Hi … The real hair ones can cost that much but I was advised by 2 separate salons to go for synthetic as there is no real maintenance with them like the real hair ones and they are much less. You do have to wash them but depends how often you wear it. Sending you pics xx
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Oh. That looks great. Very realistic. I’ll do a bit more research. I’ve seen a list of wig makers , real and not, on the Cancer Research website.
You see… I am assuming when you said send pics…that these are wigs? coz the look amazing and I would have no idea they are not your hair!!
God …I hope mine looks that good. I loved mine in the shop and cried as it actually felt like it was me in the mirror, but i haven’t tried it on again since.
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Tomorrow is my 4th of 12 Paclitaxel! I spoke to my surgeom this week who will see me at the end of October and she will book my op in the first 2 weeks in December. If it carries on like this week then I think I can manage another 9 treatments. I still have 17 more Phesgo including tomorrow though.
My Paxman machine is coming on Monday as chemo will be at home from Thursday 3rd. I was told they leave you to cool down (I am using the cold cap) but I said I have a saline flush which ends when the cold cap machine ends but I was told they don’t do that. She said they will check if it’s on the script and may just be done when I am in the hospital. It’s off label there I was told.
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Just to let you know there is a group for HER2+ buddies. Had over 13000 views, so very popular.
Here’s the link if you’re interested.
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I was like that a couple of days ago, handfuls of hair came out, every time I brush it my brush is immediately matted with hair and yet somehow I am not bald yet (thinned definitely and resorting to hats now). It’s traumatising even though it hasn’t fully happened, I think it’s the anticipation too.
Sending hugs
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I was told you pay £85 to the hospital and they give you a voucher. My hospital ( NW London) has 3 places they recommended. As I understand the £85 will cover the cost of an NHS one and the mid range ones I was looking at were £300 or so, a mix if synthetic and real hair that is heat resistant so you can style. which I thought was reasonable.
Has your hospital explained this, they must have a similar scheme? I’d speak to them first.
My friend had Alopecia and said synthetic is easier, she bought a real hair one for her wedding and hated it. Said it was so high maintenance!
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I got one last time through the hospital and didn’t use it. I just had a no.8 and used wide headbands but it was very hot. I used the cold cap. I’m hoping I keep my hair short this time but will have to see what happens. They did tell me this week I’m doing well. The lady is coming to fit me for the cap on Tuesday as I said the nurse said it didn’t cover round my ears and at the back of my neck so will be interesting to see what she says.
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Actually I was told by my chemo nurse at my pre assessment that it’s renowned that ppl who get morning sickness during pregnancy typically get sickness during chemo too! More than one of them has mentioned this to me so far. (I didn’t & so far her theory is ringing true - one of the few things I’ve had going for me throughout this whole shitstorm) 
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@jules8 this is a truly stunning wig & making me rethink my wig strategy (of not getting one!). I went for a consult but there is limited choice for me as I’ve a very large head, but thinking I might have to travel to a nearby (bigger) city to look further as you look great!
Awww thank you. I was the opposite my head was small so I was a bit limited aswell. Visited a few places and did go back to first place and chose one from the last one I went to. I have worn one out to see how I felt and it was weird thought everybody knew it was a wig but they probably didn’t. Just thinking when I lose all my hair and eyelashes and eyebrows might make me feel better. Xxx
Hi I live in Aldridge and the hospital im under offer £120 off towards a wig of any choice as long as it is a designated salon they recommend you can’t just go anywhere. I thought this was quite generous the one wig was £249.00 so with £120 off was well worth it. The other was just over £400 and that was private. It is a minefield and just tried to keep it simple. The heat resistant did sound good but my view was with everything I’d be going through would I really want to be messing around with it. Sure I’ll be able to put it up in a pony or clip it back or even wear a scarf or headband. Who knows will be sad to see my hair go but will do my best to compromise. Speak to your hospital see what they offer. Xxxx
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Oh well I was sick as a dog with morning sickness so that makes sense ! Oh the joy that keeps on giving 
I’ve been given a constipation tip by a friend who had BC 3 1/2 yrs ago grind 2 tablespoons of linseed in a coffee grinder and add to 300ml of water and drink straight away. Do not leave as it goes gloopy. The linseed holds the water and dislodges and pushes blockages through.
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Me too, allergy to dressings. My skin blisters up it’s awful and itchy so we’ve switched to a different one and all good.
But now I’ve got to go into hospital tomorrow as I’m having so much pain with my shoulder and back they want to do an xray and tests. They don’t think it’s a clot but have to check but they’re concerned about my picc line as I can’t lift my arm hardly any, it’s just like spaghetti there is NO strength. So will see what they say/do tomorrow.
I wasn’t offered a port so I can’t help on that score.
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Hi, i just wanted to say that you are doing so well.
People keep telling me I am so strong - I don’t feel strong. I’m on day 8 of cycle 1 and feel I am getting worse not better. I know that i am fortunate as i’ve not felt too bad so far, a bit nauseous and slight bowel issues and heartburn so i haven’t really ventured far from home. However, now the chemo acne has started on my face and i’m really conscious of it and i’m waking in the night and struggling to get back to sleep (hence my post at this time)! Does anyone else struggle with sleeping?
I’ve also said that i’ll go back to work next week (head teacher of a primary school) but starting to regret that. The thoughts of work are already filling my mind and i know that i need to focus on my recovery but i am worried about how long my journey will be (chemo, operation then radiotherapy)
Sorry for the negative rambling post - i yhink i have poured out what i have been holding in. Hopefully i will get back to sleep and tomorrow will be a brighter day.
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Don’t apologise, it’s what this forum is for. We’ll support you. We all have a moan no biggy and quite honestly if you can’t do it here well……….
Work - say you’ve changed your mind. At this moment you are number one priority. They’ll cope and when you go back fitting fit and ready to rock and roll they’ll be so happy.
Umm I don’t like the you’re strong comment I also don’t like the “you’ve got this” comment either I cannot relate to either and like you I don’t feel strong I’m just rolling with the bloody punches and you’ve got this makes me want to scream what cancer???
I haven’t even heard of chemo acne and I’m not sure what you would use. Maybe look at a company called Fierce Nature all their products use tallow (if you’re veggie/vegan then it’s a no) but it’s suppose to really work. Because it’s animal fat (I know it sounds gross but it isn’t) your body won’t react to it as it’s all natural. Maybe take a look and see.
Sleeping I haven’t had a full nights sleep since my first round. Wake up 1 or 2 times every night but that’s predominantly down to something going on with my shoulder (I’m off to hospital today for X-rays tests etc) maybe ask your oncologist? I did think I might start taking night nurse as that always works. I don’t know how many rounds you’ve had but having a Kip in the day is always good too.
Today will be marvellous apart from the weather. Xxx
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I am up and down with sleep, some nights I sleep like a baby, other nights I’m lucky if I get three hours. Tiredness just makes everything feel worse, doesn’t it.
I’m in a similar position work-wise, after my first cycle I thought, oh I feel fine, I may as well do some work from home to keep me from going stir crazy. This cycle…it’s 8 days since my second EC and today is the first day I’ve felt almost myself. There’s no way I could have worked over the past week. I’ve spoken to my boss and we’ve agreed to put it on the back burner for now whilst we see how things progress over the next cycle. I know that may not be possible for you given your role but hopefully you can come up with a plan that works for you?
Hope you managed some rest xx
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