Hi @docb
I’m so sorry to hear of your diagnosis. I had a very similar regime to you for my primary in 2023. I had two tumours, one in each naughty boob and own health conditions with family history. HER2+ ER+ 20mm and ER+ 0.9mm. I was given a good prognosis and jus5 recently had another mammogram ‘with no areas of concern’. Like most of us without lymph node involvement I haven’t had a scan on the rest of my body and it’s always a concern about spread. Cancer can spread within the blood but still no other checks. I have ongoing issues that I’ve been told are most likely the aromatase inhibitors, first Letrozole and now Exemestane.
I have been on a thread called HER2 and need some buddies, which is predominantly primary diagnosis but many of who have had Docetaxel and a Phesgo.
You may also benefit from joining the monthly chemo starters thread for support
I also wanted to signpost you to the secondary section of the forum
Here is some more links
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Secondary breast cancer is full of uncertainties. But you can count on Living with Secondary Breast Cancer to be there for you, no matter what. You’ll be able to talk, listen and learn with people who understand the challenges that secondary breast cancer brings. Our groups are open to people with a secondary diagnosis. Monthly sessions, facilitated by a therapist, are held in a variety of locations across the UK and online. Find a group. And if you are 45 or under?Our Younger Women with Secondaries Together events provide information and support
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LiveChat: Open to people with a secondary diagnosis. A private chat room where you can talk to others in a similar situation.
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Access Fund – all our events are free, but if you need help getting there or accessing our services, let us know. Email us at accessfund@breastcancernow.org or call 0345 077 1893.
I wish well with your treatment next week.
