Those of us who have managed to skip out of the Woods (with our fingers crossed) like to check in occasionally. I just wanted to share my 5 year clear MOT. I like to call it an MOT, as like the motoring variety, I am aware that there are no guarantees, and that I might break down tomorrow!
It is 5 years since my grade 3, HER2+++ tumour, and all my lymph nodes were removed (most of which were affected).
I am happy and grateful to be here, and sharing this with you all. Hopefully it will be of some comfort to a few of you who are newly diagnosed xxx
This is very helpful . I was diagnosed Grade 3 IDC lumpectomy and SNB 22nd Feb. Results 10th March no clear medial margin and 1/3 nodes affected plus HER2. Your post has given me comfort. Thank you x
I am 3 years on and was grade 3 stage 3 hert2 + 1node affected out of 15. Lumpectomy,rads,chemo and herceptin. Had scans December, all clear! Doing good!
Thank you for your positive note. I have had my first clear scan in January after diagnosis with her2 in Aug 2012. Mine came back into my breast bone or I think it was already there when I had my lumpectomy. Anyway a clear scan after 3 years of hell is a blessing! How often do you get scans now? And congrats on a positive story…I wish you well.
Thank you for your positive note. I have had my first clear scan in January after diagnosis with her2 in Aug 2012. Mine came back into my breast bone or I think it was already there when I had my lumpectomy. Anyway a clear scan after 3 years of hell is a blessing! How often do you get scans now? And congrats on a positive story…I wish you well. I just want to add…if you have a feeling that somethings not right, follow your heart and keep at your Dr if you have doubts. I had a successful lumpectomy followed by all clear mammogram, but felt something at the top of my cleavage area. I kept being reassured it was nothing to worry about. I had 6 months of he’ll trying desperately to get listened to. I had had a clear mammogram so I was told I was clear! The cancer was in my breast bone/sternum and would not have shown on the mammogram. I won’t go into detail, but I broke my ankle, and when I went to surgery to have it remanipulated I showed the surgeon my now increasing blue tinged bump. He agreed to doing a core biopsy while I was ‘under’. After he said - don’t worry it just looks like fatty tissue, but I will confirm this in 10 days when I get the results. In 10 days my result was cancer. And I could have told them that! After a major op and further chemo and herceptin, I have now had a clear scan. However, my message is - you know your body best…make sure you get listened to! I often think if I hadn’t broken my ankle I wouldn’t be here!? Keep positive too, it’s not easy, but a determination to live, I’m sure helps recovery. Xx
Thanks for your post, it gives us HER2 ladies hope x
LMB212/HueyL
Great to hear you are also doing well x
Yvonne
So pleased you have had a clear scan, it is soooo difficult getting the medical profession to listen to us. The scary thing is if we did not persist the outcomes could be catastrophic :((
I was diagnosed HER2 2 years ago tomorrow, had lumpectomy, chemo, rads, Herceptin. Just waiting for the results of my 2nd post BC mammogram.
Hi,
Recently diagnosed, awaiting surgery. A lot of unknown at present. I’m a nurse, spent 15 years working in a specific field, so naturally jumping ahead a lot. I’m an extremely independent single mum of two. Everyone tells keeps saying I’m strongest person they’ve ever met, but this is testing me hugely.
Decided to join this forum tonight, hoping I’ll feel a bit reassured along the way. Really need the positivity right now.
This is the first post I’ve read. Thank you. It does bring some comfort and I’m so glad you’re where you are, 5 years on.
Im sure others find comfort in this too, so thank you xxx