HER2+ and need some buddies

I love hearing about people that slapped a bench at the end of their chemo… who knew you were such a trend setter @salbert :joy: Congrats on finishing chemo @arty1 :partying_face:

For anyone that’s also triple positive and remembers I asked up thread about Nerlynx/Neratinib up thread after finishing Kadcyla, I asked my oncologist about it when I saw him today and I wish I had videoed his face. He looked absolutely horrified by the thought of putting me on it because the research about survival rates is so old that it’s barely relevant. It only looks at improvement in survival rates after ONLY having herceptin for a year and the improvement is only 1-3%. There’s been zero research done on taking it post anything with trastuzumab (Phesgo, Kadcyla, etc). He also told me that it’s been sold a few times to different drug companies because no one wants it. He told me that if I really wanted it, he’d be happy to refer me to a doctor that will prescribe it but he doesn’t recommend it. I’m taking his recommendation.

He’s decided to start me on Zoladex soon since now my other treatments have settled down, so I’m going to go search the forum to find out what other people’s experiences have been with that but if anyone has any tips, I’d love to hear them.

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