Good luck to you both for your results tomorrow x
Best of luck, everything is crossed for you.
CM
x
Hi chezza and everyone else!
Will definitely meet you here this evening, You are probably about to go into your appointment as I type this. Hope all goes well.
Am keen to find out whats going on and get on with it. Kepp having a day dream that everyone will say, ‘Well we got it all in the op and you are released!!!’
Got to go and do something to keep me occupied till 15.30 this pm…See you all later!
Wandyx
Hi all,
Well Wandy - hope u had better news than me!
I still feel in limbo!
But at least i can plan a nite out in the meantime!!
After MRI last week I thought i’d have a lot more info today.
I am REALLY disappointed, was told today that am having a MX on right boob in ‘about 3 weeks time’.
They can’t tell me what stage the cancer is at because the tissue is too dense to see through properly.
They can tell me it’s about 4 to 5cm & that my lymph nodes are enlarged so i have had another biopsy on them today as they just wanna check them again.
So, although i know the surgery am having i now need to decide on reconstruction…may just put that to one side for the moment.
So i still feel non the wiser!!
On a lighter note, my workplace have decided that their nominated charity this year will be a breast cancer charity.
The men are gonna have their heads shaved…
so considering there’s only 4 of them & three of them are nearly bald it may not be a huge amount of money raised but hey! It’s the thought that counts, lol!!
(Am jokin, there are other offices getting involved luckily!!)
So ladies (& gents) - which charity should it be?
I am so new & ignorant to all of this & there are so many different breast cancer charities…ur thoughts/comments will be greatly appreciated!
Chez. xxx
Hi, Chezza,
Sorry not great news for you. its really tough all this waiting for one dianosis or another. I think thats the main thing I’m having to learn…Patience!!
Well. not great news for me either. Alhough my surgeon was pleased in some respects with no spread from the 3 nodes that were taken in the SNB, however although he took a good mass from what turned out to be 2 tumours!!! he has’nt got clear margins and guess what he’s going in again!! Feb 28th is the next date. He says that altho the 2 tumours were 2.3 and 2.5 respectively that I might still get away with radiotherapy and hormone treatment but it will be the onc’s call who will decide once we get the results from this next op. Sigh…and so it goes on.
I understood that above a 2cm tumour the guideline was for chemo and if he took 2 tumours with a total mass of 4.8cm does that mean I ought to push for chemo to make sure or just be happy that I can get it sorted with radio??
Any thoughts anyone?
Anyway chezza, keep your chin up. Its sounds like we’re travelling a similar journey. I will stay in touch.
Wandyxx
Bless ya Wandy, sometimes it just seems never ending already!
& I am right at the very, very beginning of a very, very long journey!!
U know, am just gonna put my energy into havin a good nite out on 26th of this month - haven’t been out in 2 years & won’t be havin another for a while by the looks of things!!
Wandy am so sorry u’v got to have surgery again.
I am so frustrated at the moment, can imagine ur feeling the same?
As u said yourself, keep smiling, it’s all we can do!
Hugs,
Chez. xx
Wandy, it’s really not uncommon for them to have to go back in just to make sure they get clear margins (I was quoted 20% of cases). I had to have a re-excision and my surgeon took another “slice” to try to get clear margins. Actually, she took three extra slices, and needed all three to get the margin we needed, but we got there in the end. So please don’t fret too much about it, though I completely understand the disappointment. I have a sneaky feeling Marygrace has something booked for around then, so we can hold both your hands as you wait for the results.
As for whether to request chemo, for some of us it’s a no-brainer (I’m Grade 3 and HER2+ so chemo’s a must for me) but others are borderline whether the negative side-effects outweigh the benefits. If you’re a borderline person your oncologist will show you what the relative risks are with, or without, chemo, and then the decision is up to you. 90210 had a similar decision to make and agonised over it for days! Ultimately it is YOUR decision, they can just give you the benefits and the side-effects and it’s then a couple of sleepless nights for you as you turn the options over in your head.
Chezza, they can possibly give you an indication of grade from any biopsy you’ve had done, but they don’t know for certain until they have the whole tumour that they can grade effectively. Stage they won’t be able to say until they’ve checked out your nodes and any other body scans they may want to do. Can’t offer any suggestions about recon as I haven’t had to have a mastectomy but there are loads of threads about it from ladies who can give you their own experience.
I hope you both manage to stop your heads from reeling too much tonight and get a good night’s rest.
CM
x
Thanx CM & good nite all.
I’ve had enough for one day!
Chez. xx
ChoccieMuffin,
Thankyou so much for your comments. I guess I will just have to wait and see.That ol’ patience thing again!!
Am off to bed to try and get some sleep, although things will be whirring around for a while!.
Night all.
Wandyx
Well ladies (& any gents out there),
Spoke to one of the BCN’s today & got the 2nd lot of needle biopsy results from my lymph node tests & again they were clear so good news there.
But the surgeon was talkin about SNB when i saw him on Tues…so does that mean they’ll remove some nodes anyway?
Also, cos am havin mastectomy, i’ve got to think about LD flap reconstuction in the meantime…it looks like a major op!
BCN is comin out to show me fotos & to chat about it on Monday.
Still can’t believe this is happening to me.
So where do i post now?!
Cos i haven’t got a date for my surgery but the surgeon said it would be ‘in about 3 weeks time’…that was on Tuesday.
Think i’ll just stay where i am for a bit if it’s ok with u lot?!
Chez. xx
Hi chez,
You can stay here, I check it and I’m sure others will as well or scan (good word for this forum!!) any of the other topic headings that you feel might be helpful.
Can’t tell you about the flap cos haven’t travelled that route but had a WLE and SNB about 3 and half weeks ago.
They will take a node or two in the SNB but that happens while you are in the op (mx in your case)and they generally do path work on them straight away and it allows the surgeon to make on the spot decisions while you are under. If the nodes show clear he won’t have to take any more nodes than necessary. Its a great advancement on the days when they would go in and just strip out everything to be safe.
Try not to worry too much, the waiting for it all to happen is hard but make sure you keep talking to bc nurses and coming on here. So many wise heads and previous experience. And I don’t mena me, cos I am just a novice too!!
Take care
Wandyx
Thanx Wandy,
Think i will ‘scan’ some of the other threads, it’s a great site, so glad it’s here or i’d be going mental all weekend without somewhere to get more info or hear about other peoples experiences.
Speak soon,
Thanx again for the prompt reply & SNB info!
Chez. xx
Hi Chez, sorry to hear your dx. Don’t worry about SNB, they inject some radioactive stuff (mine they did day before op) and take out as few nodes as possible. My surgeon said sometimes they can’t take one because they’re in little cluster. I had two taken out so plenty left to do their job x
Depending on where you are, they might also inject you with blue dye to make sure they get the required nodes, which can leave you a bit blue (literally - my nipple’s still not its normal colour 6 weeks later).
If you’re having mx they will probably take the nodes through the mx incision, so you’re unlikely to have a separate scar under your arm.
Hi everyone i had WLE with nodes taken not sure how many i now have a infection in my breast which iam taking antibiotocs for i go for my results on thursday 24th feb its a pain waiting also scary place to be in i just want to know my results and know which treatments i will have to have i just hope they got all the cancer thats my biggest worry at the mo thanks for listening maxine xxx
hi madmax try not to worry 2 much i no that easier said than done im sure when you know what the line of treatment is use can focus on what needs to be done no one will say its easy but you can do it trust me take each day as it comes take care
Message for chezza72 Hi I had LD flap 14 yrs ago following mx ( just recently diagnosed again in the other breast, sucks eh!) if there is anything you want to ask me feel free
Lv J
Thanx J!
I have sent u a PM!
Chez. x
Hi I was diagosed on the 1/2 and had surgery the next week, lump removed and SNB, but just got results and they want to remove the rest of the Lymph glands, I am so scared I cried for a days, I am usually such a positive person but I’m finding it so hard, just read the other comment on here and although I feel I am going through this alone I’m not!! Take care H xxx
You are in good company here Hellydiamond. We have all been through, to greater or lesser degrees what you are going through now. Keep your courage, read posts relevant to your situation and post whenever you feel scared or blue or worried, or happy!!
You will get a lot of help and comfort from everyone here.
All the best
Wandyx