Totally agree Wandy,
Hellydiamond, the support on here is fantastic, anytime u have a question/thought/anything at all t post, there is always someone to help/advise/empathise…
I’d have gone bonkers if i hadn’t had this site!!
I was diagnosed on 1st Feb & will be havin MX & ReCon. within the next 2 to 3 weeks, i’ve found loads of helpful info on here & it’s got me through some very dark lonely days & nights.
Good luck to u (& to everyone else on here)
Chez. xxx
Hi all, especially HellyD I’m a tad behind you after being Dx with IDC Tuesday this week. I’m 45 yrs and have a 4 yrs old son and have just adopted a baby…she’s only been with us for 2 months and I’m having the same op as you’ve had on 8th March. I share so much with you the fear you feel, especially when I think of others… but a week on from Dx I think most of it is (for me)a fear of the unknown and once I know the treatments available to my cancer, hopefully that fear will reduce…What I’ve learnt or more like I was finally able to accept what my nurse has no doubt told me several times,is that its treatable.’ I didn’t believe her at first…I was too much in shock (I reacted like she’s told me I had 24 hours to live) but as the days have passed I’ve come around to the fact that although a rocky road lies ahead, nowadays cancer can be managed… (I can’t believe I’ve just wrote that)but what I would never want to do is underestimate the extent of the fear…I’ve been in some frightening situations, I never knew fear like this existed. HellyD, no doubt your in good hands and they’re on to it!!!..Alyson
To all of you newbies, you’re in a horrible place at the moment. I refer to “The Waiting Room” with capital letters, because The Waiting Room in a BC context really is a special, and horrible, place. The dreadful thing about this disease, most noticeably at diagnosis but also at every other test you have along the way, is that no-one has a full picture of what’s going on so our imaginations take over and even though we can think about it logically, our emotions and fears take over. I am SO with you on the “dead in 24 hours” thing, I swear I organised my own funeral while waiting for results of a second core biopsy that turned out to be completely nothing to worry about!
You have the sympathy and understanding of every person on the forums because we’ve all been there, and we’ll all be there again at every future mammogram, scan, test or even follow-up appointment with the specialists.
Hi All,
just found out that I’m Triple negative, is this bad??
Please help??
Thanks H xxx
Hi Helly
Advantages and disadvantages to both sides, so don’t worry any more than you already are.
Er and Pr negative means that your cancer wouldn’t respond to hormone treatments, but that means that you won’t be given Tamoxifen or aromatase inhibitors which bring with them their own side-effects to deal with.
HER2 negative is not uncommon, as around 25% of cancers are HER2+ so the majority of people don’t get Herceptin because it wouldn’t do anything for them anyway.
I have read that triple negative (sometimes shorthand is TN) cancers respond particularly well to chemo, I’m sure others who have the same diagnosis will be able to help you.
There are several threads about triple negative, and I think there’s also a BCC leaflet about it. Have a browse through the forums, and also give the helpline a ring, they are very good at offering sensible, practical and realistic support.
Good luck,
CM
x
hello this is my first visit. not sure what to say, but had lump and nodes removed last wed 16th have appointment for next stage chat next mon. Only found the lump at end of jan only had BC offically for one week. so still coming to terms with it all. Im 36 married with 2 children aged 12 and 14 so am well looked after at mo.
Hi Charlotte, and welcome (unfortunately).
Wow, that was quick work, and while it must feel like you can hardly catch your breath in the rush, hanging around waiting and fretting and worrying is really horrible. My littlest kids are the same age as yours though I’m a bit older (48) and I have two other older ones too.
You will probably find next Monday’s appointment a bit full of information, so you might want to bring someone with you, and also have a notebook with you too, to write down your questions and then the answers you are given. The Publications section on the site is also a good source of information, as is the helpline.
Good luck for Monday and lots of good results.
thank you for th welcome and for the advice chocciemuffin
Hi everyone its me again i had WLE and nodes removed (not sure how many ) i go for my results tomorrow 24th feb getting abit nerves now but in a weird way i cant wait i just want to know they got it all ( i really dont want another op) and i just want to know what treatment i know a will def have radio cus i had WLE i just want to start the next step if you know what i mean ask for listening maxine xxx
Maxine, we all have things crossed for you for tomorrow, the waiting’s the pits.
If it’s any consolation, I had a re-excision and it was MUCH easier to cope with than the original WLE and SNB. I didn’t have to have more nodes removed as my SNB was clear, but others can come along and talk to you about that bit if you do need it. Fingers crossed it’ll all be fine for you.
Know just what you mean about wanting to get on with the next step, this hanging around’s enough to drive you barmy.
Good luck for tommorrow if you can take someone with you 2 pairs of ears are better than 1 sometimes they bombard you with so much information
hello again, many thanks to those of you who sent me messages. I have been back to hos for results of op and was told that there are some pre cancer cells left!!! so am going back in on 15th for more nodes removal, and as i have little boobs to start with im also having a MX. was just getting my arm back to normal and now i’ll be back to less than square one!, with chemo starting around easter… trying to workk out wheather to ice cap as have a wedding in may and in june…
Thanks again for support x
Hi everyone again my results wasnt great i had WLE on 28th jan results are they didnt get all the cancer and they took 22 nodes 19 was clear 3 wasnt so iam to start chemo in 2/3 wks not got a date yet then after chemo i will be having a MX