Hi @kartoffel, I’m starting next Friday so you’ll be one ahead of me! I hope it goes well.
I’ve turned down a port initially as I had real pain and problems with my PICC and sort of think it might be the same, but my veins are rubbish and so may have to change that decision.
How are you feeling about staring the Kadcyla?
I’m so hoping he’s right and it is not too difficult. I’m keeping my fingers crossed for you.
I’ll let you know how it goes… 
To be honest, I don’t know how I feel about it. I hope it will be worth it and I know I would regret it if I opted out and then my cancer came back, but at the same time I’m so tired of treatment. At least this is only every 3 weeks? I just finished radiotherapy last Friday and doing something every day made me want to stab someone.
@kartoffel i can very much understand where you’re coming from! I feel so run down from the treatment so far and there’s some side effects that haven’t gone away yet, it seems cruel to be putting more chemo in my body. I’ll be having my radio alongside the Kadcyla in about a month.
BUT the studies on how effective Kadcyla is are so strong, and as I had residual cancer in my lump the chances of recurrence are pretty high, so it’s definitely worth a try if it’s not too awful.
I really hope it goes ok for you x
Hopefully it goes well for both of us and keeps us cancer free with a minimum of fuss! I have read a lot about how effective it’s been for other people, so I’m really hoping it is the same for me. What was your RCB? I think mine was 2, so not the best but not the worst either.
Ah I’ve not heard of RCB so no idea about that. Are you on the NHS? What does it range from to? I’ll ask my surgeon if she has any idea what mine is when I next see her!
From what I understand there are 3 grades, RCB-I, II or III. The lower the better. If you have your pathology report from surgery and its not on there, you can calculate it here: Residual Cancer Burden Calculator RCB-I has a better chance of long term, event free survival than RCB-III.
@arty1 The sisterhood is everything on this journey. I feel the same as you. In fact @chakakhan WHERE ARE YOU? COME AND SHARE YOUR NEWS!!
Wobble away whenever you need to. Our safety net is strong.
Well done on rehoming your Dad’s beautiful Newfoundland, Pip. It sounds like you did your uncle a lot of good there too. Animals enrich lives. I’d love to give Pip a cuddle.
@kartoffel I’m so glad you have shared a pic of Pickle. She’s so edible she should be in and on a chocolate box. I bet you can’t wait for Sunday. Pleased you can share Kadycla notes with @isthisreal
I must share that as I was driving along the M25 on Saturday, my husband pipes up from the backseat “You’ve got a lovely hairy face, darling!” Noticing that I was rather taken aback and none too pleased to be appraised of this fact, he quickly followed up with how very wonderful it was as it proved my hair was growing back. When I tried to explain that facial hair was not equated with good fortune in a woman, he swiftly changed the subject to the traffic jam. Blokes!!
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Ha ha, must admit I am not missing my chin hair at the moment.
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BIG NEWS! I wanted to share with you first,…
My results were given by my surgeon today and I have had a complete pathological response!
Thank you for your support and holding my hand on this rollercoaster journey,…I must admit there were times I didn’t think I would get this far but for the sisterhood!
Love ChakaKhan 
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Arty1,
Hope you are recovering and healing well.
I was thinking of you X
14.9k views!
Blimey Salbert you were onto something when you started this topic on the forum!
I cant even imagine how many people this has helped and will continue too Xx
Congrstulations @chakakhan what fantastic news! You can breathe now and look forwards.
Penny
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Hello my friends
Thanks for sharing @chakakhan! It’s great to celebrate our good news when it comes. It gives everyone hope. It’s wonderful that this is a thriving thread. I guess there is a need for it.
How are you doing @pennyp?
Our best laid plans to have our dog sleep in a bed next to ours have gone to pot immediately. I keep going up to bed only to find her buried under the covers with my husband fast asleep next to her. I’ve given in already. 
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Hi @salbert , i’m doing ok thanks, healing well, still a bit tender but making good progress. I went shopping on Tuesday and bought myself some new clothes, felt like an independent adult again and not a patient. Planing meeting fpr radio on Monday. Thsnk goodness my appetite has come back and i’m enjoying food again, even cheese. Sweet tooth has remained tho and treated myself to carot cake after my walk yesterday, i must be careful not to put back on the stone i lost during chemo tho!
Penny
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Hello everyone,
I thought this was interesting so wanted to post and let you know in case anyone wanted to view it.
Although it says Live it can still be viewed after the event and is presented by Breast Cancer Now.
@pennyp Good on you! Sounds like you are really heading in the right direction now. We will probably be having radiotherapy around the same time. Carrot cake and clothes sounds like a very good prescription to me!
Thanks @chakakhan - That looks like a really beneficial Facebook Live BCN session.
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The wiry hairs didn’t fall out for me 
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Looks good.
PennyBrohn have a scar workshop on zoom available for the whole of the U.K. Kate Oldham was also diagnosed with bc and was a cancer rehabilitation specialist. She also does online lymphoedema workshops.
( I’ve worked out how to do a hyperlink using a name instead of doing the whole web address. Never too old to learn) 
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Thank you Naughty Boob! X
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