I know its so hard specially with little ones 
are you still having chemo?? You are still on targeted therapy too which is the best x
1 Like
I’ve finished my chemo last week and having a break from the phesgo for surgery which is making me more nervous as nothing to treat it or stop it spreading this period 
1 Like
I also have 2/3 lung nodules that have gone down in size so are being monitored. At least they are under control but have been told it is cancer, it isn’t but if it was not metastatic. I will find out more in July when I have my next CT a year after diagnosis. If it is then it’s been caught early at least. I’m trying not to think about it by keeping busy. I’m sure you will have early treatment too if it is.
3 Likes
Why are they stopping phesgo? I never had mine stopped for surgery.
I would defo question this… seems a bit strange! I have had minr every 3 week and had mine before surgery. I had a double mastectomy with node clearance x
1 Like
I’m not sure, he just said last weeks would be my last one then I’d have more phesgo or Kadcyla after surgery depending on the pathology report
1 Like
I dont think i would be happy that they are stopping it. I would want a good explanation for it at least.xx
2 Likes
Thanks @jeml I just assumed that was normal protocol 
I’ll email my CNS to ask.
1 Like
I know hospitals work differently but im surprised they are stopping it… as far as i am aware it should be every 3 weeks. I mean they can postpone it for a week, they did once with me but only because i was not well enough for my next round of chemo x
1 Like
Hi, i had my last phesgo just before my lumpectomy, then a break of a few months while recovering and having radiotherapy. I was quite glad to not have that as well as everything else. I’m now on Kadcyla instead of phesgo. I’m being treated at Bournemouth.
3 Likes
@jeml and @sooz1 I also carried on with Phesgo whilst waiting for surgery. @sooz1 are you only HER2 + as a friend was also ER+ and they had stopped her Phesgo as she had been in a different regime. I do wonder if it’s different protocols for different types?
Try not to worry but absolutely do ask you BC nurse or oncologist as to why
So sorry you are now having the worry about more scans, it feels like a train ride we can’t get off sometimes but like @jeml said it’s gone from your lung so that sounds positive. I don’t know much about spots and whether they can come and go but maybe ring the Breast Cancer now helpline to talk through your worries. I hope you get some good news and your mind is put at ease xx
3 Likes
I also stopped Phesgo before surgery & then had nothing while recovering but I also got my pathology results back within the week and they told me I would be moving to Kadcyla.
1 Like
@sooz1 hugs, try to find distractions so you’re not thinking about it all the time. Will be thinking of you. Keep in touch with us, however down you feel your post is we are still listening.
1 Like
Thank you all 
@galdiolus I’m only HER2 positive. Thanks for the advice, I might ring the BCN nurses tomorrow if they’re open and I’m able to speak about it without crying 
2 Likes
Ah same as me. Maybe if differs depending on where you live 
They will be open tomorrow, don’t worry about the crying, I think I cried every time I rang. That is what they are there for.
Sending you lots of love and strength xx
2 Likes
I also had phesgo stopped my last one was 8th january then i started kadcyla on 9 april. I am with forth valley larbert. They stop target therapy until they get results from surgery. Start radiotherapy in May which i can continue with kadcyla as well x
1 Like
@sooz1 I also had two little lung nodules and areas of concern on my liver and spine. It turned out that these were all benign but my consultant told me that these spots were so tiny that the chemo would mop them all up anyway. It was a great relief to me because the initial hospital I was with did not give me this information. Hoping and praying that the same happens for you.
4 Likes
@sassy3 i’m very glad you have found us. We’ll be your buddies all the way through.
4 Likes
Im due mine the week of my surgery (phesgo) but they have delayed mine till the follwoing week or 2 weeks if needed as im have diep and a double mastectomy,
Hope everyone has a fab weekend !
I had an end of treatment ultrasound and mammogram. They said i have had a great response but hard to tell with the dcis but they said its been a excellent response
3 Likes
Hi, im not in this group (im TNBC) but Im treated at Bournemouth too
1 Like