Gail,
Good luck with your presentation tomorrow! Will be thinking of you.
Victoria, I have PMed you.
Andie,are you able to make Saturday?
Love to all Kathy
Dear all,
Just writing to say that I am now home after eight days in hospital. Although I was allowed home in the day over the weekend there is nothing nicer than to know I don’t have to report back there after a very early dinner. I have been lucky I know to have escaped being admitted before now, as no matter how lovely the staff are (and they were), there is still the feeling of being in a clinical environment.
Thinking of everyone.
Victoria
The names I have so far for Saturday are:
Me
Caron
Gail
Kathy
Jo
Any others???
Victoria x
Morning slept bob last night!!!
Victoria … Do you know the muffin man??? lol
ive done a load of washing but looks like it’s going to rain !!!
Hope Shelly is recovering I’m thinking she can’t have got rid of the MRSA or the pnuemonia ???
That man has been charged with that Claires murder he should get charged with the baby’s murder too !!!
well i’m off to get my ablutions soon going to ring the BCN about my swollen feet today as they were really bad last night but over night it hasn’t completley gone today so they will only get worse.
love caronxx
Hi everyone
My original plans for Saturday have gone wrong so would like to join you all at the gathering in town. I have contacted Victoria as our organiser to check that it is OK.
Good Luck Gail, will be thinking of you.
Kathy At least your hair is growing strongly - mine is growing at a snails pace, in fact you will probably think it is exaclty the same length as when we met.
Caron I hope you get the swelling sorted out
Take Care everyone - off to the Opticians to collect new glasses
Andie
So pleased Andy you can join us on Saturday.
I am feeling quite a lot better - walked down the road today without feeling too breathless. I think the hickman line had been interfering with my breathing amongst other things.
I have been trying to catch up with work today - so many e-mails to get through, and not enough time or energy to deal with them all. But I am just so grateful to have responded to the antibiotics and to have the hickman line out. Everything will sort itself out in the end.
Shelley and family - I think of you every day: many times. Just hoping you are having some relief now from the pain and the breathlessness.
Caron - hope the feet are going down and that you have contacted your bcn about water tablets,
Gail - I’m sure you did just fine with your presentation, though imagine it is difficult getting back into the swing of things after bc - I know how hard I find doing all the work tasks I used to do practically without thinking - but now seem like major projects
Kathy - hope rads burns are under control.
Sorry but suffering from chemo brain - so apologies for missing others out.
Back to the e-mails!
Victoria x
How did the presentation go, Gail?
Victoria,I’m glad you’re begginning to feel better.
Caron, hope you managed to see your BCN.
Iwas supposed to go to yoga today, but the tiredness is inderminable. I slept really well last night, got up at 9 showered and and dressed. I went downstairs and fell asleep on the sofa.I woke up about 4.
Andie,as for my hair, it looks short because of the curls. It seems to be growing upwards and looks most peculiar.
Jo, any more news of Shelley? It was so kind to send some flowers.
I haven’t meant to leave anyone out,but just know I have.
Sorry,
Kathy
Katemate … so you slept really well last night???
then you slept from 9-4 ???
YOU SOUND LIKE ME !!!
Hi guys,
Presentation went quite well considering. Will go on their “teacher list” and they contact me if they have work. I think they really want people to teach finance…yuck!!! But I feel good having done it…just so so tired after!!! not sure how I will be able to work again. Not sure if I even want to!
Off to bed early…love to you all… Can’t wait to meet you all. I’ll be the one who looks like a transvestite in her wig!!
Much love to Shell especially…get better girl!
Gxx
Sorry ladies, have some sad news this evening.
Simon tells me that Shell has had her MRI scan and unfortunatley, it shows that the headaches and eye sight loss is caused by the cancer.
Macmillan are dealing with her pain relief. She’s on steroids to try and reduce swelling in her skull. If the Pleursy can be controlled she might go home on Saturday. Might be a possibility of some chemo or radiotherapy, but apparently this has limited success and she doesn’t want to prolong the torture any longer. She’s also had a bone scan today and they’re waiting for the results of that.
Don’t really know how to end this message, except to say as ever Shelly, I’m routing for you girl and Simon if you get a chance to read this, then I’m sending you lots of hugs and good wishes to, it’s been a rough day for you.
Jo X
Oh dear - that’s the news we didn’t want to hear. Big hugs to Shell and Simon (and to you, Jo, and all Shell’s family and friends.) I suppose we kinda knew it was coming sooner or later - she’s put up a fight, but I can see why she doesn’t want to prolong it, and everyone has to respect her choice. I hope they’ll be able to keep her comfortable, and keep her with her family for as long as possible.
God this is SHIT!!!
To think only 10 months ago Shelly was living a NORMAL life and in 10 of the worst months of her (& her families)life she’s now having to deal with this deverstating news, Cancer is CRAP !
Shelley and family - you are just about the most courageous people I know right now. Thank you Jo, for writing - I can imagine how difficult this must be in itself for you even. I know sometimes it is difficult for me, and I’m sure for others in our gang, when we sometimes think, “well our news is just trivial by comparision”.
This is a brutal illness, we all hope and pray that we will come out the other side, but can only see a minefield and pitfalls along the way. It is the fickle nature of the disease: I have read sometimes about ladies reaching the five year landmark and it comes right back. But we have to try be strong and think good thoughts for one another. We started this journey together, and we need to support one another as best we can. Gail I am glad your presentation went well today and that you are on the list, and that some of us can meet up on Saturday. I am sure Shelley wants us to keep writing, we have to battle on and try to get well, for each other, our loved ones, and the others who are affected by out illness.
…But nevertheless I am still filled with such humility and sadness for Shelley, Simon and her boys. I am posting Shelley a card - but Jo, you know how we all write and send her our good thoughts almost every day. Next time you speak to Simon, can you just let her know she is in our hearts. Sometimes, there are just no words.
Victoria xxx
I’m not a regular contributor to the thead, but I read regularly and think of Shelley and her family often. Praying for something positive for her and also sending lots of love.
Gennie
Love , strength and prayers to Shelley, Simon and boys.
Jo, this is difficult for you as well, as you’re the messenger. I think Shelley’s story runsides our own which makes it so poignant for each of us.
May God bless you Shell,
Love Kathy
Hi
I really don’t know what to say. Shelly and I were DX within days of each other with this b****y IBC. I will at the meeting in London on saturday and Shelly will be fighting to be at home with her family and dealing with this latest news.
Shelly if love and positive thoughts help in any way at all the whole group of us are here for you.
The rest of us owe it to Shelly to stay together,she would not want it any other way
Love and prayers
Andie
Just to say if anyone wants Shell’s address, please pm me!
Jo XX
Hi guys,
Thank you for sharing the news Jo. It is so bloody awful, I don’t know what to say. I’ve been hoping and hoping that things weren’t going to be this bad so soon. I just hope Shell, Simon and the boys get to spend some good time together and can have lots of cuddles. Shell was so very kind to me when I first “came out” and has fought so hard against this crap crap disease.
Shell - you are in my prayers, thoughts and heart.
Gailxxxxxx
Hello everyone!!
well I am in London with Victoria !!!
we been to see the woman in black play it was really good!!
tomorrow we are off to dungeons !!
and Saturday we are having tea with all these people!! lol
see you saturday love caron xx
Hi Caron,
Have a great time today. Looking forward to seeing everyone tomorrow.
Love Kathy