Hair today, gone tomorrow (well not quite tomorrow)

First my breast has gone, and soon my hair, how much more can we women take……
Started chemo yesterday (11th June 2010) so l can expect the fall of my hair soon.
I know l am going to be devastated, but also know it has to be.

MY HAIR

Since a child you have protected my head, from the sun, the wind, the rain, the snow.

From ponytails, pigtails, plaits, ringlets, bouffant, beehive, Backcombing, bobs! Farrah Fawcett! Twiggy, impish styles, flick ups, 80’s perm, Shaggy, the list is endless!

From Hair dryers, curling tongs, heated rollers, straightners,

I have looked after you as best l could, never dared to colour you! Tried to keep you as natural as l could, then you started to change, l could see silver coming through, now while l do love silver, l prefer it on my wrist, neck or finger!
I was in a dilemma as to whether to get rid of the silver, and keep my golden locks a bit longer! But l thought l would hold on for as long as l could to my natural colour, after all l have managed for the last 63 years, so l thought l might get away with a few more years.

But sadly no, the dreaded breast cancer has taken over my life, and chemo. has started and in a few weeks my goldilocks will have gone to baldilocks! As some of you may know my new name for chemotherapy, is peachy mother (anagram) much nicer.

A wig it must be! because l will never go out without my wig. l desperately want to feel normal, and to me, wearing a scarf, buff, hat, just shouts ‘chemo’ and l am very sorry to all you ladies that are brave enough to wear these, it is just how l feel. A friend of mine had breast cancer 11 years ago, she had her head shaved and never wore anything, she said people will have to accept her as she has had to accept breast cancer. I told her then that l would never be brave enough to do that, and sadly l still feel like that.

I desperately want to feel normal! I have lost count the number of times people have told me how well l look, when inside l have crumbled, but on the outside l try and wear bright clothes so people notice the clothes and don’t look too deep inside how l am feeling. And l seem to the outside world to be normal and coping, as one said, “l wouldn’t be as brave as you“ but then she doesn’t see me when l wake in the night and cry like l have never cried before, oh to be normal again, and to be rid of this cancer that has taken over my life!
Then the morning comes and l try and put on a happy face. To some of my friends and family l can be honest and tell them how frightened l am. I have known quite a few people that have had breast cancer, and always knew l would never cope. So that is why l cannot wear a scarf or a buff, perhaps when l am at home l will wear a towel type turban, then if anyone knocks on the door, l can pretend l have just washed my hair! Or if l am in the garden perhaps l can wear a hat, pretending l am keeping the sun off my hair!

You may read this and think why is she deceiving herself, why can’t she accept she has breast cancer? I am not sure at this moment l can answer that, it is one thing looking different in your ‘own’ way, but not in a way that makes you look ill! I look in a mirror and don’t see ‘me’ l see fear, l see breast cancer written all over me! But that is me, because as l say, people say l look well, or perhaps it is that they are not really looking at ‘me’ perhaps l am getting the sympathy vote, see what breast cancer does to you, makes you paranoid!

I was speaking to a man the other day, who has been diagnosed with inoperable cancer, when l first met him he was laughing and joking, l thought he was a carer for his wife, but it turned out she was the carer, l asked him how he managed to keep so happy ? He said he is two different people, on the outside he laughs and jokes the whole time, and it was exhausting him, but inside he was crying and screaming out for help, but no on can help him, and he knows this. He hugged me and l could feel his pain, and l knew exactly how he felt, but at least l have the chance to have chemo, so perhaps l should try and accept a little more than l do now.

I suppose we all have our weaknesses and our strengths in life, some people never get to find out what theirs are! At this moment l think l have found my weakness, and it is breast cancer, as for my strength, l am not sure l have found that yet, and l am not sure l want to, because l think my strength will only come when l suffer more! If that makes sense? And l don’t want to find that strength.

So at the moment l think l will try and be more positive, the chemo will come and go, the hair will come and go, and l hope the cancer cells that have already come will one day go.

Hugs to all for cancer free days
Sandra xxx

Wow, that was a heartfelt posting. I have been through all those emotions as well but am about a year ahead of you and want you to know that it does get better! I was exactly the same about my hair - I wore my wig when I was out the whole time. As soon as chemo finished my hair returned with a vengence and i ditched the wig about 12/13 weeks later. 2 trims later I am liking my new style at last and will keep it shorter than I used to have it as everyone tells me they prefer the shorter style. Will be thinking of you as you progress through your treatment - focus on the dot of light at the end of the tunnel - before you know it you will be walking right out of that tunnel - lots of luck, hope you sail thru xx

Well Sandra I know exactly how you feel in fact I just sat and cried when I read you thread.

It really gets you down when people say how well you look and how well you are coping you really just want to scream at them, I know people are only trying to be kind as they don’t really know what to say.

Yesterday I had my 2nd chemo and had to ring the hospital today as my glands came up they just said to keep an eye on it and if my temperature goes up to ring again it is so hard to know if you are being over cautious.

My hair started to fall out after my 1st chem on about day 12 I must admit it was quite distressing I got my daughter to cut some of the length, it is now very thin and i’m bald in patches its strange but i just can’t bring myself to wear my wig, all i have been wearing is a buff with a scarf tied around it, people don’t seem to stare well if they do I haven’t noticed.

As you say we must stay positive and before we know it chemo will all be over and our hair will be growing again

Take Care, big hugs and keep smiling Emily x

I didn’t cry when I got the BC diagnosis, I didn’t cry when I had my mx, I sobbed for two hours when I filled a tesco carrier bag with my beautiful long brown hair. However, I decided not to wait for normal to return but to accept that there is now a new normal, to take everyday for what it is otherwise life will pass me by. Finished fec now doing tax, I met my surgeon outside the hospital setting and he commented on how great I looked, I took that as a compliment, times are tough, but every day I make an effort to look nice for myself and my family, especially my little boys. It does not take the anguish away but it also means that I am not giving in! I hope you too can find a way through these challenging times. Big hug. Tina

Hello, Sandra. Have you thought of writing a novel? you have a wonderful way with words, could open up a whole new world!

I am on day 16 today and havn’t noticed any hair fall yet but I have had it shaved on a No. 4. OH calls me coconut, so flattering, can’t wait to hear what he will call me when it’s all gone. I have been wearing my wig when out & about- nobody has laughed at me yet so it must look fairly convincing. What I am dreading is if my hair comes back grey, but if it does so be it.

Love Carol

Hi Sandra,

I started losing my hair just before my secound FEC cycle, am due my 3rd on the 16th, i decided to have a number 2 head shave as i couldn’t bare to have big bald patches. I thought i would cry, but even suprised myself, as i didn’t.
To be honest with you i got fed up not being able to wash or style my hair so i thought whats the point!
I never thought i would be glad to see the back of my hair, i just wear headscarfs, i have a wig but my head is to sensetive to wear it at the mo.

I hope you manage to keep as much of your hair as possible, and hope your chemo goes as well as possible.
Take care Sandrae x x x

Hi Sandra,

I agree you write very well, with a strong sense of integrity- you should think about it. Good luck with the chemo i hope all goes well for you and SE’s are minimal.

Kindest thoughts

Lynn

Losing my hair was more emotional than the MX. Part of that i think was about knowing that there was nothing i could do to save my breast but with the hair i tried so hard to keep it, juicing every day all through chemo, cold cap etc - nothing worked and that made me cry even more!!!

Lynn

Hi Ladies,
Debonair, if that is your hair now in the photo, it looks lovely, so l am hoping it is, because a year is not too bad!! xxx

Emily, Sorry l made you cry, by putting it into words is the only way l can cope! Lol!
Hope your glands were ok, we have to be so careful, but the nurses are on the ball.xxx

Tina, I really do try and think this is the ‘new’ normal me, sometimes it is ok and others not so good, hoping one day…yes today l have two of my grandchildren coming round, and it will be put on a happy face, so yes of course you do for your children, we have to, the last thing we want to cause them is anymore anguish than need. hugs to you and your children xxx

Carol, Now what would my novel be about, l only think about breast cancer! would be a depressing novel! funny enough my sons are both good at writing, never thought they got it from me! l just type away without thinking! No your hair wont come back grey, if it does it will be a silver lining! xxx

Sandra
Yes l will have a shave, the thought of bald patches and hair falling about me, would really upset me! l wash my hair every day, so as soon as l can’t do that, off with my head! or hair! xxx

Lynn, I remember when you were losing your hair and how upset you were, it left an impact on me, because l knew l would be the same, l hope there is a light at the end of what seems a very long tunnel for you. Yes l knew the breast had to go, but l had no reason for my hair to go, because there was nothing wrong with it. just the dreaded chemo doing its job l suppose xxx

Here’s to a full head of beautiful hair and a healthy body
Lots of Hugs and hopes for everyone
Sandra xxx

Hi Sandra,

I must admit, i was devasteted when i was dx with bc, but after the initial shock i started to come to terms quite quickly with what lay ahead( due to the fact that my mum had had bc twice, years apart).

My mum was a fighter, she never compained she just got on with it, like all us ladies here are doing, but the hair thing was my biggest dread of all the treatment i was due to have.
My mum first had bc 27 years ago, in those days she wasn’t offered chemo, and then 10 years ago it was pretty much the same for her, no chemo, so i think it was the only thing i didn’t really have any clue about,(mum had radical mx each time, radio, and tablets)

It took me days to decide to go ahead with the head shave, but in the end it was the best thing to do, i am still losing my hair(what little is left) and i am thinking about having it shaved again, as even though it is only about 7mm in places , it is quite annoying when i find it on my pillow in the morning or in the bath when i was it.

I used to wash and style my hair every day without fail, in fact i wouldn’t leave the house without doing it,
The big bonus about not having much hair, you save loads on hair cuts and products, save loads of time each morning aswell.

I hope you manage to keep your hair, but sometimes i think the waiting is the worst, the first thing i did each morning was look at the pillow, then i would check if i had lost much in the bath.
It drove me mad, knowing that my oncologist had said with FEC i would loose my hair, no matter what,
I now dread the fact that i may loose my eyebrows and lashes, but as the saying goes I WOULD RATHER DIE OF EMBARRASMENT THAN BC.

Hope all goes well with your chemo, i am due my 3rd Fec on thursday, the time has gone so quickly, only seems like a couple of weeks ago that i was first dx.

Take care Sandrae x x x

Well day 17 and my pillow this morning looked like next doors cat had slept on it! So glad I had had it shaved. I would have been so upset if they had been long bits instead of Very short bits!

Carol

hi sandra,

as you know, i tried the cold cap but decided it hadnt worked so shaved off my hair as i got sick of checking for bits coming out and not being able to wash it, dry it, style it. I suspect the cap had worked better than i thought it had thoug, i just had fec 3, still have 50 pc coverage and the stuff that has stayed in has actually grown , in a weedy kind of way! Fully expect to lose it all soon,esp as i start tax next. Pubic hair going freaked me out a bit more!I have worn my wig out quite a lot but its scratchy sometimes so i only wear it for trips. I have a cap near the front door to slot on when people knock, and wear baldy head usually in the house ot my little bandana type ready made thing if i am cold or sick of seeing my bald head. I have worn a headscarf when it was really hot, it looks alright with the right outfit, eg. flowing dress, but i feel too obvious in it with my jeans/boots/t shirts, but my cap works well then. I still have sideburns and bit of hair /stubble at base of neck so that helps.

But basically its still crap t lose your hair to this, but it will grom back

Vickie

Hi Sandra, yep this is a recent picture, in fact its even been trimmed again since photo taken and an added bonus - my lashes have returned a lot thicker too yeeeaaahhh x Debbie x

Well Debbie you look lovely, the hairstyle really suits you. your hair has grown back really nice
Hugs
Sandra xxx

Hello Ladies,

I have been diagnosed on Jan. 2009 and been on chemo for 6 months, mastectomy and then 25 sessions of rads. I finished in February 2010. I have not posted on this site for a long time and it is good to read about all of you again. I feel very good and my follow-up appointment in oncology is tomorrow (fingers and toes crossed !) There is just one thing bugging me (nope, not the missing breast). My hair have grown but half as thick as they were. Will it ever come back as it was or is it definitive ?

My best thoughts are with you all

Sonia
xxxx

Hi Sonia
Sorry can’t comment on your hair, as mine is still with me for another week or two!!
Just wanted to let you know l will have everything crossed for you for tomorrow
Good Luck
Sandra x

my heart goes out to you - I was traumatized about the hair loss, but once it was gone (exactly 14 days after first FEC) I was relieved. Strange I know. It was my way of knowing that it was working and I had to lose my hair to get better. I am over 12 months down the line, was dx in May 09. As for scarfs, wigs, bald, that is a very personal one. I had 2 wigs which I really loved and they made me feel normal “no-one knew”. I had some great scarfs and was a dab hand with a pashmina! I also did the bald thing towards the end was I feeling gutsy! Had a great sparkly cap from M&S and some beanies as my head got cold. On a positive note, I did not lose it all, still had a very faint covering and after 4 chemos, it started to grow back. I stopped wearing my wig end of Jan and have since had 2 haircuts. It has grown back very dark and very thick. Looking back, losing my hair was the least of my problems, but it was not a doddle and I found it difficult. Once it was gone, I really did feel relieved. best of luck
xxx

I also forgot to mention that I am still on herceptin, have 6 to go and there was a thread on here that said your hair grows a lot slower whilst on herceptin - well mine hasn’t, so I don’t think there is any truth in that x x x

One thing for sure, we are all so different and things come and go at different times!
Like you my main concern is the bc, l could cope with the hairloss, if l knew the bc would not come back! but that is a wait and see game as with us all. The hair we want to come back the bc we DONT.
I hope l can feel gutsy as some stage, but at the moment it is still early days! two haircuts already, costs you a fortune! what joy!
Sandra xxx

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