Hi not been on here for ages as was diagnosed in 2002 with her 2 invasive carcinoma grade 3 . 1/15 lymph node. Had an immediate breast reconstruction followed by chemo,radio and oopherectomy.
10 years have passed and now it looks like its back! sore ribs for a few weeks but not horrendous pain. Bone scan, blood test and CT today hopefully. Can you believe the hospital phoned and said the machine was broken!! They are phoning today to see if it will still go ahead… IT BETTER!! or get me somewhere else.
Doctor phoned to say the saw something they didn’t like the look of last week. I asked if he thought it was bone mets and he said lets do the CT scan and see what we are up against. So scared the waiting is awful.
I have 3 kids who have grown up with this, but I have not told them yet until I know what treatment is planned and what the extent is. They are 13,17 and 19 my son has an important interview on Friday so I have to keep a lid on it. So hard,. I know its back I just know and th doc kept saying how sorry he was .
can anybody offer any advice? Thanks Amanda xx
Hi Amanda,
Welcome back to the forums, although I am sorry you have had to join us again. I’m sure that others will be along soon to support you but if there’s anything you need to know please just ask, there’s always someone around to help, including of course the helpline team who are just that free phone call away if you need to talk, 0808 800 6000.
Take care,
Jo, Facilitator
Hi Amanda
I’m sorry that i can’t offer you any practical advice as I am at the very start of my journey and just waiting on date for chemo to start. I did however, just want to say that I’ll be thinking about you today and sending you positive thoughts and best wishes. I can’t imagine how you must be feeling as after 10 years suspect you thought you were well and truly out of the woods!
Big hugs and positive energy in your direction
Pauline xx
Hi Amanda - another Pauline here, sending you best wishes and hoping the machine was working yesterday. I know nothing can take away the worry of waiting for results, it’s truly horrible. I only finished chemo and rads last year so I’ve got no advice to offer. I’m sure though, if you do need further treatment, there are lots of ladies living with secondaries only too happy to give you support and encouragement. Pauline xx