Congratulations on the full pathological responses. As far as the trial, I’ve not heard of this but if it was me I’d search this forum to see if anyone else has participated and maybe even call the BCN helpline to chat it through with an independent nurse.
@hasnae87 sorry you aren’t feeling well, hopefully now a few days later you are feeling a bit better. Please don’t apologise to us for whining but speaking online isn’t always as two way as you might have compared to talking on the phone, face to face or online video.think it might be a good idea to talk to someone. The BCN helpline is a good start and your own team may be able to refer you for some counselling. You have so much going on and would probably benefit from sharing with someone outside of family and friends.
@boobitis it’s really hard for anyone on here to say what you may have in the way of treatment. Your multi disciplinary team will be considering many factors. I had to wait 11 weeks in total before I knew my plan which changed a few times as they eventually found a second tumour in the other naughty boob, I know the waiting is hard but the plan is personalised to you.
@sassy3 Welcome for completing your chemo. Make the most of the next couple of weeks to get stronger for your surgery.
@cass2 I’m so sorry to hear your friends response. Many of us with BC will live long lives and something else will get us. Not the sort of friends any of us want, some people can be so I sensitive and do t even realise what they ah e actually said. None of us can be positive all the time. I’m just over two years from my surgery, nearly a year from finishing Herceptin and I still have down days. I think it’s normal for someone who’s had a live changing diagnosis. I get angry sometimes and then think every pain is something nasty. But it’s not every day. I’m having some more counselling.
@sbee we are always here for you.
@jan30 hope your surgery went well today.
@bellbert Hello, thank you for sharing. So sorry to hear about your diagnosis. Don’t forget to join the monthly chemo starters to be with others going through chemo at the same time. Sept 2025 chemo starters - #3 by loupy
@boobitis I worked in a primary school and my team said it was a higher risk of infection through my treatment. I eventually took redundancy as my brain didn’t work the same. It’s nearly a year since finishing Herceptin and it feels much better but I still have a lot of problems with memory. Probably the hormone blockers (aromatase inhibitors). There is a great charity that support employers and employees Working with Cancer. You are also now disabled under the Equality Act 2010 and works should make reasonable adjustments ( emphasis is on should but if they don’t it’s generally seen as unreasonable). Depending on your contract you will have sick pay/ statutory sick pay, when the later finishes you can claim Employment and Support Allowance (ESA) if you have contributed enough National Insurance as well as Personal Independence Payment (PIP) if you qualify ( probably will with chemo). As far as your colleagues you don’t have to tell anyone but your main manager, they can’t tell others without your permission.
Take care all 