Hi everyone,
My first time on this site, but i was just wondering whether i am doing the right thing by stopping my treatment of chemo tablets. They make me feel rubbish and like a zombie. I have stopped them for this last treatment of two weeks. I feel so much better, but i dont know how much longer i will have. Need support please??
Hello. I don’t know enough to help you but hope you find some reassurance x
Hi there
I’ve just started a thread about giving up treatment which I decided to do recently. Sometimes the health price of treatment is just too high but you should discuss it with your medical team rather than just stopping.
I would recommend asking your GP to refer you for palliative care or to a local hospice. Palliative care is not just for end of life - they can help manage symptoms caused by treatments until you perhaps find one that works better for you. They can also arrange for things like psychological support if you need it.
I do sympathise - cancer treatment can, ironically, really make live feel like it’s not worth living.
x
Thank you for your support, I will definitely see about alternative treatment which may not be so ‘harsh’ - its a tough call when you don’t suit the treatment they have suggested for you. I had a ct scan which they don’t have the results yet, although I had it on the 13th September!! Im not sure where I am and feel as though my oncologist isn’t really interested in my care!
Hello Lollipop,
I’m new here too. I have matastisied breast cancer in my lungs, liver, bones and belly which nothing has stopped only slowed down for the past 2 years plus. After diagnosis and different drugs I’m in my second cycle of chemo tablets, Capecitabine which are making me really zombified like you.
I’m not sure myself how long I can stand the bloody aweful side effects because it is so hard for myself and my family. I discussed the whole drug thing with my oncologist before starting meds because chemo at the time of my primary cancer put me to bed for 4 months and I didn’t want more of the same. So I agreed to try the drug for 2 cycles and then review the meds plan. My understanding was if it was too bad they could reduce the dose or change the drug.
So my advice would be talk to your oncologist or if your lucky enough to have a specialist nurse talk to her/ him first and see what the options are or could be. Otherwise ring the Macmillan helpline they are good too.Then make your decission from a more informed point of view.
None of us know how long we have left and all of us want to have the best quality of life possible when we can. And at the end of the day all decisions about meds are ours so what ever you decide I wish you better health and send hugsX