HER2+ and need some buddies

It was fantastic - highly recommend going to a CinC event if there’s one near you! I’m still recovering from all the dancing and hugs. I’ve never hugged so many people before! I was too busy dancing and chatting so I only got a few photos :joy:

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Brilliant photos you all look lovely and having really good time xx

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What beautiful ladies. I see @salbert dressed down for the occasion :stuck_out_tongue_winking_eye::joy::rofl: You look amazing, love the shawl. :heart:

Must be so wonderful to be with others who ‘get’ it.

Had to read so many posts today as I have a few days away from the forum. I’m due my 2nd annual mammogram this Friday and anxiety has already begun.

For those asking when they have theirs, I had surgery first, then chemo/Herceptin, which deemed me ‘cancer free’ so it was a year after the surgery. From the posts above it doesn’t seem there is one way that all hospitals do it. Best to check with your own team.

:smiling_face_with_three_hearts:

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I love the pictures, you all look so good! @hasnae87 will be thinking of you as you go through your week and surgery next week, is your sister over yet? @naughty_boob likewise with mammogram on Friday. My surgery anniversary one due in December. It does help to be pre warned about these anxious moments, it’s so easy to assume you’re the only one getting wound up.

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@naughty_boob It was :orange_heart: At one point the band was playing “I will survive” and it was a little bit emotional to see everyone singing along with such enthusiasm knowing that everyone had been through the trenches. There’s a different appreciation for survival when you’ve been through such a life changing experience. There was no pity or awkward head tilts when you talked to anyone, it was just understanding and compassion.

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Thank you, my sister coming in the 13th.

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Hi everyone

Thanks for posting pics @kartoffel and well done for finding out about the event and inviting us all along. It was wonderful to meet my bc buddies and party together. We danced so much (in the middle of the afternoon) that I was literally hobbling through Caterham come 7pm that evening. I also found it emotional to see all those women on the dancefloor yelling out ‘I Will Survive’ with a passion and gusto I have never witnessed before. It took on a whole new meaning. Two women took off their tops and danced topless to resounding support. They had both had double mastectomies and remained flat. I felt quite tearful because it was celebratory and empowering.

@jan30 I carried on with Phesgo right through and didn’t stop for surgery. I would be interested to hear your team’s reasoning. I guess practices change constantly but it would be good to know why.

@jayveebee I have my MRI and mammogram booked for 7th August which is exactly a year after my mastectomy. It will be 4 months after finishing Phesgo.

@sassy3 - Sorry you’ve had a rough patch but delighted to hear that you have a ruptured cyst. The things we celebrate on here! Such as kartoffel being unremarkable and your ruptured cyst. :smile:

Good luck with your forthcoming mammograms @naughty_boob and @carrie5

@naughty_boob I’m pleased that you appreciated my understated outfit. It wouldn’t do to draw attention to oneself so that you get targeted by a nutter on the train to London Bridge who decides you are a kindred spirit on account of you both sporting colourful headgear and who then proceeds to tell you all about her relationships with Jeremy Vine (steals your oxygen when talking to you apparently) and Elon Musk who has sent her 3 wedding dresses to choose from but who she is not going to marry on account of the 21 year age gap. Oh yes, beware of wearing a blue sequinned beret when travelling alone on public transport!

xx

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Hello ladies, so I’ve not been on here for months as I’m trying to get back to some kind of ‘normal’ life after all these shenanigans. I hope my old Kadcyla buddies are doing well and love and hugs to the more recent joiners.
I’ve just had Kadcyla #12 out of 14. And can hardly believe I’ve actually made it the far! It’s not been easy and with the AIs and Zolodex too, my body is exhausted and I am fed up of all the side effects. But I can just see that light at the end of the tunnel peeking through now and it seems like maybe I will get to the end after all.

I did however keep myself awake panicking about my first check-up mammogram in 7 weeks time as I got my appointment letter through - if I’m like this now I’ll be in pieces as it closes in! Any advice on dealing with the scanxiety would be well received thank you!! I think it’s the wait for results that’s worrying me the most - it’s bringing back a lot of memories of horrible waits from the early days. Eeeeekkk.

Good luck everyone! I do hope you Kadcyla ladies in particular are plodding on through this too! Somehow we will get through this!! Xx

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@isthisreal Hey stranger! Good to see you on here :blush: We’re getting so close to the end of Kadcyla (I just had number 13 last week) but I know what you mean about being exhausted. Some days I don’t know whether I’m coming or going… I’m really looking forward to being done and only having Tamoxifen and Zoladex… :joy:

No suggestions from here about dealing with scanxiety. I had an MRI the other week and was a nervous wreck until my oncologist called and told me everything was fine. Sending unremarkable mammogram vibes your way.

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Lovely to hear from you @kartoffel
Number 13 wow!!! Just one more for you, I’m so pleased. And well done on the unremarkable MRI! That’s something to celebrate.
I really hope that this additional 10 months of being Kadcylaed will give us a lifetime of clear scans🤞🏻

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I’m having my first next week nearly a year after surgery. Every centre seems to have a different protocol xx

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@isthisreal yep scan-xiety - I’ve got my first on Monday and it seems ages since the appointment letter came. I suppose Kadcyla has finished and it will see if it’s all been worthwhile :crossed_fingers:but the mere thought it hasn’t sends me into a downwards spiral and heart racing xx

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My first normal weekend and my first holiday for 2 years. I am part of a Rock choir and 120 of us flew to Tallinn in Estonia for their dance and music festival. We had 3 performances-one in gale force winds and one in sheeting rain but I loved every minute of it. The dance festival was awesome - nearly 12000 dancers all in the finale. And for the music festival 100.000 in the audience

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Thanks for all your replys re first mammogram. I’d resigned myself to thinking there doesn’t appear to be a standard time frame so it will be ok whenever it happens. BUT its so worth getting to your consultants secretarys. I left a message on Friday querying the length of time from diagnosis and first repeat mammogram and to say i was actually away on the newest rescheduled date (weekend away booked before Kadcyla was a thing!). She rang this morning to say they have opened another clinic this Friday and I’m in it! So instead of 6 weeks dreading it I’ve got 3 days! And its bang in between 12 months from diagnosis and 1st chemo. Which both seem a lifetime away. I’ll take 3 days wait. Phew. I’ve got a pilates class before and I’ll cycle from there to the appointment in the sunshine to avoid traffic and parking stress and to keep a lid on things! I’m undecided whether to go alone or have a wingman along???

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@gromit12 these photos are so joyful. Thankyou. A reminder that soon enough we will all be able to do such fabulous things again.

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Great news about your appointment. I’m having mine on Friday and @gromit12 is Monday so we can have scan-xietytogether. :handshake::two_women_holding_hands:

I must admit I’m having a very wobbly week, on the verge of tears most days.

:smiling_face_with_three_hearts:

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Hold on @naughty_boob we’ve got this. I’m trying to practice ‘only spend energy on things you can influence’ . It will be what it will be and we can tackle the results only when we have them. I’m planning to fill the week with craft and nature around work. Might actually get all my clothes mending done!

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Thank you :pray: I’m Nordic walking at a cancer centre this afternoon, so that’s nice because they all get it. I need to plan a few other things.

:smiling_face_with_three_hearts:

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Love pics @gromit12 is there anything you don’t do! My best effort this morning is to walk along a trail Thorpe to Tissington and back, mostly carrying 5 1/2 kilos of dog ( vet check on Friday, hope they say she’s allowed more walking) demolished Guinness cake at lovely tearoom in Tissington, probably done about 4 miles in all. Think Ive broken the dogs they are fast asleep. My left toenail is having a major protest about the walking, my toe socks hadn’t arrived when I left home. Don’t want to look at nail! However good distraction from contemplating radiotherapy scan next Monday and then the radiotherapy. Hate scanxiety and results waits. Good luck all.

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You can’t post about dogs and not share dog pics! I need to see the cute puppers :smiling_face:

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