So glad you are home and can rest in your own bed. What a horrible thing.
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Hiya,
They told me before surgery it was invasive, itās all so scary.
My armpit still feeling sore but improving which is good.
Iāll let you know how my oncologist appointment goes tomorrow.
Such mixed emotions every day, really upset about my hair, going to try cold cap and hope it helps.
Sending love 
and positive thoughts x
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My husband rang me at work this afternoon to say clinic had rung our house to say my bloodtest not good and no Kadcyla tomorrow and rebooked a bloodtest and treatment for next week! Firstly, Iām shocked they relayed all this to him and secondly trying to regroup from yet another delay to my end date. Scared to look at the calender to see the impact on events going toward. I hung up and started weeping at my desk in front of all! Luckily a lovely colleague took me to a stairwell and we hugged and talked it out. Its so hard all this chopping and changing. Some good news is that i have an super quick nhs appointment in the morning to look at a dodgy wisdom tooth removal ahead of the acid infusion thingy. If only i could relax with a lager but he said its my liver levels! Ive only had 1 proseco in a month!
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@erica That does seem like a bit of a confidentiality lapse if they hadnāt checked with you before about leaving messages, appreciate they needed to get message to you quickly - and āask her to call us asapā might have worried you both more. Hope you get tooth and bloods sorted, donāt think they can blame the prosecco.
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Good luck tomorrow. Will be thinking of you.
I am sure it will feel better when you have a likely plan and timings around what is going to happen.
I keep reading posts on here and I am amazed at what everyone has gone through and continues to go through. It obviously can be done, and we can do it too.
Hope you get some sleep xx
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Thanks for the kind words ladies. Home now and started my abx. They said it wasnāt a chest infection (said Iād really āknow about itā, my words were āI feel like deathā so I dunno how different I would feel otherwise) but Iām unconvinced (TMI but had some green phlegm, I work in a GP surgery so know what that usually means). Hopefully the abx help either way.
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I tried to post this morning and got a weird error message !
So letās try again x
@jayveebee Iām
Pretty sure thatās a confidentiality matter ? They should not be speaking to anyone but you about things like this - Iām so sorry you had a blow with the cancelled treatment ā¦ I can imagine it feels like you are never going to finish it but you will . Itās important you are well x
@sez Good to hear you are home , you poor thing ā¦ you sound really rotten ā¦ drink lots of water and if you have a shower , run the shower hot and shut the door . Sit in the bathroom in the steam , it really helps x
@hoggie I was told I just had extensive high grade DCIS with a 1 m invasive , mastectomy uncovered 5 sneaky little invasives !
@rfg if you wobble again , you know where to come , straight passed Google and straight to here x
@carrie5 Gosh seven hours ā¦ 
how come it was so long ?
@salbert As the saying goes , worry is a waste of imagination , it doesnāt change the outcome so we nag as well enjoy our time here x Your dad is obviously made of stern stuff ! Bar the slightly scary mobility scooter driving 
Are you off to Scotland ? Loch Lomond is beautiful, the break and fresh air will work wonders ā¦ step dad is Scottish so mum and him head up there a lot. My mum loves Loch Lomond , somewhere Iād like to visit is sky . It looks so serene x
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Amazing news!! I also had a pathologic complete response to 6 months of chemotheraphy
and immunotherapy treatments.Ii had a lumpectomy and lymph node biopsy at the end of January. I received round 10 of 15 rounds of radiation today. I will continue with immunotherapy until Dec 2025. Feeling awfully grateful. Wishing you the very best.
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Sorry to hear you are in hospital @sez it sounds like so tough for you right now. Hoping you get better soon xx
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@erica hope your appt with the onc went as well as it could. Good luck with cold capping. I cold capped and even tho I lost a lot of hair I managed to keep about 40% of it and had a bald patch, 8 weeks on from last chemo, Iāve had it shaped, trimmed and styled. Also hair coverage all over now. Hang in there itās not for everyone but itās worth a try xxx
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Thatās really good news for you too @nike1
How are you finding radiotherapy? Iām waiting for dates but donāt mind the wait as three weeks post op. Still having armpit pain that fellow buddies have experienced and a tender upper arm like itās bruised inside, I hope this is all expectedā¦
Wishing you all the best too xx
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Thank you, Iām home now and very runny nosed. Canāt sleep but happy to be home. Hopefully the antibiotics will keep me out of A&E (Iām not someone who takes them all the time, youād be surprised how frequently some people take them, so I donāt have a resistance to them).
I hope itās the law of threes (dead cat, car crash and now A&E) and Iām done with the crappy stuff for a while, I need a rest.
š«©
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Thatās great news @nike1. Hope radiotherapy is going ok. Are you massaging daily? I find under hot shower helps dispel any swelling. And a friend said wear a ring on corresponding hand so you can tell if any swelling further down.
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Hi ladies, @nike1 great news, @sez hope youāre continuing to improve, @arty1- my 7hrs, well partly sent to wrong area to wait, partly ā we need to check something with consultant firstā general faff-factor, and first herceptin observation time! Definitely good idea to take snacks as a quick trip to the loo and the sandwich trolley had been and gone! Anyway Iām still feeling ok after Monday, lovely walk with dogs. My daughter rang last night re my bucket list progress, ā do I fancy being winched down Gaping Gill to see a cave?ā Response ā why not?ā
I will be getting the T shirt ā Warning Granny on steroidsā soon
Good luck to all you ladies with things going on today.
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Met the most lovely hospital dentist this morning who said the rogue wisdom tooth should come out easily and she is planning the extraction around my next Kadcyla treatment good week. Feel blessed as normal wait times are 9 months!!! Soon be ready for first acid infusion.
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@carrie5 I love the idea of you ādroppingā into a cave, exciting!
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Hello lovely ones
@sez Iām glad you are home. Try to rest up now. Youāve had a truly horrible time of late. I enjoyed watching Colin from Accounts on those unavoidable sofa days. Something fun to take your mind off feeling so rough and rotten. Iāve also heard Last One Laughing is excellent if you have Amazon Prime TV. Iām going to watch it when I return from Scotland. Hang in there.
@erica I agree, being told you have invasive cancer is one of the most horrible and terrifying things that has ever happened to me. Weāve all heard those horrendous words and I do believe this forum will help many other people who have yet to hear them. Some people do brilliantly on the cold cap. I pray you are one of them. Many of us find the hair loss aspect upsetting; breast cancer takes so much from us and for a huge amount of women, hair is something we take care about and is part of our identity. You are not alone in feeling that way. Sending you love and positive thoughts too.
@jayveebee Iām so sorry to hear this and agree that relaying this to your husband instead of you was bad practice. I think I would have wept at my desk too. Delays in treatment suck. Sometimes you need to let it all out and have a good cry. I think itās important actually. When you finally crack open a magnum of Prosecco, it will be the sweetest you have ever drunk and you will get there, even if it seems like they have moved the finish line. Youāll keep putting one foot in front of the other until you reach it. Sending you love and strength.
@hoggie Agreed. Itās good to hear what others have been through and encouraging when you hear how they come out the other side. I was told I would get there by other women right back at the start of my journey in 2023 and here I am finishing my Phesgo injections today and off to Scotland in my camper van tonight. It feels like quite a milestone. I have enjoyed all my old energy returning and being able to live life again.
@arty1 As it happens, we are heading straight for Loch Lomond followed by Glencoe and then Skye! So thatās a double tick. Iām starting to really feel good now as I finish work this afternoon then head off to Marsden for final oncology and Phesgo infusion then itās packing and do the offski!
@nike1 
Amazing news!! We just love to hear that on here. Congratulations on a fabulous outcome. Hooray!!
@carrie5 Your T-shirt is an absolute must!! 
If you get it done then a pic on here is compulsory! Iām so pleased to hear that you are still feeling ok after Monday. That bodes well.
Soā¦Iām not sure how often I will be able to drop by over the next 12 days but I shall try as often as I can because I will probably get withdrawal if I donāt. For those of you having treatment, I hope it goes smoothly and side effects are minimal.
Love to you all, you wonderful pink army
Salbert
xx
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@salbert Have a brilliant holiday. Has the camper van a name?
Hi everyone! My name is Crystal and i just found this site. I was diagnosed on December 10th of stage 3 invasive ductal carcinoma negative both hormones receptors and positive hers2 breast cancer. Things moved very quick once I received my diagnosis, so much so that I barely had time to understand what was going on. I found a lump about the size of a quarter and had it biopsy 4 days later on the 9th. Took my first chemo on the 19th. At that time the lump was bigger than a softball, 2 other lumps formed on the inside of the same breast and into my lymph nodes in my arm pit, neck and breast plate in the center of my chest. I just completed my chemo this past week. I did 6 cycles of two different chemos every 3 weeks and a shot in my leg for the hers positive as well. In case you were wondering, the chemos were Pheso and Doctaxel. The shot is trastuzumab. I will be having a mastectomy in 7 weeks and after healing radiation. I have a really good support group, but I think itās hard to 100% under how a person feels or thinks if they are not actually going through this journey. So, Iām here to help others and to receive help from others too. If anyone has questions or just some encouragement me, I am happy to help. I found that having help with what i can tolerate to eat or symptoms that i was having, what to do for them and having not a lot of people to help answer that has been through this was a challenge. I pray that everyone is doing well and thank you!
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Hello and welcome to you @grammyp5 Crystal
I am so glad that you have found us now. I donāt like to imagine what it would have been like to go through this journey without the arms of this wonderful bunch of women around me. Well, you have us now. It sounds like everything moved super fast for you and Iām so pleased to hear it. Waiting around for diagnosis and treatment is akin to torture. You will find lots of information and support on here. I am sitting in the chair at Marsden waiting for my final Phesgo right now. It feels absolutely wonderful. Please ask away if you have any questions. Thereās always somebody on here and some of them are quite brilliant and blessed with common sense, which is something that has always evaded me.
I want to share with everybody that I have just seen my oncologist who told me this. āWe expect the vast majority of people with your kind of cancer (HER2+) to be cured after having all the treatment you are completing today.ā So for those who were worrying about recurrence over the last few days, I thought this was extremely encouraging to hear. He says they do not expect it to return. I was just discussing this with one of the nurses who said that if I was to worry about it returning, then I should also be worrying about getting run over by a bus tomorrow. 
Consequently, Iām feeling ridiculously happy right now.
@carrie5 When my son was a little boy, he christened our camper van Bertie which I had completely forgotten until you asked that question. So Iām going to have my shot in the leg, drink my cup of tea, eat my Belgian chocolate biscuits and go and jump into Bertie and hit the road. What a good day.
Salbert
Xx
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