@sassy3 Tganm you ! We are all very smitten 
Appointment is on the 6th .. it canāt come soon enough
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I am also 36 and just found out I have IDC. I know it sounds a bit silly but when my Dr found a lump I just didnāt think much about it. I feel like in the past 3 weeks Iāve gone to about 100 Dr appointment and tests. I am scared, I think this week is the game plan for treatment and I have been so stinkin stressed. It is all going to be okay though! Iām here if you need anyone to talk too.
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Hello @kem1 sorry you find yourself here but welcome 
I hope you get some answers this week xx
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Hi, so sorry your feeling so unwell at the moment. Docetaxel is a toughie to cope with, have you spoken to your team or rang your emergency line to see if they can help? What cycle are you on? I struggled, but the team did tweak my treatment a little, and every little helps as they say! Remember, there is light at the end of the tunnel and you WILL get there. Sending positive vibes to youā¦
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Agree with @sassy3 , talk to your treatment team @sweatybettyhq26 . That sounds pretty unpleasant. Are you on anti sickness meds? They might make constipation worse but there may be tweaks possible to make life a bit easier either through diet or different meds. lactulose might help the poo situation a bit. Definitely get advice donāt suffer. Best.
Always lovely to hear from our @arty1 and sorry the relentless pace and stress levels continue for you. Youāve got so much on your plate right now, no wonder you are feeling stretched. It really shouldnāt be so hard to get help when you need it so badly. Praying the lump turns out to be nothing serious but of course we all understand how it must be playing on your mind. Please do let us know what they say. August might seem like a long way off but when you finally have everything in one place, it will have to make life seem more manageable, surely. It all sounds exhausting so on a brighter note, thank heavens for lovely baby Hattie, who will be such a welcome ray of sunshine in the midst of all the chaos. As for losing weight, I havenāt the foggiest idea how to do that so I think it more likely that I shall be joining you as a member of the Roly-Polys who I absolutely loved! Thanks for reminding me. They were fantastic, giving it their all on the Les Dawson Show. If I ever see an audition for another troupe, I will see you at the audition. @carrie5 is, as always, spot on when she says that there are always further chances to learn and get qualifications later on. My son did badly last summer and is busy revising for retakes at the moment. He is still only 16 and the extra year of study was exactly what he needed being one of the youngest in his year. If your daughter needs extra time to get herself on track then it will be ok. It felt awful last August when my son didnāt get the results he needed but from this perspective it wasnāt the disaster I thought it was at the time. He didnāt get to go to the college he had been accepted into but the alternative actually suited him better. Sometimes I do believe everything happens for a reason.
@fam I realise now that it took a while to get back to my old energy levels. I taught on Saturday morning then drove to Brighton and was out with my old college friends until 1:30am on Sunday morning at the weekend. I was ok when I awoke yesterday but by the time I got home Sunday afternoon, I was fit for nothing. A lot of this is age and being post-menopausal, Iām sure. However, itās good to know that I can do a very full on and long day again, even if most of Sunday is a write-off. I think with patience, a good diet and enough sleep, it is possible to get back to pre-bc energy levels. It just takes a bit of time. No harm in chasing up a radiotherapy date if you feel itās taking a bit too long.
Hello and welcome to you, @kem1 Iām really sorry you have had to find yourself here but weāre a lovely bunch. I hope you get some answers this week. I always think itās very unfair when someone in their 30s has to join us but youāre definitely not alone here. People really do understand what youāre going through so jump on any time you are feeling stressed.
My Dad is back in hospital and his woolly hat that he wears 24 hours a day has split. My Mum has had to give him one to wear that he was given for Christmas which says āPlease f**k off, thanksā. He is very disgruntled at being back there and is sitting looking very unhappy so the sentiment is just about right. I do hope the staff can see the funny side. Iāve got him another less offensive one to take with me when I visit tonight. Iāll probably find theyāve put him in the broom cupboard!!
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@salbert very encouraged to know you are up to partying till the early hours. Hope things go ok with your Dad, not an easy situation for any of you.
So yes there is life after this shit show, my next caving trip is in 3 weeks, similar to last year except then I was mid chemo and only did a short distance in case I ran out of energy which happened regularly then, my aim is to get a little bit further this time. Energy wise Iām much better. I did manage past my bedtime on Saturday and did a bat walk.
Itās all just an improved version of ā taking the next stepā, which a year ago was literally that often in the direction of the bathroom or my bed.
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@salbert I did laugh about your dad in his hat. Sorry heās back in hospital again but oh boy Iād love that hat as well! xxx
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@carrie5 A bat walk sounds lovely. Doesnāt surprise me that youāre off caving again. Please tell me you draw the line at potholing!
Thanks to you and @Jaygo re my Dad. He isnāt well again and has had everything wrong with him for years. Weāre back to daily hospital visits and had the end of life chat again with the doctor yesterday. Honestly, I know it off by heart now, heās put us through it so many times. I think he does it so we all rally, tell him how much we love him and shower him with Wagon Wheels!!
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@arty1 so sorry to hear you are juggling so many things and that your daughter is struggling. On top of that a lump to be investigated. I will send you as many positive vibes as I can conjure and hope it helps.
Congratulations on the baby granddaughter, she has a glamorous granny/nan/nanny. 
let us know what happens after the 6 May. August will be with us sooner than you think. I hope the move isnāt too stressful.
@alpacagirl Welcome to the thread. I also had delays due to infection and hospital stay, and adjusted doses several times during chemo and was told it wouldnāt affect the overall outcome. They give everyone the same dose and try to minimise side effects with adjustments. One professor said they would hope in the future to be able to give the exact dose per person to not get side effects and therefore limited impact on life during treatment. But we arenāt there yet.
@fam I would chase them up if you thought you would be having it soon, even if itās just to get an idea of dates so you can plan ahead.
@salbert thinking of you and your mum with dad in hospital. Love the hat! Very apt for hospital when they wonāt leave you alone! Hope he has settled ok.
@carrie5 wonder woman at it again, another caving expedition. You are amazing. Love bats. When my Dad died, I was called at 5am and I sat on the back step. It was so dark and quiet and then I heard bats flying over head. I had never experienced this and in my own back garden. We have mature trees and heard about the bats as some people are made to jump through hoops for any two storey extension and accommodate them. Up until then Iād never experienced, suffice to say Iām not up early enough to experience them again. 
Take care all.
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@salbert maybe we could start our own roly poly troupe 
I used to love Les Dawson, he was brilliant .. Iām convinced that once I move .. life will calm down. Iām winding my business down as it will go kaput when I move but itās not a problem. I need to start slowing down. Hubby is going to just look for part time work as we wonāt have a mortgage .. we really want to spend some time together .
Iām so sorry your son didnāt get the grades he hoped for last year , but reassuring to hear heās able to resit and is getting the support he needs. Itās not the end of the world .. I mean who remembers their GCSE grades years later .. but right now to these teens .. it feels so pressurised . I really feel for them 
So sorry to hear your dad is in hospital too but I laughed out loud at the hat Where can I get one ? 
@naughty_boob Thank you so much for the good vibes ā¦ Iāve no idea what will happen next week but Iām just going with the flow.. what will be will be x
@carrie5 You continue to amaze me.. you are a powerhouse!
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@arty1 my business is being liquidated this week, so I am with you on this. I had ten good years. Sad that it is going, but it is time for a new chapter for me (and less corporation tax). x
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@arty1 Amazing news that you wonāt have a mortgage anymore. This is my dream! Quality time with your husband and family will be a godsend.
@Jaygo Where one door closesā¦. Letās hope the new door opens at just the right time and has something wonderful behind it.
@naughty_boob Here is the link to my Dadās hat. Quick, get one before it gets removed! Spoilt Rotten Adult Sweary Hat Beanie & Baseball Range (Please F*ck Off Thanks Beanie) Black : Amazon.co.uk: Fashion
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On no! Currently unavailable. I will put in my list!
Hi you lovely people,
Im just feeling a little unsure/tadge wobbly. So I was told my rather large lump in my remaining breast was fat necrosis last August ^ discharged with zero follow up. Given the clinic was disorganised and chaotic and I had a few unpleasant characters to dameal with with as I went though plus misinformation I felt uneasy. And a breast ckinician said I shouldnāt been discharged but monitored be cause of my bc history. ..this has stuck in my mind and the lump remains large and painful at time Iāve decided after 9minths to get referred back to see my plastic surgeon who did all the recon and get checked out again. Something just doesnāt feel right. Canāt explain it. Anyway my gp has booked a dble phone app today I hope this is to do the referral as it out of area . Im going to move my breast care there too. Its a specialist centre so thats what they do all day every day! I did ring the centre and thry said it needs reviewing.
Hope everyone is good and the beanie hats are a sucess. I love beanie hats so comfy. 
Hi @waveylocks
Iām not surprised youāre feeling wobbly. Thatās allowed - especially with the mixed messages you got before. Honestly, I think you are absolutely doing the right thing to get it checked again. The fact itās still there and causing you discomfort is reason enough, and itās always better to have that reassurance. Trusting your instincts matters, especially when something doesnāt feel quite right.
It sounds really positive that your GP is taking it seriously with a double appointment, and moving your care to a specialist centre where they deal with this day in, day out makes a lot of sense.
Try not to second guess yourselfāyouāre advocating for your health, and thatās everything on this journey. Hopefully youāll get some clear answers and peace of mind very soon.
Sending you a big hug and yesā¦ the beanie hats are definitely a win! I lived in mine!!
XX
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Thankyou. Well my gp was off sick so they booked me in with another. Its taken 5 weeks to get this far. Ge rang ne and agreed to refer me. Ive moved my breast care somewhere else. The surgery sent the referral this morning and the clinic rang me at 11 and booked me in a qeeks time. Im amazed. Hoping fresh eyes on it will bottom it. I lost all confidence in the other place. So 
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@waveylocks well done as @salbert says advocating for yourself ā something doesnāt feel rightā is absolutely the time to push. Good luck. @arty1 thinking of you. Everyone else getting through chemo just now- good wishes.
And after 9 months struggling on letrozole I finally got heard, different consultant team ( assume my regular one left) and I get to try another AI. Useful if it comes through soon as my next trip down a hole in the ground happens soon and Iām as stiff as a plank! Love to all.
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@waveylocks I changed teams when I lost confidence in my original consultant and it was the best decision Iāve ever made. Sometimes we need to do this. Not long to wait. Keep us posted.
@carrie5 Fingers crossed for the new AI. You need to be flexible and pain-free for the type of activities you favour!!
I hope the appointment went ok yesterday @arty1
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Thanxs Salbert,
Yes gp sent referral in yesterday first thing and the new breast clinic rang me 2 hrs later and booked me in. I have a 10day wait until my appointment. So fast! Am impressed so far!
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