Why does this happen when there’s no one to talk to (hubby on nights). Silly o’clock again and I’m worrying. My double MX and recon is on Sunday, so I’m feeling more vulnerable just at the moment anyway, but I’ve just got up to go to the bathroom and looked at my boobs (keep looking while they still look like they belong to me) and I can see a pinker sort of inflamed area about the circumference of a small satsuma next to my nipple. As I do, I’ve googled it and now think I’ve got inflammatory breast cancer as well as IDC!!! Panicking now until I can ring somebody for advice.
Hi Fairy Dust, how are you doing now?
I can’t imagine what you are going through, I have Lobular BC and although I’ve had to have 2 lumpectomy’s and still recovering and also waiting to see if I need chemo etc, I did not have to have a MX so can’t say I understand what you are going through but thought I would just say, until someone else comes along that knows what you are going through, that I was thinking of you.
Whilst in hospital, I met a lady who had 2 MX and she said she was just glad she knew it had all been taken away and that at first she was devastated but once she got her head around it being her best and safest option, she felt much better.
Once she came back from theatre I admired her positivity and she said she didn’t have to suffer chemo which she was relieved about.
The nurses were great with her and very reassuring.
I hope in the future you will feel as positive as she was and no longer scared/worried.
Best wishes Fairy Dust
Sue xx
Hope you’ve had some reassurance Fairy Dust, the ‘hour of the wolf’ around 4 in the morning has a lot to answer for!
Sending loads of best wishes for Sunday, you’ll soon be out the other side.
ann x
Thank you, Sue, Sunflower and Ann. Going to see breast nurse this afternoon, after ringing them yesterday. Feeling really bad about this. Dr Google has helped me a lot so far (that’s how I found all of you lovelies on here), but I’ve scared myself witless now. If it is IBC (as well as the other bits - 5 now) my op on Sunday is in jeopardy.
I’m just hoping I’m back on here later telling you what a stupid girl I’ve been and feeling very foolish!
Sending you positive vibes Fairy Dust. Keep calm, I’m sure your bcn will put your mind at rest.
Sunday is not so far away and this time next week you will be on the road to recovery xx
Morning Fairydust.
Hope you’re feeling a bit more relieved knowing you’re seeing someone today. Hopefully the surgery will go ahead on Sunday as planned and this time Monday you’ll be looking forward to life getting back to normal!
Yes, google is a wonderful thing, Fairydust, but probably best left alone when feeling anxious- although easier said than done of course!
ann x
Hi Fairy Dust. How did you get on yesterday with the BCN, I hope she managed to reassure you xx
Thank you for being there everyone ?.
I’m having surgery etc about a 1 1/2 hour drive from where I live, so it’s a trek to get to see anyone. I’m also relying on hubby being home as my brain is honestly not fit to be allowed to drive just now. They’d called me back for another blood test after Monday’s preop assessment and I told them my concerns on the phone. They said a bcn nurse may be able to have a look when I went down for the test. They weren’t available to see though, but I spoke to one on the phone. Bless her, she wasn’t at work (private hospital, NHS slot) she was in the park with her dogs. She wasn’t worried and said it may just be oedema from the SNB surgery. Apparently they had to go quite deep for them, hence the reason I needed a drain. She’s since rung me back and she’s made the surgeon aware and things still going ahead. She suggested I see my GP, which I have, and she’s given me antibiotics.
I’m “OK”, but wish the BCN had seen it. At least I’m not worrying about them cancelling the op now, so “IT” is still being evicted on Sunday. My head’s been all over the place. This takes our emotions to levels we didn’t know existed, doesn’t it. Two more sleeps and I’m through to the next stage. Then we’ll finally know what I’m actually dealing with and what’s next to cope with! Oh joy!
Thanks again and hugs to all ?