Hello all you lovely ladies, I was diagnosed this year in March by a routine mammogram, even though had been to my surgery couple of months back with a little lump and puckering of my nipple was told nothing to worry about and was given antibiotics. Anyway couple months later had my routine mammogram appointment through the post. 2 weeks later called back had biopsy of my breast and was given a result date, where I was told I had grade 2 lobular cancer.
What a day thought it was the end has I have several mahout of conditions like chirrhosis of the liver that not good I haven’t drink alcohol since I was 18 after having my first born.
It was through a fatty liver which has made my spleen very enlarged and my kidneys won’t good plus I fell and have Lymphodema of my legs.
I battled to lower my weight lost 8 stone made my liver stable has they were going to put me on the transplant list.
I have had a mastectomy 5th of June waited 4 months for it, they said my lymph nodes looked fine on the ultrasound said it looked fine but they said they would do a lymph node biopsy same time has the maesectomy
Well 2 4 weeks later I went in for results after maesectomy and 2 of the lymph nodes had cancer so needed to go back in for a full clearance, what an outing I had but I won’t put all detail on here has it’s still raw but the drain fell out after one day and they would not be able to put another in I had to just let it free flow my bed and all the towels I put out and n bed were soaked every night for 10 days my husband had to dress it and keep it clean nurses saw me about twice
Last week I went to see ongolgist after anther 5 weeks of waiting and I had a week to decide if I want to have chemo if I was someone without a liver condition it would be straight forward. He advised that I do need it has the cancer eventually became stage 3 and had grown from 50 mm to 70 mm and was aggressive
Haven’t heard from my liver specialist even though he has been informed by myself and doctors, been under two health boards
I am having radiotherapy plus the letrozole plus the something acid forgot the name infusion every 6 months.
Can’t even start any treatment anyway too because I have a whole that had not healed over
Anyone been in the same position or any advice would be greatly appreciated
Every single one of you are so brave and I have such admiration for you all. So scared so annoyed that I think I have been left down, but so glad that I am still here and feel lucky so much mixed emotions. Thank you for taking time out to read sorry it’s so long. My name is Anna
Hello there Twingle
I want to say that I probably can’t help very much with the issues you’re struggling with but I wanted to show my support because you are one heck of a brave lady . I’m hoping someone else with more relevant experience either of chemo and liver problems or wound problems will answer but you could try posting in the Ask The Nurses section or ring the helpline to talk it through - they may be able to give you some relevant information.
I would ask your Oncologist to give you the percentages as regards benefit of chemo and ask him how he plans to monitor your liver function whilst you are undergoing chemo . As to your liver specialist - it could be that there is a meeting planned when your case will be discussed with other specialists and he’s holding off talking to you until after that . I do work in a hospital though and I know that if you don’t have an appointment you can sometimes contact a Dr. via his Medical Secretary . Hospital switchboard may be able to put you through but sometimes there’s a name / number / email address on the Hospital website ( forgive me if you’re aware of this already ).
I do hope that your wound is improving but I would suggest contacting your BCN or GP to get District Nurse input if it’s not healing as it’s leaving you kind of stuck in limbo - which I do have experience of and it’s crap .
Sending hugs
Joanne x
Welcome to the forum @twingle
The forum is full of helpful and supportive people like @JoanneN and I hope you find it useful. Please also know that our nurses are always available to talk things through or answer questions on the Ask Our Nurses board of the forum.
Please do have a look through the various boards and topics to find those going through similar experiences or for places you may be able to share your experiences and knowledge.
This is a very supportive place, so please do ask any questions you may have.
Sending our love,
Lucy
Sending love 
Hello @twingle and welcome.
What a journey you have been on and continue to go through. I just wanted to say thank you for pouring out your heart and sharing your journey.
You are very brave indeed but I am sure you don’t need another person to say that. You have probably been functioning on adrenaline and just fighting one thing after another and continue to do so.
Try not to lose yourself or your rights during all this ‘chaos and confusion’. Definitely clarify need for treatment and weigh this up carefully. Take your time, breathe and find things to do that relaxes you.
I want to wish you the best outcomes with lots love Anna xx
Thank you very much for your kind messages back to me, today I went to see the ongolgist and we talked and said I am as willing to give the chemo a go he was happy with that and said they would stop it it if my liver was deteriorating.
They wanted to look at my wound it has not healed at all, and they were shocked that no one had looked at for a few weeks has I mentioned I am under two health boards.
Now I have been given 3 weeks to see if it heals has they can’t give chemo with an open wound and because of the waiting I will run out of the time scale of having it, so I will not be able to have it all the percentage of having it with other treatments is 10% which is a lot the ongolgist said.
Has it was an aggressive bc
Everyone of you on here is brave to me thank you for saying so but only brave I can be I have had to be I am not going to lie but it’s been one thing after the next and I do say give me a break please, I cry at night in secrecy because I can’t let my loved ones see me fall apart, sometimes I don’t even want to get up and face the world and I feel so selfish then.
I do Live of adrenaline I can’t keep still lately in horrendous pain with everything.
Anyway I have got an appointment on Friday with the bret care nurse Friday.
In the meantime my husband has put stero strips on it and padded me back up has I was told to take it of weeks ago.
I haven’t had a break away for a very long time hopefully we can have a night away Saturday I need to recharge my batteries.
So sorry for the spelling and Grammer mistakes in my last post just wanted to let it all out and sent it without checking over it.
We still have 2 adult sons at home and during my recovery I had my second oldest back home has he has split from his wife and came home with lots of problems.
I am a mother of 4 adult sons and a grandmother to 3 beautiful granddaughters.
I don’t see the last grandaughter so much has they live in England and I live in South Wales.
Just wanted to thank you all for the message land suggestions. Yet again I have rambled on. Well whooshes I am sending to you all too x
Hi Twingle
I too live in South Wales and fall between two health boards. It does tend to make things more long winded as I feel they don’t communicate and I’m left to sort things out
You certainly have a lot to be getting on with. I hope everything works out well for you treatment wise
Take care
Jan
Hi Jan thank you so much for your message, so sorry your going through the same. I am from Carmarthenshire and been under Swansea but now back with Carmarthenshire.
I have to chase everything up if I did nog I be in limbo. You take care also x