Hi everyone, wondered if anyone else on tamoxifen had developed headaches and tiredness. Started tamoxifen Nov 06 - but last few weeks have been getting headaches and feeling really tired - worried that it may have spread to my brain now of course!!! Have a bone scan coming up in a couple of weeks - as had sore ribs a few months ago - the first bone scan seemed to suggest that it was normal ‘wear and tear to bones’ though - so fingers crossed second one will too - pain has all but gone now.
Why is it that every little ache and pain, spot/blemish, makes us think the worst - am feeling really down today.
know how you feel im on arimadex and the tiredness is awful then at night i cant get to sleep because of pain in my bones. im due to have another bone scan because i have a few iffy places that need looking at,am hoping its rads damage as anything else is just to hard to think about ,ive had mastectomy and chemo plus rads and the thought of a repeat of it all scares me to death even more so than the first time. so im down today just like you. we could cheer each other up! know any jokes? lol!!
Hi aroma, - lovely to hear from you, but sad to hear that you too are down today! I’m a lot like you - had mastectomy, chemo and rads and I’m hoping the sore ribs is result of rad damage - you’re right it’s far too scary to think it’s something more sinister. Not very good at jokes - only the real silly kiddies jokes - even my grandchildren don’t laugh at them!!! When do you have your bone scan - mines scheduled for 20th July?
hi jean , thanks for the reply , as yet i havnt heard when my scan will be the oncologist said she would get me an emergency appointment and that was nearly 2 weeks ago!! with the post strike it may be thats whats holding things up . if i havnt heard by sat i may well ring the hospital myself! cant stand the waiting its driving me nuts. my pain is on my ribs on scar site also on shoulder behind arm where i had lymph nodes removed so you can see myworry. anyway no news is good news so they say , but in my case id rather know one way or the other , its like going back to last year when i was having all the pre op tests! and the weather dosnt help !!! there moan over maybe tomorrow may bea better day all round for us both, sending you a big hug love lynn xx ps how many grankids do you have? ive 12!
Sorry only just seen your post not logged on since yesterday. Hope you hear your scan date soon - totally agree the waiting is the worst part. Hope you’re having a better day today. I’ve been busy so it’s kept my mind off it for a little while - always find that helps!! Retail therapy also helps tremendously, but have had to cut down - credit card has taken a hammering! Wow, can’t believe you’ve got 12 grandchildren - how do you remember all of their names - I struggle with 6, and to remember their ages each birthday is a nightmare!!
On subject of sore ribs, mine were very painful near the scar site and in area where you say behind arm. Have you been doing any lifting or strenuous work - cos I know I had in the week before it all started. Foolishly (with hindsight!) thought I would be able to do it. Thing is at first BCN said it was probably muscle strain, but it went on for about 8 weeks without easing off, that was when I had to have bone scan. Let’s hope your’s is something muscular, or even rad damage. I’ve read that a lot of ladies suffer with rad damage - think the oncs are loathe to tell us that as it may put us off having rads in the first place.
Anyway, thinking of you, and sending big hugs, Jean xx
i only had a lumpectomy and 18 lymph nodes takem i will be starting rads soon and amarifax? i feel tired now heaven knows how many times i am going to drop off to sleep when i start the treatment my doc told me if i feel tired just go to sleep not too sure how other drivers will feel if i do that lol jokes i got loads of em
2 fish in a tank one turns to the other and sez "errrr do u know how tto drive this thing ?
big hugs and hope you feel better soon roz
Love the joke, that’s my kind of joke! Yes, it’s easier said than done just to sleep whenever we feel tired isn’t it, I just wish? Hope the rads don’t make you too tired. Love and hugs, Jean x