Hello
Was diagnosed with grade 2 Her2+ IDC BC (age56) in Feb 2023 (2.5 mm lump/1 sentinel lymph node positive). Had surgery March lumpectomy and first line of lymph nodes. Started chemo (carboplantin/doxotaxil) and phesgo April. Radiotherapy Sep. Last phesgo injection May 2024! Had rotten side effects and subsequent hospital admissions. Couldn’t maintain K,Mg and Ca levels. Everything totally fine once chemo finished. Was so so grim but doable. Had follow up mammogram April 2024 no abnormalities detected. So so grateful and relived. The problem I have now is severe joint pain in hips, lower back, knees, feet and sometimes hands. I had a frozen shoulder from PIC line and immobility which is improving slowly. Consultant said it was a trade off with the chemo. Which I accept as the alternative is far far worse. So I’ve read side effects of ibondrinic acid is back and joint pain. Which stops when you finish taking them (another 2.5 years to go). Has anyone else got significant post treatment mobility problems/joint pain and did this get better after time? How did you deal with it. So I did manage to move to Australia in May to join my husband. My GP here has referred me to an oncologist who apparently will continue to monitor.
HI ToniBC
I too am suffering more joint and muscle pain and stiffness.
My oncologist said it could either be the Letrazole or Ibandronic Acid, or both. She suggested stretching/yoga/ pilates as it’s often worse early in the day but as we loosen up the pain and stiffness lessens.
I’ve also just bought a mattress topper and that has made a huge difference to the amount of pain I have whilst lying down
Thank you for your response much appreciated. I’ve moved to Australia from the uk in May we were supposed to come in March last year but was diagnosed with breast cancer 2 weeks before! Over here you continue to be supported by an oncologist after treatment has finished. so I’m waiting to see them. I had follow up phone calls prior to phesgo treatments. The last one was a consultant pharmacist. He said it was a trade off with the chemo if it lasts 2 years will likely stay. But have read could be the ibondronic acid. So you saying this too has given me heart. I want to try yoga and palates but can’t get on/off the floor! So going to try the gym first. They have palates tables here what ever they are. But going to give it all a go. I was previously very active so feels like I’ve gone from 50 mph to 1 mph. But onwards n upwards ehh! Tx
Hi Tony
Like you I can’t get on and off the floor due to having a knee replacement so I also struggle to do the very exercises that would help me most but there are a few YouTube videos for seniors ( ha ha) I’m only 64!, where you lie on the bed or sit to do the exercises and stretches. Armchair yoga is one.