Help - Oestrogen pos/Her2 neg invasive locally advanced survivors

Is there anyone out there that has a survival story from the same diagnosis as mine? ER+/HER2- invasive, stage 2, locally advanced with four local nodes affected. I have to have 8 rounds of FEC-T first to clear the nodes and shrink the tumour as its too large for surgery at present!  I’m 48 and scared but positive! My chemo starts next week.

Hi Mai,

You are certainly not alone, I did not need chemo, but there are many ladies on here who will be along shortly to offer support. 

If you haven’t already, do go along to the ‘going through treatment’ board, where you will see the monthly chemo threads where you will be able to chat or vent to others going through treatment at the same time as you. There will be a thread for those starting chemo in April/May.

So good to hear you’re feeling positive, there’s no reason not to be!

do take care 

ann x

Hi Mai, the same diagnosis and treatment as you, but not in that order! Ductal cancer is very treatable, the best kind to have, in fact. My Mr. Blobby was 23mm, and extremely fast growing , so my consultant had him whipped out asap. Two out of three LN biopsies showed signs of cancer, so I was advised to have full lymph node excision. Boy, was I glad I agreed, 50% of my lymph nodes were affected. I’ve got clear margins, so yay! I’ve recovered well from the op, but LN removal was a pain - literally. Had my CT scan showing no spread, so another yay! Had my radioactive check on heart, all good, so now starting six sessions of chemo on 4 May to mop up any bits. EC-T for me as I’ve had some heart probs. Sooner I start the sooner I finish. Then some rads to make sure it doesn’t come back. Hormone tablets to reduce the oestrogen, and I’m good to go! There are quite a few ladies on here doing it your way around and with amazing success. I’m sure they’ll be in touch.

 I think you have to have faith in your team to do what’s right for you, but don’t t be afraid to question them.

 All the best with your treatment, and stay in touch. X

yes, that sounds pretty standard, Mai. Most of us have or rather Had a diagnosis of invasive ductal er+ bc, it is the most common one.
As you say, try not to overthink it, your team will give you the info you need, but it is amazing how rapidly we learn in this situation.
ann x

Well, Mai, its a bit of both, I think. I went through all of this a year ago, fortunatley, I had a google aversion initially & only started researching further once everthing was confirmed post surgery.
If you haven’t already, do look at the info on this site, all areas are covered in a way that’s not alarming!
Anyway, just had my 1st yearly review & all clear ?
ann x

Don’t forget the large bag of kale …?

I have the same as you Mai, bog standard BC as my consultant said lol! Although my nodes were clear, it was invasive and had 10 areas of malignancy - all gone now after mastectomy and don’t need any further treatment other than Tamoxifen. I wouldn’t worry about node involvement as that’s their job, to filter. So in a nut shell you are common lol! ?

Hi I had the same, ER+, node positive, vascular invasion. I had op first then all other treatment. The advantage, I think, with having chemo first is that you can see the results. I too was told mine was “bog standard” lol. There are thousands who have had the same diagnosis with many nodes involved who are fine and getting on with life and don’t use the forum anymore. I’m nearly 10 years on and (touch wood) I’m fine xx

That’s great AngelSam - love to hear success stories like yours - thousands and thousands lead normal lives after and you are right - a lot just carry on absent from the forum i’m sure x

Hi I haven’t got the same diagnosis as you as I’m triple neg.
As someone else said the majority of previous users just don’t come on here any more. I completed treatment just over 3 yrs ago and am still in contact on FB with 30+ girls that I went through chemo with but none of them post on here now.