Arty1,
Hope you are recovering and healing well.
I was thinking of you X
14.9k views!
Blimey Salbert you were onto something when you started this topic on the forum! 
I cant even imagine how many people this has helped and will continue too Xx
Congrstulations @chakakhan what fantastic news! You can breathe now and look forwards.
Penny
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Hello my friends
Thanks for sharing @chakakhan! It’s great to celebrate our good news when it comes. It gives everyone hope. It’s wonderful that this is a thriving thread. I guess there is a need for it.
How are you doing @pennyp?
Our best laid plans to have our dog sleep in a bed next to ours have gone to pot immediately. I keep going up to bed only to find her buried under the covers with my husband fast asleep next to her. I’ve given in already. 
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Hi @salbert , i’m doing ok thanks, healing well, still a bit tender but making good progress. I went shopping on Tuesday and bought myself some new clothes, felt like an independent adult again and not a patient. Planing meeting fpr radio on Monday. Thsnk goodness my appetite has come back and i’m enjoying food again, even cheese. Sweet tooth has remained tho and treated myself to carot cake after my walk yesterday, i must be careful not to put back on the stone i lost during chemo tho!
Penny
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Hello everyone,
I thought this was interesting so wanted to post and let you know in case anyone wanted to view it.
Although it says Live it can still be viewed after the event and is presented by Breast Cancer Now.
@pennyp Good on you! Sounds like you are really heading in the right direction now. We will probably be having radiotherapy around the same time. Carrot cake and clothes sounds like a very good prescription to me!
Thanks @chakakhan - That looks like a really beneficial Facebook Live BCN session.
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The wiry hairs didn’t fall out for me 
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Looks good.
PennyBrohn have a scar workshop on zoom available for the whole of the U.K. Kate Oldham was also diagnosed with bc and was a cancer rehabilitation specialist. She also does online lymphoedema workshops.
( I’ve worked out how to do a hyperlink using a name instead of doing the whole web address. Never too old to learn) 
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Thank you Naughty Boob! X
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Thank you Pennyp! X
Hey everyone i had my 4th chemo on weds. Feeling a tad rough today! Been in bed relaxing… very too much info but ended up with 
this time round… it happened on my first too. Did anyone feel worse as they had more rounds of chemo? I have 2 more rounds to goo 
. Jemma 
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Amazing news!! I had my mri scan after 3 rounds and my lymph nodes are back to normal and clear and my lump as gone from 27mm to 14mm 
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Hooraaaaaay 
@jeml, that’s fantabulous news!! (Yes, I did just invent a new word there, some things warrant it.) I felt way rougher on EC than I did on Paclitaxel and oh yes, we are all well versed on the What can I say? Loperamide is our friend! You’ve done amazingly well and you’ve only 2 more rounds. Keep smashing it.
Ooh @naughty_boob, get you with your hyperlinks! At this rate you’ll be on the IT Helpdesk as well as being a Community Champion. 
Anyway, took Bella to the vets last night to get her registered and we asked them to check out whether she already had a microchip before we got hers done, just in case. We had been told that she wasn’t microchipped and was 18 months old. Lo and behold, she is 6 years old! This once happened to me before with a rescue cat who I was told was 6 or 7, then when I took him home was told he was probably nearer 10 and then when I got him to the vets was told, probably nearer 12 or 13. He doubled in age. Bella has gone from being a youngster to a middle-aged woman. This explains why we are relating so well, I feel.
Have a great weekend, all.
Salbert
xx
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Thank you! X
Wow you must be so pleased that is really fabulous news!
My tumour grew to 62mm before commencing treatment and was in 6 out of 11 lymph nodes so I wanted to post to let others know how effective chemotherapy can be to those newly diagnosed or in chemotherapy.
The surgeon said 60% of Herts 2 + have a Complete Pathological Response after chemotherapy!
Best wishes
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Ec was worse than Taxol but I also had injections Phesgo I think.
I had diahorreah with Taxol right through!..nausea and vomiting and food aversion with EC both put me in hospital 3 times but I think it is cumulative and I had 5 months of chemo.
I am surprised you are doing so well on the chemo that is great but you must listen to your body and rest when you need to.
Hope you feel better soon and not long to go! X
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Wow! @chakakhan If your surgeon said 60% have a complete pathological response to chemo and then you add in the Phesgo, surgery and radiotherapy, then it explains why our stats are so good. Good to know.
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Hi @salbert @chakakhan @kartoffel @bigpickle @isthisreal @naughty_boob @pennyp @jeml and everyone, sorry if I have missed anyone.
So many posts while I was staying quiet! Not sure where to start but I am so happy you are doing really well.
I have had a few tough weeks and really wish I had picked a hospital that is not so busy. I have had to wait 3 weeks to see physio for my cording, and will see them in 3 weeks only. Pain is better but I still have a lot of seroma.
After meeting with my onco again today, which has meant 3 sleepless weeks, i have decided to give Kadcyla a go with a cannula. I have spent a lot of time researching and came to the conclusion that I would be too anxious if I stayed on phesgo. I found some studies about triple positives like me, with worrying data on crossed pathways between HER2 treatment and ER treatment, meaning that patients show resistance to the herceptin component due to parallel hormone blockers. Let’s hope that someone will do a proper trial/study soon.
Anyway, not that many options available so I am starting Kadcyla on Friday 4. I think this is pretty much the same date for you @kartoffel ans @jeml ?
Sorry if my post is not cheerful, I have felt very isolated. I went to a moving forward course that made it worse, me being the youngest and the only HER2+ (or triple pos), with a much longer treatment etc. Quite a bit of focus on bras and reconstruction did not help either.
On a positive note I am really happy to see all the little fluffy creatures that have joined your homes! Yesterday marked the 3
Month-niversary with our mini black panther and he is really making a difference to my days! Bless all pets! 
Big hugs
Marion
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Hi @marionse25 I was wondering how you were getting on. I am sorry its been a difficult time. The responibility making these decisions is tough, but i hope now you have made the choice you will feel a little better. All you can do now is give it a go and you will have the comfort that you are trying everything. How long does the kadcyla cpurse last? I hope the side effects are manageable.
Ive treated myself to some new clothes and been out to MacMillan coffee morning today and saw some friends for the first time this year. It was lovely to see people tho answering lots of questions was quite draining. Not sure if it was a wise thing to do seeing so many people in a confined space . Cake was nice tho and i won a box of chocolates!
All the best.
Penny
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