touch with.
Not sure if it’s your sort of thing, but if it is and there is one near you, give it a go.
Take Care
Ali x