HER2+ and need some buddies

Very happy for you it’s such a relief.
And yes my oncologist will call 1 day before my next chemo, she is off this week but I left a message to talk about doing just 5 rounds of chemo instead of 6 and want to discuss all the other possibilities

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@arty1 FABULOUS news :tada::tada::two_hearts:

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@arty1 fabulous news put a drop of whiskey in your coffee X

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I’m racing out the door to teach a class, but I just had to say oh @arty1 I am so relieved and happy to hear that you have a cyst! I have genuinely never been more relieved to hear that someone has a cyst in my life! :champagne: I wish I could give you the biggest hug right now.

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Oh @arty1 I’m so pleased for you. You are not a baby for crying. The relief is immense. Wishing you a happy evening of cat cuddling.

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I was just thinking how amazing it is that a bunch of people who have never met (with a few exceptions) are so supportive of and invested in each other. The responses I’ve seen over the past few days just made me realise how we all look out for each other and really care.

And in other news @@salbert, my hair is ridiculously tall. So I have developed a new technique called “the wash and squash” which tames it for about 12 hours.

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I finish my EC chemotherapy 3 weeks ago. I was sick during treatment, but generally ok in between. I had my first paclitaxel today and expected it to be easier, however 15 minutes into an hours infusion i development bad chest pains and it had to be stopped. They said they will give my the hydrocortisone first next week to try to avoid this happening again. Has anyone else experienced this. I’m so worried i might not be able to carry on.

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So glad to read that its a cyst x

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I had a reaction to one of my chemo drugs and now I have a load of extra pre meds before it and they give it to me slower and I haven’t had a reaction since so hopefully it will be the same for you but they will monitor you closely.

I hope you are feeling ok now? I know it can be pretty scary x

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Thank you so much you lovely lot :smiling_face_with_three_hearts: I had horrible flashbacks when I went into the scan room as it was the same one I was told I had cancer in … the relief was incredible … He pointed out the white blob on my mammogram then showed me on ultrasound and said it’s basically a blob of fat in reality … harmless … I’d have hugged him if I’d been sat up !

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Hi, I’m on docetaxel but on 1st chemo had terrible chest and back pains after only about 25ml! The stopped infusion and gave me the antihistamines, I was also scared of 2nd attempt but they did infusion at slower rate and gave me antihistamines before it started and I got through it!

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So happy for you. What a relief. A bare boob hug would of made his work day a day to remember!

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@arty1 so happy to hear this x

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Thank you for your reply. It’s so good to hear things were better second time. I hope mine will be too.

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@arty1 what a relief! I was so pleased to read this and well done for getting it checked. I would have been :poop:myself. I am absolutely so relieved for you xx

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Fantastic news! You must be so relieved xxx

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Oh @arty what a scare! So glad it turned out benign. Im sure your logical brain was telling you it would be ok, especially so soon after treatment, but that doesnt stop our emotional brains from panicking and thinking tge worst. Phew!
@lilyanne sorry you had reaction to Paclitaxol. I had the dose of mine reduced twice because of side effects and still had complete pathological response from treatment. Good luck next time.
Penny

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Hi everyone

@lilyanne I’m really sorry you had a reaction to the Paclitaxel. This is certainly not unknown and as @under_the_sea and @sassy3 have said, they can give you antihistamines and go slower next time. Also very heartening to hear that @pennyp had a complete pathological response even after a twice reduced dose.

@norts I totally agree that this forum is a beautiful place where we all really care about each other. Just look at this outpouring of love and happiness for our @arty1’s good news.

I laughed out loud at ‘the wash and squash’ especially as I had just done it myself. It’s so high that I slapped a fistful of product on it, combed it flat, clipped it down and whacked a hat on it before going out yesterday. It’s now looking like Ken Dodd. How is possible for hair to grow so vertically? It defies nature! The hairdresser came today but she didn’t stay long. She says nothing can be done until it grows more but recommended hair bands, clips and an oil-based serum. I am to continue on with the rosemary oil in the hope that it stimulates hair growth but other than that it’s just grit your teeth and plough on through, armed with accessories, serums and new techniques such as ‘the wash and squash’. I tried 150°C of hair straightener heat yesterday but it was no match for the vertical frizz. It stuck up slightly straighter. Sorry… I seem to have gone into one here. Must need to get it off my chest! Which leads me neatly back round to the guilty culprit that caused all this trouble in the first place. :face_with_symbols_over_mouth:

Love to all you wonderful women

Salbert
xx

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@salbert and @norts i quite like my poofy hair, its always been dead flat, now its got a bit of body. In a bit of dilemma as to how much i let it grow - if it gets too tall may just have it cut again and keep it short.

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Hi I’m new on here so bear with me! I was diagnosed de novo in November 2021 with triple positive with mets to Liver and Spine. Currently on Phesgo, Denosumab and Tamoxifen following 6 rounds of Docetaxol chemo
Morning all

I have put off joining a breast cancer forum since my DCIS diagnosis on 9th November 2023. I was firmly in denial and quite sure it would just be removed, a quick blast of radiotherapy and on with my 3 jobs. I didn’t even plan to tell my elderly parents and 14 year old son. Fortunately I do have a very supportive husband and best friend who lives close by. I’m 53 years old and still thought I was invincible.

I was in surgery on 15th November and got the results on 30th November. The DCIS was 38mm with a 2.3mm Grade 2 invasive breast cancer which is HER2 positive. That was the moment that life went into freefall. However, I still believed that the next surgery which was Tuesday 12th December, would get the rest of the DCIS out and that my lymph nodes would be clear. Yesterday I had the news that they still don’t have clear margins and that 2 of the 3 lymph nodes they took contained cancer cells.

I have been told now that I will definitely be getting the Herceptin treatment which I believe comes with chemo and then radiotherapy once they have finished doing my surgeries. This is actually my 4th surgery as I had Hadfield’s Procedure for nipple discharge a year ago but which didn’t show up any cancer cells. The next surgery is to once again try to get clear margins and to take more lymph nodes.

I’ve taken myself to some very dark places by surfing the internet so my wonderful MacMillan nurse has told me to stay off the internet and suggested this website. Hence, my joining today. She says it is treatable. I have to hang on to that.

I guess I just want to hook up with people who have been there or are going through similar. I’m scared that if it is in the lymph nodes then it is shooting through my body to all my other lymph nodes. I hate this wait.

My next appointment is a week today - 4th January 2024 - and then I will be booked for my next surgery. I know I’m asking for answers that nobody can give me yet but I’ve always found solace in other people and been woeful in carrying stress alone.

I have told my 88 year old mother, 86 year old father and 14 year old son now and they all seem ok. It just seems that the news just keeps getting worse.

This is a Christmas I won’t forget! I hope you are all managing to enjoy it in one way or another.

Let’s pray that 2024 sees us all healed and on the road to recovery.

Sal
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