HER2+ and need some buddies

Glad you are not too bad! Hopefully you wont get too many side effects but i did find that each round the stronger the side effects were for me. I had 6 rounds in total, how many are you having? Im due on 6th for my phesgo injection ( herceptin ) be weird going in just for that and no chemo, glad though!x

Luckily i dont have the horrid spots i just have cold symptoms! But My girl is covered but she seems okay, just had the 2 days of feeling off it before the spots started. Im fed up now thoughā€¦ i just feel like.i have been ill since bloody july! So want to get it out of way and have a good xmas. My bloods was a bit low too but not too low for concern so should probably pick up again soon naturally. My op is on the 18th so next weekend i want to do something christmassy like a market etc as a family. Not done anything since june! X

2 Likes

Yes im 6 aswell, aw hoping i will feel okay at christmas time or as well as i can be mect one is on the 17th December, aw that will be weird but in a good way šŸ©· i hope you get some nice time before your op aswell šŸ©·šŸ©·xx

1 Like

@shannon27 yep I say to people now ANY changes ā€¦ get it checked !
My first chemo session had floored me tbh ā€¦ Iā€™ve also got quite severe neuropathy already so I think theyā€™ll have to reduce my dose next time ā€¦Because Iā€™m not sure I can do that again ā€¦ Iā€™m really struggling to do anything physical without feeling completely out of puff ā€¦

2 Likes

@jeml itā€™s Sods law isnā€™t it to get a bug after chemo . Your immune system will be in your boots though right now ā€¦ but your body will start to recover and repair x
Our Christmas lights switch on was last night in my town ā€¦ I stayed home while hubby and daughter went as it felt a bit risky infection wise

2 Likes

Yes that would be good to lower it, especially to help manage it. Yeah i wasnt really sure what i was expecting been wiped on today emotionally as well as sore was okay the first few days but thats day 5 now. And struggling to have any strength in the morning doing much. šŸ©·

1 Like

@shannon27 if it helps , Iā€™m day 10
Now and feel like Iā€™m turning a corner ā€¦ more energy today although the early arrival of my period side swiped me !
I went for a walk round Avebury today and apart from my legs feeling a bit heavy , didnā€™t feel too bad x

1 Like

@arty1 thank you yes hopefully i will pick up again soon :muscle::heart: its so nice to get out a walk, hoping to get out walking some more soon xx

1 Like

Morning all

@galdiolus I canā€™t have the soft saline implant put in until April 2025 and then I would imagine there would be some healing time so maybe I will visit Cheltenham in the summer. Thatā€™s where Paradise Tattoo is located. Nice surrounding areas so I think Iā€™ll make a weekend of it with the hubby.

@jeml You were right about the hand, foot and mouth then. How horrible on top of everything else youā€™re going through. Kids really are walking Petri dishes.

@arty1 Canā€™t believe you ate worms!! Iā€™ve been phobic about them since being surprised by a tray of them at playgroup aged 3. @shannon27 I am the same as you and Arty in that my boob swelled up and went hot and red which is not how breast cancer usually presents itself and they thought it might be a blockage or infection due to the Hadfieldā€™s Procedure Iā€™d had at the end of November 2022. Iā€™m just so glad it happened as it never showed up on scans, MRIs etc. We know when something is wrong and must trust our instincts. Iā€™m glad I kept going back. Glad is actually an understatement. Thank God my body kept telling me something was wrong.

So sorry to hear you already have neuropathy @arty1 You just have to listen to your body and try to take it easy now. Sad to miss the Christmas lights switch on but you must make up for it next year. Iā€™m ā€˜avinā€™ it large re Christmas this year after last year was totally ruined by all this malarkey.

I have my next battery of heart tests today. I have an MRI Cardiac, an Echocardiogram and a CT Coronary Angiogram on top of the ECG and various blood tests Iā€™ve already had. I canā€™t help feeling this is overkill and only because the expense is all covered by BUPA. The worst part about it is ā€¦ NO CAFFEINE!! At about 10am I was questioning why I felt so flat, sluggish and low on energy. Then I realised it was totally due to the fact that I would have inhaled two vats of tea by that time, closely followed by a strong coffee at 11am. I now have a headache. Yes, I conclude that I am heavily reliant on caffeine. Iā€™m craving it. Wish me luck everyone! I am suffering full on withdrawal and have to get a train to London now. :grimacing:

XX

3 Likes

Still in hospital awaiting a Hickman line as need to be on iv antibā€™s 4 weeks. It will have a pump attached which needs changing daily. Not sure by whom yet. My district nurses canā€™t do it so they asked the next town. Not having antibā€™s now as cannulaā€™s donā€™t work so may be on oral temp. Infection markers are down again as did start going up again. Also have a dvt so op prob wonā€™t be until Fen when off blood thinners. Canā€™t wait to go home as been here 11 days now.

2 Likes

That sounds horrendous @Linda_Corinne .
Letā€™s hope it gets sorted soon.

2 Likes

Good luck @salbert, i hope you can get a coffee soon šŸ©·

Yes im the same very glad i persisted and that ny body kept telling me something was wrong. Im on day 6 after chemotherapy and feeling weak, trying not to beat myself up but having a 5 year old im feeling useless :pensive: xx

@salbert I hope all the tests went ok , My cardiologist (private) wants me to have a ct angiogram but I need to wait until after chemo now as they donā€™t do them at my hospital .

Sone lovely areas round Cheltenhamā€¦ itā€™s where Dad lived ā€¦ I live about 45 mins away , you could defo have a nice break in the Cotswolds x

@Linda_Corinne I am so sorry , you seem to be having such a rough time :sob: Are your family able to visit you in hospital. Sending you lots of love xx

1 Like

@Linda_Corinne its sound like youā€™re having a rough time. Thinking of you and hope you get home soon.

@salbert hope the tests go ok. If they offer them, take them. Better to be safe than sorry.
:smiling_face_with_three_hearts:

1 Like

Hello, lovely ones

@Linda_Corinne I am so sorry to hear that you are still in hospital. It sounds like you are having a horrible time. I bet you canā€™t wait to go home. You poor, poor thing. I felt a bit sorry for myself yesterday when I was being poked and prodded but itā€™s nothing on what youā€™re going through. I really pray you turn a corner soon. Love to you.

@shannon27 Donā€™t beat yourself up. It must be so hard with a 5 year old. Mine was so full on at that age that I used to feel like my head would explode at times so I really do sympathise because itā€™s not like they can understand. Itā€™s no wonder they call us bc warriors because we bloody well are!

@arty1 and @naughty_boob I think the tests went fine but they were worried about my abnormally low blood pressure which could be this new Candesartan drug theyā€™ve put me on but could equally as well have been the lack of caffeine and having to miss lunch. Honestly, the instant theyā€™d finished I was escorted back to reception as blood pressure had gone lower and lower, where I inhaled six biscuits and a cup of tea as prescribed by the medical person. I was ramming them down my neck with such ferocity, I turned to face the wall so nobody could watch. I then went as fast as my legs would carry me to McDonalds in Oxford Street where I purchased medium fries which also got inhaled. My headache abruptly went and I was fully recovered by the time I got home. What does that tell you? Woman needs carbs!

Salbert
xx

3 Likes

Thanks @salbert, ive ended up in the hospital today getting fluid and antibiotics as some of my levels were low so hopefully getting home in a bit. It may have been an indication to low fluids or the start of an infection but getting really good care, just not the satrt i hoepd for after 1 cycle :pensive:xx

2 Likes

@shannon27 Ughh sorry this has happened ā€¦ itā€™s a tough onslaught on our bodies and you are in absolutely the right place no matter how cliched that sounds x

2 Likes

It sure is tough just need to get back on the mend and get through the rest of the cycles :crossed_fingers: they have been so good and checking everything, im in safe hands xx

1 Like

@salbert ace inhibitors are known to
Lower blood pressure , itā€™s why they said I couldnā€™t go
On them unless my heart struggles , how low is your bp?

Mum guilt is awful! I felt like this on my chemo week and i just cried it out. Honestly though do what you need to do and rest. They dont understand thats the most annoying thing out of it and thats when the guilt comes in. I stayed at my mums house on chemo week and my little one would be at bottom of stairs shouting up 'mamma i want you ā€™ and she would cry and then sometimes i would cry, it really is awful!
I hope you are starting to pick up. It took me around a full 7 days for at least the first 3 rounds to come around then it got a little longer as time went on. X

1 Like