@salbert maybe we could start our own roly poly troupe I used to love Les Dawson, he was brilliant .. Iām convinced that once I move .. life will calm down. Iām winding my business down as it will go kaput when I move but itās not a problem. I need to start slowing down. Hubby is going to just look for part time work as we wonāt have a mortgage .. we really want to spend some time together .
Iām so sorry your son didnāt get the grades he hoped for last year , but reassuring to hear heās able to resit and is getting the support he needs. Itās not the end of the world .. I mean who remembers their GCSE grades years later .. but right now to these teens .. it feels so pressurised . I really feel for them
So sorry to hear your dad is in hospital too but I laughed out loud at the hat Where can I get one ?
@naughty_boob Thank you so much for the good vibes ā¦ Iāve no idea what will happen next week but Iām just going with the flow.. what will be will be x
@carrie5 You continue to amaze me.. you are a powerhouse!
@arty1 my business is being liquidated this week, so I am with you on this. I had ten good years. Sad that it is going, but it is time for a new chapter for me (and less corporation tax). x
Im just feeling a little unsure/tadge wobbly. So I was told my rather large lump in my remaining breast was fat necrosis last August ^ discharged with zero follow up. Given the clinic was disorganised and chaotic and I had a few unpleasant characters to dameal with with as I went though plus misinformation I felt uneasy. And a breast ckinician said I shouldnāt been discharged but monitored be cause of my bc history. ..this has stuck in my mind and the lump remains large and painful at time Iāve decided after 9minths to get referred back to see my plastic surgeon who did all the recon and get checked out again. Something just doesnāt feel right. Canāt explain it. Anyway my gp has booked a dble phone app today I hope this is to do the referral as it out of area . Im going to move my breast care there too. Its a specialist centre so thats what they do all day every day! I did ring the centre and thry said it needs reviewing.
Hope everyone is good and the beanie hats are a sucess. I love beanie hats so comfy.
Iām not surprised youāre feeling wobbly. Thatās allowed - especially with the mixed messages you got before. Honestly, I think you are absolutely doing the right thing to get it checked again. The fact itās still there and causing you discomfort is reason enough, and itās always better to have that reassurance. Trusting your instincts matters, especially when something doesnāt feel quite right.
It sounds really positive that your GP is taking it seriously with a double appointment, and moving your care to a specialist centre where they deal with this day in, day out makes a lot of sense.
Try not to second guess yourselfāyouāre advocating for your health, and thatās everything on this journey. Hopefully youāll get some clear answers and peace of mind very soon.
Sending you a big hug and yesā¦ the beanie hats are definitely a win! I lived in mine!!
Thankyou. Well my gp was off sick so they booked me in with another. Its taken 5 weeks to get this far. Ge rang ne and agreed to refer me. Ive moved my breast care somewhere else. The surgery sent the referral this morning and the clinic rang me at 11 and booked me in a qeeks time. Im amazed. Hoping fresh eyes on it will bottom it. I lost all confidence in the other place. So
@waveylocks well done as @salbert says advocating for yourself ā something doesnāt feel rightā is absolutely the time to push. Good luck. @arty1 thinking of you. Everyone else getting through chemo just now- good wishes.
And after 9 months struggling on letrozole I finally got heard, different consultant team ( assume my regular one left) and I get to try another AI. Useful if it comes through soon as my next trip down a hole in the ground happens soon and Iām as stiff as a plank! Love to all.
@waveylocks I changed teams when I lost confidence in my original consultant and it was the best decision Iāve ever made. Sometimes we need to do this. Not long to wait. Keep us posted.
@carrie5 Fingers crossed for the new AI. You need to be flexible and pain-free for the type of activities you favour!!
Yes gp sent referral in yesterday first thing and the new breast clinic rang me 2 hrs later and booked me in. I have a 10day wait until my appointment. So fast! Am impressed so far!
I did 7yrs on the stuff. Letrozole did not agree with me felt awful. Moved to Examastane and things settled. Just by year 7/10 I could no longer function properly mentallyā¦ā¦found my self staring blankly at standard reports I was trying to write. So stopped at that point.
So definately worth switching to see if u manage better. Fingers crossed for you.
Hi everyone. Long time no post again. As i find it better for me mentally not to come on here too much.
I just wanted to ask if anyone is claiming pip for bC? I got awarded it for 2 years and i know it is coming up to the 2 year mark end of this year.
As anyone got it beyond the 2 year mark ? I still have long lingering side effects like pain.. brain fog.. pure exhaustion and lets not forget the mental side of things. I just cant see why i would not get it tbf.. as there is fowk out there that gets it and they not been through what we have. Thanks jemma
Im still on bone infusions and hormonal medication which is causing more side effects x
Sorry canāt help they turned me down from the off. But yes the mental cant think straight anymore & exhaustion is real. Be good if your oncologist would support with a medical statement or gp? about the effects.
Deffo get back on to them and ask for an extension. This shit doesnāt just magically go away and nor should the financial help. If you get no joy with the PIP people who I have found to be extremely helpful, then go to the Citizenās Advice Bureau or to MacMillan. I hope you manage to get an extension. xxx
Hi all, hope everyone is doing as well as you can be wherever you are on your journey! Iām about to start another phase of mine, Zolendronic infusions start Thursday, six monthly, for three years. Very nervous about them, although oncologist tried to reassure me that after having chemo, this will be a breeze! Watch this spaceā¦
Defo a breeze! The first one i felt a bit.poorly like i had a cold virus but after 1st i was fine and its nothing compared to chemo so no need to worry!
And thanks for advice on pip.. i just cant see how i would not get it again tbf. It runs out December i think! X
@jeml I was also advised to apply for PIP but got turned down flat. However, I was able to work throughout as it turns out, so wouldnāt have needed it. I think it will pay to really put your case across in case they want to find a way to stop making payments.
@sassy3 I also felt rough the day after my first zoledronic acid but all the others have been absolutely fine. I no longer get any side effects from it.
Hi everyone. I thought Iād pop on and say hello to everyone again. Iām still on weekly herceptin injections and am now on tamoxifen. Nice to see the group is still going and to read your stories. X
I used to love Les Dawson, he was brilliant .. Iām convinced that once I move .. life will calm down. Iām winding my business down as it will go kaput when I move but itās not a problem. I need to start slowing down. Hubby is going to just look for part time work as we wonāt have a mortgage .. we really want to spend some time together .
