Haha! Nibbled goats everywhere.
Well done you for just getting on with it. I’ve sent a PM so check and see if its worked I am bloody useless with stuff like this. And bless your fella for thinking you look good too that’s just ace. My hubby used to me and my mystic meg look now. Kids even used to it. I’ll let you know how I get on with second fec tomorrow. Not even feeling nervous god I hope I am not being too cocky, I just thinking of the drugs blasting the nasty bits. Onward and up! Laughing to myself at the nibbled goat thing. Hilarious
Sarahxx
Hi Sarah
I think you will definately need something warmer than that under wig thing in winter! something like the
old tea cosys i would suggest!lol
Bank robber may be sexy to some men, you never know!
I dont mind you asking my age at all, im a fair bit older than you, im 49 now,(a young 49 i like to think lol)
so 47 when diagnosed.
I had a strange chemo combination in the end. I was scheduled to have 4 Epirubicin and 4Cmf, but after
my 2nd Epi i was was changed over to Fec and Tax, so i ended up with 2 Epi, 2 Fec then 3 Tax. The
reason was Taxotere was not licenced to be used for primary breast cancer when i was fist diagnosed,
but when i had my 2nd Epi it became available, so i was swiftly changed over, as my onc said it was
the best chemo for my circumstances, especially when Fec has been used first.
I know what you mean about that funny cafe, ive had a few cuppas there.
Thanks for saying my post has really helped you, im glad it has Sarah, i remember how scared
i was and i have had a lot of support on this forum.
Keep me posted how your getting on.
Take care
Julie xx
Hi Julie
Yes you’re only down the road!
It makes me feel better knowing they are giving me a good lot of chemo. Must admit though I’m worried about the tax you can see from what me and missi have been discussing, missi said it was tougher but she came through ok. How did you find the tax Julie? I have seen another couple of threads where women have had really bad time. I know we are all individual though and I suppose I should get through this lot of fec first! Will I ever stop being impatient??!!And YES 49 is young! I think once you have had this crappy illness you think any age IS young. I used to worry about becoming 40 like a complete idiot and now I am going to have the biggest party ever just for getting there!
Sarahxx
Hi All
Just catching up on the threads, yes 49 is young! I still be young when I’m 99! If you are planning a get together let me know I am just passed the Traf Centre. Its great you two are sharing this experience with so many coinsidences! I too had that experience with someone I met at the Christie, bizzare but wonderful. Good Luck today for round 2 Sarah will be thinking of you(x).Let us know how you are feeling as soon as you can even if that means cr@p! We can always cheer you up! By the way yesterday uniform shop was a complete success! Was stuck at TC for 8 hours (omg) but wow when I got home I had managed to tick most things off my list (I love lists) and amazingly there were two tops in there for me!!
Missi x
I love lists too! Bit obsessive about them actually.
Well, I’m back home, I feel fine so its so far so good. It took a while, and lots of waiting, but I keep thinking of all the good it is doing and the time soon passes. I’ll just wait and see on what side effects might occur. I am having a chinese tonight to treat myself. Might push the boat out and get a movie on box office. Sex drugs and rock n roll eh.
Missi would be great to meet up sometime. I’ll PM you my email for future reference.
Thanks for all these messages ladies its keeping me sane
Sarahxx
Hi Sarah
You asked me about Taxoter…well i wont tell you porky pies and say it was a doddle, but
as you said, everyone reacts differently to chemos.
I found Tax harder than Fec. I had no nausea, but had joint and bone aches, which i needed pain
killers for. Having said that, it was only for a few days then i started to pick up again.
I also felt very fatigued and just climbing the stairs was exhausting, but again didnt last that long.
If you are prepared for these symptons, i think it will help. Get your pain killers at the ready, and
try and arrange some help for days 3 - 7 after chemo.If you get any aches and pains, start taking
your pain killers regualarly and you could nip them in the bud.
Hope i havnt scared you, i wasnt expecting some of the symptons i had, and i think that made
it worse. You will cope and get through it, and it will become a distant memory like it has for me.
Remember though, some people sail through Tax and you could be one of them. But if you
dont, it will soon be over and you know you have had the best chemo there is going.
Also Tax has a short shelf life, meaning when you get to Christies, they wont order it till they
see your bloods are ok. If they are ok, they order it and you have to wait a few hours. You could
go home and they ring when its ready, my partner and i used to go to the pub next door and
have our lunch, you can have a bleeper from the chemo suite and the nurse will bleep you when your
Tax has arrived. It has to be kept in the dark aswell, and when they put it up on the drip hook, they
put a little bag over it to protect it.It used to make me laugh!, it was treated like a precious gem,
mind you, at around a 1,000 pound a go im not surprised!.
Hope you have gone on ok today,
Bi for now
Julie xx
Thanks for all this info Julie it’s such a help. You’re a star. I feel really supported by these posts honestly. I think the pub lunch sounds like a go-er. I will definitely get myself prepared fo a long haul with tax then. I’m feeling fine after today thanks Julie but that could change so just hanging onto my hat (literally - stripey wooly one!)
Will be keeping you kind ladies informed of my progress. Thinking of you now, Kerry and wednesday.
Sarahxx
Gosh Sarah nice of you to consider loggin in and letting us know your doing the doing! Hope you get through this one really strongly too! Fingers crossed Julie you and I had a very similar experience of tax though both agree its very do able.(Aches and Pain and that) Can I just say as well to both of you going through chemo at the mo, and I hope Julie will agree, I actually miss having that time to waste away!! Reading old magazines drinking funny brews waiting for my bloods results! Think aswell you look back and realise you were being so looked after and its safe there. And I truely mean it in the nicest way. There was a nurse on the seating area we sat at called Bernie, she was wonderful, she semed to know if you had been waiting longer than you needed to be and would go and chase things up! Bless she was good.
Hope you all have a good weekend, rest, laugh, whatever you are doing enjoy,
Hubs and me off to wedding tmoz night its our first night away without the girls since we had them. And moi can only get excited about not havin to make tea/dinner and breakfast! Whoo hoo, will prob be in bed for 10!
See you Sunday
Missi x
Have a fab time Missi sounds brilliant.
Julie - can I ask, you say you are still going for 3 month checks, are you on a trial at christies? I’m already wondering what will happen when I finish treatment. I think 3 month checks will make me feel watched over and looked after if you know what I mean. is that how you find it?
Still feeling ok. Had funy feeling in bones through the night but fine now. Lets see how things go over the next couple of days.
Love to all
Sarahx
Hi Sarah and Missi
Missi, i know what you mean about the vast amount of time pottering(for want of a better word!)
around the hospital, being looked after. I am back at work now, and always shattered and rushing
around.
Sarah, i am not on any trials, i have no treatment now, the reason i go for 3 monthly checks
is because i want them quite frquently. I could opt for 6monthly now really, but like the security
of being seen 3 monthly, and Carol, who i always see is fine with that. Who do you ladies see
when you go?. I must say, i have only seen Mr Wardley the once, and i know hes a genius!
but i found him a bit scary lol!. I have developed a good relationship with Carol, and sometimes
we just chat about our kids! then i have a quick examination, and im off. I feel very comfortable
with her, she is lovely.
Being triple negative and coming to the end of your treatment can be quite scary, and i couldnt
get my head round that for a while, and i used to always be saying “are you sure you dont
have any drugs i can take”!..lol. Sarah if you want to carry on having 3 monthly checks, i dont
think there will be any problem with that. For me, just having that appointment on my
calander helps me to get on with the next 3 months.
Glad your bone discomfort has settled down, do you have that awful taste loss with Fec?
i did, and with Tax, it used to drive me mad! i couldnt stop eating, but everything didnt taste
as it should, god, it was sooooo frustrating that was, specially when kids and partner
were tucking in! and i was launching my food in the bin every 5 minutes and moaning whilst
trying to find something else to eat…
Take care ladies, and have a nice weekend
Julie xx
Hi Julie
I know what you mean about wanting checks every 3 months I know I will be like that. I havent me mr Wardley either. My hubby who is a plumber and working at another consultants house has heard from him that he is a brilliant consultant, so knowing I am under the best is great comfort. I am sure I will meet him at some point. I know what you mean about asking for drugs after treatement. I was really hacked off when I found out I couldnt get herceptin or tamoxifen, you hear so much good about them, and it made me feel vulnerable, but I was reassured they are throwing the book at me with my 8 chemos and rads. It’s so great hearing from you knowing your diagnosis was so similar to mine and to hear you are doing so well. It’s really inspiring.
Yes, I have got a bit of that funny taste thing going on. I have just ordered a dominos pizza with pineapple on coz I want to taste something! I am on a pretty scrict diet in the week, veggie and no dairy, lots of fish and veg basically, but saturday is my day off so I am going to have my pizza and put a couple of bets on. Small pleasures eh!?
Happy weekend to all
Sarahx
Hi Ladies
Was just having a browse and came across this thread. Decided to drop in and say Hi.
I was dx at 34 with IDC, Grade 3 aggressive, er+. Had WLE on my 35th birthday and node sampling. With clear margins and no node involvment. Although I am not having the same cocktail as you all, I am around the same stage. I am having 4x Epi and 4x CMF. Today is day 17 of first Epi and my hair is begining to come out, quite alot when I washed it this morning. I fear that I too may take on the nibble goat look (fantastic discription) rather soon. Not sure when I will take that plunge, was hoping to wait until after the 2nd Epi but after this morning I’m not so sure that will be possible. I am a single mum to a 15 year old. She has already expressed that she doesn’t think she will be able to do the shave for mum, so it looks like I will be doing myself, you can just imagine what I’m going to look like! I Haven’t found the 1st epi to be that bad, although I have concerns that next week could be so different.
Sarah - I hope you enjoy your naughty pizza, I have being eating for England! We have to make the most of the good days!
Love and best wishes to you all
xxx
Hi sugarsnap
It’s awful when it first starts to come out, but once you have a chop at it and just face it head on you feel in control again and its really not that bad after all. God what a 35th present eh! Mind you you could look at it as the start of your recovery! by your next birthday you’ll be on your way out the other side. My pizza was lovely. But I could hadly taste it, it just satisfied my appetite which feels huge today. Like I have said I am feeling fine, so hopefully your 2nd will be okay too. It’s hard to tell but the nurse said to me if you do well on your first it bodes you well for the following ones, so fingers crossed you will be ok.You sound like you have a got a really positive attitude, which all the ladies on this thread have got which i just think is fab.Here’s to yet another nibbled goat in the crew. Let us know how you got on. and good luck to you I reckon you’ll be cool. Get the headscarves at the ready!
sarahx
Hi to you all.
How you doing Sarah I hope the side effects aren’t too bad this time, you’ll have to keep me posted inletting me know how you feel after 2nd round of chemo. I will email you now I’ve got address.
Went out in the wig on Friday after my hairdresser gave it a trim, looks ok. Not may people recognized me though. I’ve gone from having really short dark hair to a light brown shoulder length messy bob. Went round to my parents house and my 3yr old niece and brother were there. My brother said “what the bloody hell have you got on your head you look like one of the Bay City Rollers!” I nearly burst into a chorus of Bye Bye Baby. Maybe I should get a pair of tartan trousers for the full effect. Then my niece said “you look weird Aunti Kerry” so I took my wig off to show her my head and she gave it a rub and said “aah you’ve got a poorly head now”. My family has a warped sense of humour but they do make me laugh. I find it the best medicine when I’m feeling down. They say things to me that everyone else is thinking but don’t dare say.
Everyone I saw yesterday kept saying how well I looked. I know they mean well but I do find it annoying. How am I meant to look, it’s only the chemo that makes me unwell otherwise I feel fine.
Missi, I know where you’re coming from about the waiting about, drinks and old magazines. In a strange way you feel special. All the medical staff you meet along the way are looking out for you and helping you to beat the big C. Hope you had a great weekend away and it didn’t tire you out too much. I’m going out next Saturday with some girls from work. The first time since I’ve started to lose my hair. Already planning wether to wear my wig or colour coordinate with headscarf and matching accesories. Any excuse to go shopping.
It’s a shame I live miles away as I would love to meet up with you all. I know you’re all at the other end of the laptop though. Big hugs to you all and take care.
Best wishes
Kerry xx
Kerry you sound in great spirits, I haven’t been able to think about wearing my wig. i think its headscarves all the way. we went to a house warming today and I was fine with it on. First time I have had to face a few people and it was ok. After my chirpy post yesterday I actually had a bit of a wobble before and just thought why the hell do i have to go through all this? I’ve got a great hubby and 3 top kids and work hard and treat people well and I’m really quite nice and so why did this have to happen to me? But then I picked myself up again and looked at my kids and they motivate me to carry on and plough through with it. Sorry to moan I just had a wobble. I think we all must do that sometimes. To think that I moan when my hair goes frizzy normally, and now I am wandering about with patches of baldness (nibbled goat 
) its just so bloody mental. I must admit though still feeling okay after second fec, so must keep my chin up something is helping me though!
Where abouts do you live Kerry? Email me thats cool.
I’ve just finished reading jenni murrays book, she was signing copies in the bookshop near where I live yesterday. I read an article she wrote whilst i was in hospital and turned out we have the same surgeon. She had breast cancer to. The book is fantastic. Very moving. I read it today all in one go. Would recommend it.
Sarahx
Hello!!
My god was only away one night and missed so much! Sugarsnap, how have you gone on with your hair? did you go for the shave option? Sorry but I really smarted from your comments about your daughter not being able to do it. I would gladly come over to help and do coz I know where she is coming from and it was hard enough for hubs to do mine, bless her. Sarah, pizza??? I was told to avoid take a ways but thought stuff it and as soon I could taste stuff would order chinese, anyhow hope your pizza hit the mark. Well done you too for facing the public. Its hard. I went to a fortieth (million years away fom some of you young ones!!) two weeks after surgery. It was a surprize party and when I walked through the door you could have heard a pin drop! Strange. I have a great wig, not that I need it now I have the Irish Mammy,(affectionate name for hair style :plagurism from Marion Keyes) but I only wore it once. Went out got drunk then saw the photos! I felt happier in hats much to the point have indulged in loads, so ladies if you ever need to borrow just shout up!! Got most colours going.
Sunbeam----humour–it has to be the very best medicine and if it aint gonna cure its a fantastic tonic, my humour is probably banned in small countries. ;@)
By the way the wedding was fab!Had a ball, missed the girls too but enjoyed the company, and we had a great laugh to boot.
Hugs to all
Missi xxx
Hi ladies
Well hats and scarves at the ready and a bottle of something naughty, I think tonight is the night I’ll be going for the nibbled goat look! I am shedding like a smelly camel at the zoo! Plug hole totally blocked this morning and I getting sick of wiping hairs off the lap top.
Today I went to the hopsital to see if the wigs had arrived, only two out the three, so I tried the two on. Oh my…I looked like Rod Stewart that had being dragged backwards through a hedge! I am still waiting for the remaining one and have ordered another two to try but I’m now thinking maybe I’ll stick with the hats and stuff.
Missi - I think my daughter is really nervous about doing it but she is happy to assist. You are very naughty having a chinese, I’m dying for one. Bugger it I might have one now! Glad you had a great time a the wedding.
Sarah - If it helps, I’ve had a wobbley couple of days, I think we are to expect it and not be too hard on ourselfs. For me I think its the hair and missing my sister and wanting her to do the shave for me like I did for her on her 1st dx. She is now living in america. Hope you continue to feel well.
Kerry - Maybe you could get those tartan trousers while your out shopping, that would be a hoot!
Going to cool that booze for later tonight, take care all
xxx
Good luck sugarsnap! I was much the same with the wig thing. I tried on loads of wigs, bloody hell even looked like myra hindley in one of them. Ended up just laughing my head off. all good medicine of course.
My friend came round today and brought me a lovely little beanie hat which will do for hanging out at home. everyone is used to me now so I only think about head gear when leaving the house. I’ve decided I am going to throw a ‘got me hair back’ party once I am through treatment.
enjoy the glass of the naughty stuff too. more good medicine.
Let us know how it goes. GOOD LUCK
sarahxxx
Hi there,
Good Luck Sugarsnap, let us know how you get on. My wig choice was a Suzy Quatro or Elvis!! The one eventually opted for everyone said looked like a Victoria Beckam. I only wore it once. (Prob had something to do with it!)
Hope your medicine is chilled to perfection
Missi xx
Hi all
Well yesturday was D-day, the big shave. It took me until mid-night to build up that courage, I was so nervous even with the chilled medicine! The first bit was really hard but once I got going it was great, very liberating. Was talking to a lady on here at the same time which really helped take my mind off it. I’ve only taken it down to a number 4 and it is thinning so much I really have taken on the ‘nibbled goat’ apperance… have now well and truely joined the crew!
Thank you to all for the well wishes and the encouragement, its good to know you are in such good company at at time like this.
Suzy Quatro? Elvis and Myra? Oh dear I don’t think I’ll bother. I’ve now ordered some warm hats for the winter, hope they come soon its cold with a bald head!
Had better go to bed, back to normality tomorrow with the school run.
Hope everyone is holding out and doing okay.
xxx