@marionse25 Im so sorry - that is disappointing and unacceptable. As if you haven’t been through enough already , I would be very upset too to be told I needed revision surgery 
The kadcyla seems to be knocking you for six … have they said anything about you reverting back to phesgo ?
Who was your surgeon as I had my surgery there last time and he did a fab job but is on sabatical so if I get a second opinion I would go back to the guy covering his private patients probably?
Can you DM please me as I don’t think they will allow this on the forum otherwise.
he is a private surgeon performing in Chelsea. He is Greek.
He was annoyed I did not want reconstruction and said I would regret it… this time he tried to refer me for a prosthesis when I had already said no thank you… That won’t solve the problem!
Hi @arty1
For phesgo we will wait and see what my blood tests look like and may resuce the dose or revert to Phesgo.
I have been given nothing for pain and I now have neuropathy in hands and feet.
Hey everyone,
@salbert so basically my mammogram was no good (as she said it would be) because of my dense breast tissue so I’m off for an MRI this evening. She told me that 50% of people end up having another biopsy so I’m a bit gutted but I guess this is just standard procedure and they need to be thorough before the op. Just hoping they don’t find anything else. When I had my ultrasound she looked round the entire breast and armpit and said it looked ok so fingers crossed. I’ve not been coping too well at all, considering going to the doctors to see if they can help with the lack of sleep and eating coz it’s really not helping anything. I’m constantly exhausted and emotional. How did you guys get through this? It feels impossible.
@arty1 you’re so right about the doom and gloom. I just wish my brain would let me keep thinking that way. Everytime a positive thought comes into my head, 20 negatives ones take over 
I’ve been at Paultons Park today with my kids to try and just forget about all this for a while which has definitely helped but the reality is slowly setting back in with the MRI shortly.
Thank you again for all being so kind!
Thank you @naughty_boob
My husband is my only family in the UK and he is doing a lot already.
I am going to do a data access request to have the details of my surgery. The point of having a private surgeon is that you don’t get students practicing on your body… I am really scared of surgery and complications I really don’t want a new op.
There was definitely something wrong with my surgery. Despite fentanyl and oxycodon I had agonising pain for several weeks. It is unheard of for mastectomies and I have a high pain treshold!
Hope the MRI goes ok. I had an MRI for sizing of my tumour to decide if it was chemo first or surgery, unfortunately for me they found an anomaly in the other boob, had another ultrasound and biopsy in that boob to be told I had another primary tumour. Before you panic, this is quite rare only 5% of all breast cancer is bi lateral.
As far as sleep, we all know what it is like. I was prescribed Zopiclone, I was told I could take 2/3 nights a week so I could at least have a couple of good nights. I still have them as my sleep is disturbed by hot flushes and needing the toilet.
Thinking of you 
@scaredmum1 don’t panic at about the MRI , they are just double checking things , same re the second biopsy . I needed a second biopsy and had to have a repeat mammogram and ultrasound , I was told it was important they had the full picture in order to formulate a treatment plan x
@salbert we love Halloween and went to town on decorations! As a result we had so many visits we ran out of sweets and had to resort to offering the crisps we had in 
Felt a bit meh today when I turned over the calendar and saw chemo day marked on the 22nd 
It’s a week since I told them I’m allergic to castor oil yet I’ve heard nothing and no appointment for my echo either
My appointment with Professor Nienbar was encouraging , he’s not at all concerned about my heart function which is good and said he thinks my tachycardia may well be anxiety and hormone related . Re my aneurysm, he said my aorta has increased by 2 mm in three years but said there is a 10 per cent error margin in echo measurements . He wants my HCP to organise an ECG gated ct aortagram before treatment g just to get a baseline but I think that’s unlikely to happen 