I think I posted on this forum about a week ago to introduce myself but cannot remember where, when, or anything!
Went to my doc May 2nd, did not get appt for breast clinic til 19th July!! They offered me one during 9th week post doc but I was on holiday ( I had expected the appt to come through within 6 weeks so had not shared my dates ).
Biopsy 4th August, Informed about cancer 11th August and op not until 31st August.
My wee experience so far is a bit of frustration that my consultant is not willing to remove the two fibroadenomas and cysts that are keeping the youngest (cancerous) fibroadenoma company. Tried to explain that when your boob feels like a bag of marbles it may be hard to detect any future changes. Also tenderness is of the ‘hit the roof variety’. I sat next to an enthusiastic small child at the theatre last week and nearly wet myself every time he engaged in over enthusiastic clapping!Just want it all out.
Aaaah, now that feels better to share.
Take care all. x
Apologies, I am not ignoring the fact that some of you are men. I was just in lady mode because I was reading mainly posts from females. No offence intended. x
Hi Crabbit - welcome (though as always it is a club that you would not have wanted to join!). I tend to pop in and out of the site less frequently now, being 9 months ahead of you in diagnosis, so can only say whatever they through at you, it is doable, and there are so many good people here to support you through it all. The last few months must have been very difficult with the delays that you have had.
Not long to wait now until your OP - wishing you all the best with that xx
Thank you Project, I have to say the scale of the forums is quite daunting, but how wonderful to have such a lovely community here. Good luck with your continuing recovery! Xx
Hi there - sorry you’ve found yourself in this situation, but welcome along - and I know you will find this forum a massive source of encouragement, support and information.
I also only pop in very occasionally now - I was dx back in October last year (note to self: Never get dx in breast cancer awareness month… you can’t get away from bc for a second, it’s on every news programme, every newspaper…lol), and am now back at work - but I echo what projectwoman says - it is all do-able. Bloomin miserable, tiring, sometimes painful and not as much fun as a holiday abroad, but you can and will get through.
Best of luck hun… and for what it’s worth, if there’s anything you disagree with from your medical team, argue, stamp and query until it’s sorted to your satisfaction. Cancer is to big to f about with - and this is your body, your treatment, your life. Never feel you are being a pain in the proverbial… you may well be - but you have an absolute right to be. There is more than one surgeon, more than one consultant, more than one oncologist out there - and it is worth persevering to find the one who is right for you. Cancer, even grade 3, grows slowly - spending a couple of weeks longer to get an outcome you can live with (in every sense of the word) is time well spent.
Sophie xx
Hi Crabbit, sorry u had to join our club. When i was diagnosed i was told i had quite a few cysts as well. They did tell me that it would be harder to detect any future changes but said that that was their problem & they would keep a very close eye on me at followups. They also said that cysts come & go so i could have them drained or removed but if i was prone to them, then they may reappear. I didn’t argue with them or even question anything, i think i just accepted what they said which may have been foolish, i don’t know.If u feel strongly about it though then definately stand ur ground with them especially as u have pain with them. Presumabably ur having a WLE. x
hi,
Sticky one this. You know your breast and what it feels like, the consultant knows about how hard it is to operate on certain growths in certain positions and what normally is the best operation to do.
I would say that the appoinment where they tell you that you have cancer is not necesserily the best time to have this discussion, because they are used to people being shocked and making what seem to be illogical remarks. I do not think it is unreasonable for you to ask for another appointment for them to explain why they have decided it is best to leave the benign bits alone. There have been people on here without cancer but having the lump removed so it does not hide future cancers. But perhaps it depends on the type of breast you have (how dense it is) and what sort of lumps they are. Anyway if you can have a calm and informed discussion with the surgeon they can re-evaluated the whole situation. you will then understand their decision and maybe be happier with it or have the strength to question it with other surgeons.
If you dont talk to them again and just go ahead it might always be in your head that you wished they had taken them out.
Hi Crabbit and welcome to the fold. It’s a great place to let off steam and realise that your feelings and emotions are very similar to most others. I am new to the forum too and have found great humility here…a good choice of yours I hope the rest of your treatment goes smoothly after a rocky start and good luck to you.
Hugs to us all. xxx
Hi Crabbit,
I am fairly new to this site having being diagnosed on 5th August after undergoing two biopsies, the first one being inconclusive. This waiting period has been agonising but I am having my op at last on 30th August, the day before you. I just want to get it over and done with and then will face another agonising wait for the results.
What op are you having? I expect it is WLE.
I have quite a few cysts and the radiographer had to negotiate her way round them whilst doing the ultrasound but didn’t seem unduly concerned and they don’t give me any problems. My lump was picked up during a routine mammogram.
All the best for your op and thank you to all the ladies (and men) for sharing your experiences and knowledge which has certainly helped me a lot. x
Hello again everyone,
Thank you so much for all the support. It has taken me ages to find my post again but hopefully it is saved properly now.
I had my WLE and SNS on Wed 31st August, lovely staff in ward and surgical team so a very positive experience. Got out same day and feeling fab but also my surgeon indulged me and removed the other two fibroadenomas, for which I am so, so grateful.
I do understand that there is no statistical difference in prognosis had they left them but this is something I really needed done for me. I was able to have a quiet word with surgeon pre op and they concurred.
Waiting for post surgery appt, but life is good at the minute. xx Hugs to all.
Btilliant, I am so glad they took them out, its what you wanted and knowing they have gone will help you feel good and recover better.
Look after yourself and dont try to do to much and come and tell us what your results are next week.
Will do Lumpy xx