HER2 borderline

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Just sitting here in my gown waiting to go for lumpectomy and SNB. Doc just told me ER+ 8/8 (that’s good) but borderline HER2. It’s gone off for more tests. Not sure what that means…

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All the best Shona. I had same op as you two & a half weeks ago & I’ve been fine. But if you have any problems & I can help please feel free to ask anything. Just waiting for results next Monday & find out what is coming next & that’s the worst bit! Anita x

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Thanks Anita, I’ve been bumped up so going in soon. He dropped a bit of a bomb with the HER2 thing. I’m feeling very wobbly xx

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Hi. My idc was ER8r/PR8 and was HER2 borderline…there’s another term for it but Anastrozole has made my mind fuzzy! Anyway my sample was sent out for the FISH test which is a longer and more rigid test and mine came back negative. My tumour was a grade one and the consultant did say it would be unlikely to be HER2 positive as it’s more apparent in higher grades. Let us know how you get on. x

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Thanks. I’ve been reading so much about this my head is spinning! Seeing the doc in two weeks so I’ll know more then. Xx

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That’s reassuring. I’ll go through any treatment to stay here as long as possible. My mum died of BC three years older than I am now so I’m always looking on the gloomy side. In those days they didn’t know about HER2 so I’m in a better place than she was xxx

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Ok so today i was feeling much better. Lumpectomy was done Wednesday with removal of sentinel node. Actually managed a shower with hair wash discarded surgical stockings and got dressed in own clothes and applied a little make up. Happy days!! Then boom!! phone call from breast nurse. Her 2 undetermined. Not positive not negative. Will have to be tested again. So there I was just thinking I could get through all this facing just the prospect of radiotherapy and drugs and now I’m looking down a barrel at chemotherapy! Devastated and scared is an understatement. Anxiety levels back through the roof and I cant look anyone in the eye just now?

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Thank you. I feel like ive had another kick on the stomach. Why bother telling you a result if they are not sure? Has anyone else experienced this type of result? What does it really mean? Will I have chemo and how do they know on the next test if they dont know now?

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Thank you. My Bcn said I will get results when I go to see surgeon in 2 weeks. I really don’t want to speak to her just now becsuse every time I do it ends in tears!! There is nothing I can do to change it. It is what it is so I will just have to roll with it. It may extend my treatment and lead to chemo but I guess if that is what I need then it has to be. I feel so low today.

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Hi Alibobs. I am sorry that you are going through all of this and i understand how it feels when everything keeps changing.

I was diagkosed with high grade dcis in sept 2016. I had 2 ops and 15 shots of radiotherapy. In august this year when i had my first yearly mammo they found more calcifications, did biopsies and 2 weeks later i was told i had a small invasive cancer. Grade 2, Her2+ and ER+!!! Boom!!

Straight away they knew i needed chemo and herceptin and tge new targetted therspy permuzetab. After chemo i will have a masectomy.

I was literally terrified of the chemo! However i am now 3 chemo down with 4 to go. Its not what any of us would choose but it is doable and life goes on as normal as it possibly can. I have 3 children and my mum lives with us. Life goes on and it is best to stay in the day whenever you can!

I am hoping for the best possible results for you and that no chemo is needed but your team will do whatever is best for you to achieve the best outcome possible.

It is all so overwhelming but just take a step at a time and remember YOU CAN DO THIS!! All.the best chick xx