HER2+ and need some buddies

So far, fatigue been has the only side effect to date. I am awfully tired so I sleep. I started to prepare my skin a week prior to starting radiation by moisturizing my breast and armpit 3 ×/day with waterbased, non-scented moisturizer ie. Aveeno. I also take collagen as a supplement. I continue to do my post-surgery exercises. Take good care.

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Hi Salbert

God you must feel fantastic - you have been through the mill and are coming out the other side. Thanks for sharing the Oncologist’s statement too. That gives me so much hope.

Have an amazing holiday. You deserve it withbells on! :bell: :bell: :rofl:xx

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Welcome! Are you from the US? Noticed refs to quarters and softball!

I am new here too and everyone has been lovely.

Xx

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I just realised I can’t read, thought your username was hoggLe (hence why I asked about Labyrinth). I am such a movie nerd, apologies. :man_facepalming:t3:
My brain may not work anymore but my obscure movie references are clearly still working.:laughing:

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Have a wonderful holiday. Loch Lomond is beautiful.

@grammyp5 Welcome to the group of lovelies. I’m am assuming you may be American or in the USA ( or possibly Canadian) due to you using ‘size of a quarter’ and ‘shot’ relating to your trastuzumab/Herceptin. This is a U.K. based charity and many will be having treatment in the National Health Service (NHS) so if you are in the USA things may be different. But nevertheless you are still very much welcome.

@nike1 congratulations on your PCR and hope you continue to tolerate radiotherapy with just some fatigue.

:smiling_face_with_three_hearts:

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Hi. I had to look it up!! Then I realised what you meant. Had never heard of it though :rofl::rofl:

Do hope you are feeling a bit better now. Sounds like you have had a rough time xx

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@salbert - Oohh … I hope you get some lovely sunset shots , apparently the sunsets in Skye are gorgeous . I’m not surprised you feel amazing ! So that’s it ? Final treatment? I hope you did a tap dance on a bench !
@grammyp5 Welcome to the fold x Are you in the US ?

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What are the symptoms of kadsyla (cant spell it!) I have secondary breast cancer, having phesgo at moment every 3 weeks for life but neuropathy awful. That is my next option.

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Feeling a little better thank you, you but extremely congested.

A note to everyone, if I appear to start talk rubbish it’s usually something to do with something obscure. My brain only retains useless information and my passion is movies so it’s usually just full of unimportant (unless you’re in a pub quiz) and useless facts. Occasionally something of substance appears (I’ve worked on and off in the NHS for nearly 20 years so sometimes produce a nugget) but it’s rate. :wink::laughing:

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Very similar to other chemo meds you possibly could have already been on. From what I’ve read the only difference I can see is ‘shouldn’t’ affect hair/hair loss.
I’ve had conflicting information from my oncologist though.
Here’s the link to it on the Macmillan site⬇️

If you visit the old man of Storr I’m going to be very jealous. I had planned an NYC trip post treatment but after the hellscape the US is becoming have decided to stay closer to home, so the Isle of Sky (and Scotland in general) along with several places in Ireland are high on my list to visit as soon as I’m able.

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I am from the USA. I didn’t realize this was a UK forum. Thank you for the welcome!

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I am from the US. And I am just now realizing that what I posted may mean something different for someone not in the US. :woman_facepalming:t3::joy:

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Yes I am from the US.

Hi @grammyp5 / Crystal, you’re very welcome, chemo protocols are pretty much standard across many countries I think, but it will be useful to have your perspective. Hope you’re getting a bit of a break pre surgery. Let us know how it goes.

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Just watching morning news programme. BCN lady on being interviewed on capivasertib (probably spelt that wrong!) now on nhs for certain ladies with secondary BC of certain genetic types. Along with @salbert feeding back her consultant’s comments on how good the future looks… this feels like a really good news moment on the armoury we now have to tell bc to f…off!

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@salbert have a fabulous, well deserved holiday xx

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Hi lovely ladies. How are you all doing?!

I’m OK, have two rounds of radio left and then just have 10 phesgo left. Radio has been alright - no skin changes as such, just fatigue mainly.

One question I do have for those of you who were taking Zoladex during chemo for ovary preservation. My periods haven’t returned yet, but I have been getting premenstrual-type cramps on and off for the last couple of weeks. What did you all experience/what can I expect?

Going to get a pap smear and have a gynae check me out down there as it’s time for me to do all of that anyway.

Have a super day lovelies x

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You would think that but I had a friend in the US who was diagnosed a few weeks before me with the same type of cancer and her treatment hasn’t been the same as mine. It’s not huge differences but there definitely are some, a lot of which I think is insurance/cost driven.

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I agree that a lot has to do with insurance/cost on your treatment. Over here it also depends of the medical facilities you go through and what part of the US you are in. What they do in California may be different in New York. My cancer is very aggressive and was growing at a rate of 1% per day. My oncologist said that my cancer would have metastasized and spread to my organs had i went another 4-6 weeks without treatment. At the time, i had just went for my yearly mammogram and it came back good.Thankfully i stayed on top of my self breast exam every month and found the lump. But i do find it interesting how different every breast cancer diagnosis is different yet a little the same.

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