I was diagnosed with Her2 positive breast cancer. The receptors /negative estrogen/ progesterone. It’s early stage 2 and grade 3. My treatment plan was started seven weeks ago, I have had five treatments, two treatments delayed due to low white cells / anaemia. My treatments are weekly Taxol, and Hercepen I/ perjita every three weeks. They also started administering globulin injections to boost my blood counts and have less delays between treatments.
I had my fifth treatment on Tuesday. It’s the third day after and I feel terrible! Severe headache, burning feet, numbness creeping into my feet and right hand. I play piano so this is particularly concerning for me…
Today is third day after my last treatment where I had all three drugs at same time. ( I feel terrible today, could not get out of bed, due to fatigue, flu feeling. Severe headache and waves of nausea.
Neuropathy has set in and my right foot is numb.
My right hand too has been affected. I cannot settle at night due to intense burning pain in my feet. Nothing eases the pain. Today I honestly felt the reality of this illness as the chemo effects are awful. Diarrhea alternating with constipation, bone ache, brain fog. I have a low appetite, and seem to manage small amounts. I take meds for nausea and pain pills four hourly, but truth is nothing really helps with the pain and headache.
I was told that I would be having twelve weeks of chemo weekly and three weekly infusions of hercepen and perjita.
Then surgery, then immunotherapy for 52 weeks and depending on results of surgery, another drug may be added to the Hercepen .
I feel alone and as if I am on a free fall, my entire life has changed with my diagnosis. I have a strong faith, but I am feeling a sense of the unknown and fear. I go between feelings of unbelief and shock. It all seems surreal.
Very concerned about the neuropathy development despite doing the cold capping and hands and feet icing weekly! My hair has not started to fall out which is one comfort.
Any one else experiencing these side effects?
Good morning
I’m sorry to read that you have joined the club that no one wants to belong to.
I found the following thread when I was diagnosed last year. It has been invaluable. You may find it helpful to have a read and post on there.
I read the thread from the start by which time it had been going for a year - so a long read and twice as long now! It meant that I was privy to the stories of those who had got through the different stages of the treatment. Filled me with positivity and hope. In those moments I felt down they supported me and lifted me. 
x
I have had a different treatment regimen to you but there will be others on the thread who will be able to share their experiences and will offer sage advice.
Hi @dree
Sorry you’re having a rough time with the chemo. I’m also HER2+ but had a different type of chemo to you. I did however use ‘suzzipad cold therapy socks and gloves’ during my docetaxel to help prevent nerve damage - is this what you’re using for your hand and feet icing during your treatment? Have you mentioned to your team as they might be able to give you something to help with the nerve type pain if it’s keeping you awake.
I am also part of the thread that @mrsjelly has signposted you to, lots of lovely helpful ladies over there!
Hi so sorry you are suffering.
I had my chemo reduced in dose due to neuropathy and then stopped early due to issues with walking.
I now take Duloxetine which is for nerve pain and morphine.Speak to your oncologist and see if they can start you on something and potentially reduce your dose.l hope you get some relief as I know how debilitating it can be.Sending love 
Thank you for kind reply . I have the cold gloves on hands and feet every weekly treatment but sadly I am experiencing neuropathy.
I will speak to my oncologist this coming week. Hopefully something can be done before it gets worse!! Hope you are doing okay!