HER2+ and need some buddies

@arty1 I know there’s nothing I can say to take the fear away. Just wanted you to know that I hear you and am sending lots of positvity your way.

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Thank you ! I had a night of no sleep … I’ll have passed out with worry before my op

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Well I’m sat in the day surgery unit waiting my turn … I might collapse with nerves !

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@arty1 I’m actually really pleased today is here and I’m going to ask the Universe to get you in there fast and bring you safely out the other side. In fact, I have just stopped to do it. We are all here rooting for you. Just think of what you would’ve said to all your patients when you were nursing and give yourself that talk. I have faith that you will be just fine. Hang in there. You’re almost there. Love and strength. Xxx

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Good luck today @arty1 - you’ve got this. You’re a warrior, don’t ever forget that xx

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Good luck! Sure you will be fine! Its normal to be nervous its what makes us human.x

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@arty1 With this much positive energy flowing your way, you are going to fly through this op and wake up feeling wonderful!

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I am so frightened , I’m down next :cold_sweat:

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@arty1 I remember this bit. I was terrified…then I woke up and it was all done. You’re nearly there.

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It’s an awful fear, but you’ll be fine. Wishing you all the best.

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I had some tingling and numbness on and off with Paclitaxel, which I finished last December. The oncology team were told and weren’t bothered as it was permanent. However I’m still having issues with my nerves in my neck which affects my arms and hands, again not all the time but need some pain relief and having physio.

I think you proceed to inform your team as they can reduce your dose to reduce the side effects. I had a reduced dose from the beginning then to more reductions. A professor of oncology said they give everyone the same dose and side effects differ, they would love to give everyone a bespoke dose so you have no side effects but they aren’t there yet. I was told a reduced dose shouldn’t affect your outcome. I know of some people who had to stop their chemo early because of side effects, your team will do what is best for you. :smiling_face_with_three_hearts:

We’re all here for you

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Hi @rrey yes i had/have neuropathy. I have altered sensation in tips of fingers,mild, also on toes and ball of foot. My dose of paclitaxol was reduced twice and as i read in another thread, call it adjusted, it doesn’t sound so bad. Despite this when it came to MRI andsurgery i had complete resolution of tumour. I have found that acupuncture helps a bit. I’ve still got symptoms and my oncologist said it does take a long time to completely resolve. Im glad i had the reduced/adjusted dose as i didn’t want the neuropathy to get worse and become really bothersome or painful.

@arty1 by the time you read this you will have had your op and i am sure you will be fine and the nurses will look after you. Good luck.
Penny

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Hello everyone

@jeml That is BRILLIANT news! We love to hear that chemo is blitzing those tumours. You keep fluttering those longlasting lashes. You are smashing this!
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@rrey I got prickling in my hands and feet right towards the end of Paclitaxel but was told that as it had happened right at the last, they were not concerned as there wasn’t enough time left for it to cause any lasting damage. It wore off again after I’d finished. Definitely mention it to your team though. Like @naughty_boob says, they will reduce the dose if necessary. Good call @pennyp re acupuncture. I have heard that it really helps from women on the February 2024 Chemo Starters thread.

@norts Good to see your lovely, smiley face. :smiley:

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In other news, look what happened this weekend. Meet Bella!

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Bella is a cutie xx

Lovely message from @jill2

Hi Salbert and everyone on this chat. Just wanted to update you on my first year mamogram results. All good news, although the three week wait was horrendous. As I mentioned before I was worried about being Esrogen+ and her2+ and not having chemotherapy due to being small 10mm ibc in size and 30mm dcis so just licap and radiotherapy with Leterozole. Feel a bit of a fraud compared to most of you fabulous ladies. Hopefully in the future the little critter won’t return but for now I feel a lot easier in my mind. Hope this helps anyone who also didn’t or won’t
be having chemotherapy with her2+ not to panic like I did thinking I was being undertreated and thank you for your reassurance and kind words from those who have been through this and much more, those going through it and those just starting on the journey no one wants to take. This is a fabulous group and I’m so grateful it was started. My very best wishes to you all. JILL.

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@jill2 That is absolutely fantastic news. Thanks for reporting first year mammogram results to us because there will no doubt (in fact there definitely are) women on here who are worried about being under-treated. It’s really great to know that you are clear a year later. It gives so much hope to people.

@bigpickle Bella is also a Big Pickle so I may have to borrow your Username for her! :smile:

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:heart::heart::heart::dog2::guide_dog::poodle::heart::heart::heart:

I knew it wouldn’t be long. She’s beautiful.
:smiling_face_with_three_hearts:

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Don’t know if this has uploaded…this is Louis

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