HER2+ and need some buddies

@arty1 and anyone else who’s trying to improve their mental wellbeing and not getting much outside help. There’s a website linked to the university of Pennsylvania where the main research lead has been a guy called Martin Seligman. I’ve followed his research for years. Basically he’s researched kids and adults, across cultures to look at ‘signature strengths’ in other words the varied range of core skills people have that contribute to well being. The website is called ‘authentic happiness’ which sounds like a really dodgy dating site but is actually the university site and well researched. There’s free information and a questionnaire. I’m a great believer that finding, developing and playing to our strengths is better than trying to alter what’s more negative. Wirth a look

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@carrie5 - that sounds interesting x I’ll take a look . Thank you :smiling_face:

I must admit there is a lot of mum guilt right now ..I’m trying not to blame my diagnosis

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Hi @arty1 , your daughter’s situation is a tough one to deal with. One of my students is going through something similar at the moment and my heart goes out to them. The teenage years are not easy ones at the best of times and having to navigate anxiety and depression too makes it a bucketload. I think your onco sounds like quite a sensible one to have given you a low dose HRT. At least you will be in a better place physically and mentally to be able to help your daughter. I don’t know…it’s just one thing after another, isn’t it. I really do appreciate the good times in life as you never know when the next curveball will hit you smack in the solar plexus. I wonder what you’ll find in your hidden basement? Be careful in case it’s a portal into the Upside Down!!

@carrie5 That Authentic Happiness website sounds really interesting. That’s a good one to share with us.

@sassy3 They were discussing this 9 Phesgo instead of 18 on my ward at the Marsden on one of the occasions I was there. Remember that surgery is still the best way to deal with it and that everything else is just hoovering/mopping up any stray cells and to use Princess Kate’s words, is largely preventative. Great that you will have radiotherapy out the way in time for Christmas.

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Hi @woody2 just did 11th Kadcyla and had my usual muscle stiffness for 4 days. The only thing that helps me is brisk walking and pilates but it sounds like your job is physical so it is probably a good thing. I’m on Collegen (British Supplements as v clean brand) and joints feel better. Oh and magnesium for cramps. Hope these help you too.

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Hi all you lovely ladies, I’ve been absent with my head down getting through Kadcyla but came on to ask about your yearly mammograms and after reading a few days of posts realised that I’ve missed you lovely understanding lot. So hi again :). So had first annual mammogram today, took sis for moral support. All for nothing as results are coming in 2 weeks by letter. Huge anticlimax and a long wait. Is the same for others?

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Hi @jayveebee - lovely to hear from you and good to know you’re ploughing through Kadcyla. My mammogram results were supposed to be a week but I went in to see my consultant the next day and they were in so I didn’t have time to work myself up about results and suddenly I was being told there was No Evidence of Disease. I then went and partied at Dreamland in Margate where we had tickets to see Roger Daltrey. I’m not even into him but my, did I party! I do hope that the next two weeks fly by and all is well. X

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Hello lovely people

I just wanted to share with you, that today I’ve received the news that I achieved PCR. Im so grateful as I know triple positive does t always achieve PCR.

I’ve been told I’ll have radiotherapy and carry on with herceptin and tamoxifan. The consultant said he would see how I got on with that but there are no plans for ovary suppression. Has anyone else who is triple positive stayed on tamoxifan without ovary suppression?

X

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Great news @cass2 !

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Hi everyone. Quick update from me after what has been a very scary 3 weeks. I saw my oncologist today for my scan results and she told me they’re not concerned. Lymph nodes in my neck are enlarged but they looked like normal lymph nodes on the ultrasound scan. She will see me in 3 months. I’m so relieved and thankful. It has been so scary being thrust back into the what ifs and my heart goes out to everyone still waiting for results and still in the depths of treatment. I have my first annual mammogram next week but for now, I’m so thankful for good results today and am cuddling my children and family extra tight tonight. Thank you for being a sounding board for me over the past few weeks and for being there all the time, no matter what xx

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@rrey thats fantastic news. I’ve let out one of my long audible phews for you. The one I did for myself when I had results… pheeeeeeewwww!

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That’s great news @cass2

I am/was triple positive too and was so happy that I had PCR in both breasts. I had hoped for it but dared not think it would be. I felt very grateful. X

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I am so pleased for you. I was thinking of you today funnily enough and wondering whether to tag you into a post to see how you are getting on. I hope you enjoy those extra cuddles. Xxx

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I was exactly the same. I didn’t even realise I would be getting the results today. My results appointment is actually scheduled for next week with the surgeon but my oncologist beat him to it. I think I’m In shock still. I’m actually scared to tell anyone incase I jinx it. X

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@rrey so glad you’ve got relief from the scare. Have a better week.

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Did you do a celebratory bench slap :rofl:

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Hello Everybody!

Anyone had dental implants or Invisalign after Bisphosponates?

Just wondering if anybody has successfully had these or told they were unable to.

Chemotherapy has destroyed my teeth and I was looking at options.

Any thoughts or advice appreciated.

Thank you :smiling_face_with_three_hearts:

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Hi everyone, hope you are all doing well, I was off my phone for a bit, recovering post my single mastectomy and it’s so nice to come back to so many good news about positive scans and CPRs well done everyone! Celebrate as much as you can, I am made up for you!!!

I had horrendous 3 weeks post mastectomy with an expander - it took me ages to build up the strenght again but this week I feel.I am sort of back on track, doing regular things, trying to sort lots of Xmas things for my little boy, I even made a lovely hanging Advent calendar will little gifts for each day for him:) I think I got used to the expander just enouhh to tolerate it.

I was diagnosed mid July, went through 3 surgeries now and tomorrow I have results from my single mastectomy. I had so many mixed messages especially with my lumpectomy surgeon saying that most likely I will have chemo and then the mastectomy surgeon saying that chemo is very unlikely - I put in my brain I will have it as I cannot afford even a slightest hope anymore so yep tomorrow I will find out my treatment 5 months after diagnosis. I will try to enjoy my last break day before next chapter.

Sending everyone a big hug!

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Just off for dental surgery a pre requisite before Zoledronic acid.

Terrified!….

When will this nightmare be over? It’s been over 2 years now….

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It’s a long old slog, isn’t it? I’m coming up on 2 years from d-day in January and now I just found out that my reconstruction is likely pushed until mid-next year at the earliest. Still got Zometa, Zoladex and AIs, so it’s a bit like we’re stuck in limbo zone, post-active treatment but not done yet which makes it really hard to move on with our lives.

I’ve got a call with my breast surgeon today because she’s told my plastic surgeon to hold off on replanning my surgery until she sees me in January but she forgot to tell me what she’s waiting for so now I’m worrying there’s something else going on that I haven’t been told about.

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Hy all hope you are all doing well a question for you all after my surgery in February I got full movement in my affected arm but after radiotherapy my arm started to get sore at my shoulder and muscle at top of arm, told my oncologist about it she said increase exercises and gave me ibubrofen gel now I can’t lift arm above my head or behind my back phoned breast cancer nurses over a week ago haven’t heard anything back yet, did anyone else have this have had 12 cycles of kadcyla and im on letrozole x

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