Hi, cansomeone help me please? Im on my 5/18 treatment of herceptin and feel as if im going mad with some of the side effects. Accepted the awful forgetfullness, loosing myself in peoples conversations where I seem to zonk out, unable to sleep very well, awful indigestion and upset stomachs. Today though and I do feel so awful I was out shopping and without feeling anytjing I had wet myself unfortunatly big time. Has anyone else had these problems as now a bit frightened to go out…Thank you so much this really stressed me completly out.
Hi Sue54,
I am sorry to hear that you are experiencing some of these difficult side effects and I am sure some of our users will be along shortly to offer their advice and support.
You may also want to take a look at our page on Herceptin and the side effects which you can find here.
Please do call our helpline at 0808 800 6000. They can provide you with information about what you have experienced and offer a friendly ear. The opening hours are below.
Monday-Friday, 9am-5pm
Late opening Wednesday 9am-7pm,
Saturday, 9am-1pm
Best wishes,
Lizzy
I am on 9/10 Herceptin. Not sure if this is building up now or if it’s since I started Letrozole, constantly feel like I have UTI/cystitis - need to pee. Is worse early morning and at night. When it started thought I was going to have an accident. Touch wood, not yet. Oncology appointment has been put back due to summer holidays, but top of my discussion list. Good luck
Good evening everyone. I have really contributed to this forum yet but spend the weekend small hours breathing out as l realise there is always someone else feeling similar things. I have had 13 of 18 herceptin and recently l have started with sudden onset of really bad acid reflux. My GP has started me on lansoprazole which luckily is helping lots. My Onc thinks it is more likely to be the Chemo and I was just wondering if anyone else has this symptom. I had 1cm grade 3 her2++ bc, nodes clear in March '16 chemo and rads. I have other wise come out of it all pretty much unscathed. As l had a completely separate diagnosis of a low grade brain tumour in 2015. I am very panicked about new symptoms in case 'whatever doesn’t kill you makes you stronger" still hasn’t finished testing me yet. Would love to hear from others who are getting side effects of one type or another
Hugs to all of us.
Alex
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