I hope your onc can help out tomorrow xx
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@jeml it sounds like he needs further investigation for tachycardia x awful to just leave him to walk home though sadly once discharged they arenāt equipped with the facilities to help you get home 
Iām a private patient as no nhs dentists in existence where I live but did call
111 and they just said the emergency clinic is an hour away in Gloucester and only runs on Saturdays and basically told me to go back to my hcp 
so in a nutshell I think Iāve got to just keep it as clean as poss and hope for the best ā¦ itās typical it happens on a weekend
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Triple positive with positive margins and overwhelmed @chrissyt
Anyone else triple positive and had implant reconstruction with radiotherapy?
Also treatment plan with small invasive tumour?
Hi everyone. My name is Jessy and I was diagnosed in September with Stage 2 HER2+ (hormone neg) BC, am just about to finish neoadjuvant chemo (TCHP). I am multicentric, with lots of tiny tumours across top of boob, and had some positive armpit nodes at diagnosis.
Although the mid way MRI scan showed that the treatment is working, I feel really overwhelmed as chemo comes to an end. Iām just exhausted and crying a lot. I want to feel positive but just know there is so much to go still.
I love hearing stories from women who have been able to move on from this nightmare and are living their best lives.
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Hi Jessy and thanks for sharing your story. As much as its a club you dont want to be in. We have some fantastic women on here for support.
My names Jemma and i got diagnosed in June, HER2 pos only. I have had 6 rounds of chemotherapy along with phesgo injection. I noticed a difference straight away, a few days after my first round the swelling in my breast was going downā¦ then the 2nd chemo the swelling totally was gone. I had 2 mri scans inbetween treatment and the 1st one did show that my nodes was now clear and my lump was half sizeā¦ my lump at diagnosis was around 2.7cm. Then i had a scan after 5th round and it showed no tumour at all it totally melted it away as my Dr said to me. So i still had my 6th round then i opted for a double mastectomy with me being only 33 with a little one i thought it was the best decision for me. I had my operation on the 18th December.
Im now just waiting on my results from surgery and also waiting to see when and how much radiation i need.
Hope all is going well for you! We are all here if you need us. Jemma 
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@jeml can I ask you did you ask for the dmx? Like you I am HER2+ only. They say they cannot measure my tumour as itās breaking down and I also have dcis and calcifications so wonāt know if I have any disease left until after my mastectomy. I am tempted to ask for a dmx but I am much older than you (51). I am seeing the plastic surgeon this afternoon and just had my bloods and all being well last chemo tomorrow. Have everything crossed and just want to reduce any future risk as much as I can but not sure I will be offered a dmx
I did, i saw my surgeon and he said to me it would be a lumpectomy with how well i responded to treatment. And then he said ā but what do you want? ā and straight away i just said a double mastectomy. I just said im young i got my girl to think aboutā¦ its what i wanted from the start which my nurse knows as i have said it many times in our conversations. And i did have a scare in other breast but it was benign changes. But i said for my mental health i want them both gone. And straight away he said okay i will do it.
He his lovely my consultant and he didnt argue against it or anything and respected my wishes. I didnt opt for the reconstruction but its there if i want it further on down the line.
I read so much about lumpectomy etc and to me its not enough ( thats my opinion obvs) but all nurses on chemo ward and lady who put me to sleep before my op said to meā¦ its a big decision but it 100% is the right one. And i honestly do not regret it.x
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If its something you really want then i would use the mental health card. Its a big decision so just make sure that you are 100% on it.
But i did not feel comfortable having a lumpectomy. But thats me.
I dont know if they did it for me with being young etc because i fully expected a debate about it but straight away he said okay. But then again my nurse told them at the meeting thats what i wanted from start. So that probs helped x
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@jeml thank you. I have to have mastectomy because my dcis is a large area and I am very small chested. I will ask about DMX this afternoon. To be honest it will be my mental health and the worry. Although my husband says why do I worry about things that havenāt happened yet and may never happen, but like you cancer once is enough. Xx
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Thank you Jemma 
Really hoping your surgical report comes back clear 
Yeah Iām currently weighing up what surgery to have but am not in the best position to think clearly ATM as so exhausted by chemo.
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Hi @jessybessy Welcome to the thread.
I had surgery first then chemo/herceptin. You are doing amazing!
Itās totally normal to feel overwhelmed especially after chemotherapy finishes, it is a very strong medication and really debilitating. I had radiotherapy afterwards and 8 more months of Herceptin which finished in September 2024. I have some ongoing issues with pain and cording but getting help.
I would say Iām on the other side and enjoying my life. I feel fitter and stronger than I have for a long time but I have to say I have a way to go to be my re cancer self.
I had counselling (can get free at Maggieās and MacMillan) and attended a Moving Forward course after radiotherapy.
- Moving Forward: Finishing treatment can be hard, and it can be difficult to move forward with your life. You can access our support online or face-to-face. Our online information hub and Moving Forward journal provide extra ideas and information. Courses run over 2 weeks, with 2 3.5hr sessions. Or trained facilitators and volunteers are there to help. Find a course near you.
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Yes this looks like a really good idea. I live in Qatar (but am British) so may look at what options there are locally.
And nice to meet you!
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You can join an online Moving Foward course, maybe call/post online message the helpline and see if you are eligible from Qatar.
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Thank you! I always knew from the start what i wanted so it was easy for me.
Do some research and even speak to others or your nurse.
It takes time. I feel a lot better now i have stopped chemo but i am still tired.
I have a nearly 3 year old so that adds to it too lol.
And when i had my surgery my surgeon said we are expecting clear margins! So fingers crossed if it did come back with cells it means i will change from phesgo to something else which is stronger.x
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True, but we do worry and its natural for us to worry specially when it is us going through it with our body. They also put on my record for Symmetry purposes. You could also use that too. X
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I want to join the moving on course is it something you have also done?x
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Yes I think theyād probably put you on Kadcyla. Which I understand is really good at preventing recurrence so either way, youāll be absolutely fine x
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Aww thank you! I not read about it so thanks for sharing. They did tell me to expect clear margins since my scan didnt show any signs and they saw nothing when doing surgery. I will have a little google on it anyhow. Buy fingers crossed just sill phesgo.x
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Yes I did the course last July. I waited to see what my genetics results were, when they were negative I booked the course. Had they been positive, there would have been more surgery. I still had a few months of Herceptin but it felt the right time. Having antibody treatment doesnāt stop you from joining a course. Iām 55 and my course had mainly ladies my age or older. I think there was only 2 that were mid/late 30s.
I did a face to face course and met 14 other lovely ladies all knew what was going on. So many things were said and we looked at each other knowing it was how we were feeling. We set up a Whats App group and keep in touch. Most of them live over 20 miles away so not easy to meet up. We support and share regularly on Whats App.
How are you doing after your surgery?
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