HER2 How bad is this result?

Apologies for putting a lot of questions out on here. But i feel safer to read things on here, as on the internet…i hope that makes sense ?! Also our daughter (28) only has been diagnosed last week with grade 3 breast cancer ! Right now our heads are full with grades , stage, HERS2 , CT, MRI, all things we never have heard of and dont understand. So reading on here and reaching out in this safe space, instead of treading the minefield of the internet, hopefully can help a little?! As far as we understand, it wouldn’t be too good news if our daughters biopsy and mammogram comes back with a HERS 2 result ?! We understand that it will help to determine which treatment our daughter will have but also that a HERS2 means a more agressive cancer, which can faster spread ?! If someone could guve some info on this would be enormously appreciated!! Much love and strength to everyone who is involved in this battle on here ! T

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Hello, very sorry to hear about your daughter’s diagnosis, I was diagnosed at 29 years old and it’s such a shock at that age. In terms of a HER2 positive result, yes it can mean the cancer is more aggressive but it also means there are very effective targeted treatment options that target the HER2 protein. I wouldn’t look at it as good or bad for it to be HER2 positive, just think of it as the doctors gathering all of the information to design the best treatment plan. Sending you and your daughter strength and love x

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Hello Jess_1 ! First of all, apologies for this belated reply but yesterday and today were very full on days…calling between different hospitals…arranging drivers between family and friends ( we are in Denmark and our daughter is kn the UK) and helping wherever we can to take things off our daughter and her husband.
Thank you so very much, for you comforting reply. I did say it so many times by now…it is incredible how fast people do reach out on here…willing to share their own personal battle and experience, to help others…its incredible and so very humbeling!!! So thank you ! Im so very sorry, that you had such an early diagnosis and i wish you all the best but most of all strength and willpower to fight this !!
What you did explain makes sense, as our daughter had her CT today. Tomorrow the consultants meet to discuss if she has this HER2 or not and i think they needed to find out (today ?!) If the cancer has spread into her chest area. And also to figure regarding the treatment she will be getting. How all you ladies on here find the strengs and willpower to go through all this??! Mentally and physically… you are so damn strong…please never give up fighting !!! But i also truly believe that wonderful forums and online help with nurses aso are so so very important to get through this… wishing you all the best, Jess

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@templar-1310 as a mum of a 28 years old I can understand how your and her world has turned upside down.

As @Jess_1 has already said HER2+ is a more aggressive cancer and predominantly needs chemotherapy to be able to have the wonderful drugs that treat the HER2+ receptors ( Herceptin and Phesgo (Herceptin and Perjeta)

I hope once your daughter has her diagnosis she and you will feel much better knowing what the treatment is going to be.

Take care :smiling_face_with_three_hearts:

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I am so sorry this is happening to your baby. As Jess said, HER2+ cancer though has a fantastic immunotherapy that has transformed the trajectory of the cancer. So yes it’s aggressive but the more aggressive the greater the fall with it. There are other receptors though she may be positive with that can also offer other treatments. Once you get the results, if you have questions, don’t hesitate to come here and ask. Many hugs sent your way…

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Thank you naughty_boob for your kind words !
The consultant meet tomorrow to discuss regarding if she has HER2 or not…fingers crossed for the NOT !!! She had also her CT scan today. So i hope that will be added to work as an all over conclusion and most important she will find out the probably most important part of… if the damn thing has spread or not ! We are just so grateful that by creating a mix of privat and NHS we could make it possible that things got kicked into actuon fast…as time is not on our side !
I only can repeat myself and say over and over HOW incredibly strong and brave you ladies on here are ! For my daughter and all if you i need to show strength and determination!

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Hello Kay0987
Thank you, for your kind note ! And the info… over the last two days i have developed into one massive sponge, trying to understand and make sense of all this crazy medical terms and as a result- mixed with the shock of our daughters cancer diagnosis- im a mix of an numb and bursting mind/brain… but im sure- HOPE!! that with time i will get a calmer and better understanding and all over knowledge… fingers crossed !
Yes. We hopefully will know more by tomorrow evening :crossed_fingers:so be careful, what you wish for :wink: … i sure will be back with many more questions !
All the best to you, Kay0987 sending you strength to fight this

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I’ll be three years this July and feel better than I did before diagnosis. The road is long and hard but it does end. Good luck tomorrow!!

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Thank you Kay0987 !
Our daughter can do with some good luck for tomorrow!!

Thank you also for sharing your very personal experience. And thank you for being honest.
But i like that on here…no one paints a fluffy picture…theres some heavy stuff on here to read through …very upsetting stuff, but it IS heavy, tough, upsetting but you women on here also spead a incredible positivety and hope !
Thank you Kay0987 :slight_smile:

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Hi @templar-1310 ,

What a good idea it was to reach out on this forum. I hope you can encourage your daughter to do the same, as it is a great place to vent and offload, especially when you don’t want to burden your loved ones with all the angst. The breast care nurse helpline is also very useful for your daughter to get any extra info she might need if she can’t access her own breast care nurses

I had a her+ tumour 6 years ago. I broke my arm after round 3 of 6 chemotherapy sessions. They couldn’t continue so I then went for surgery. The entire 2.5 cm of tumour had been obliterated when they did the histology. THAT is how powerful the drugs are now. I also had a much bigger tumour in the other breast 16 years ago and that was also treated successfully with chemo/radiotherapy.

It sounds as though they are being very thorough with your daughter’s care, so trust in the system and they will do everything they can to get her well again.

Sending you lots of hugs.

Eilyxxx

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I was 62 when I was diagnosed with ER+ & HER2+ Grade 3 BC in 2021. As others have said Herceptin is a game changer for the treatment of HER+ cancer. Luckily mine had not spread and I have been great since my treatment finished in Aug 2022. I had a lumpectomy, chemotherapy and radiotherapy.

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Hello Eily !
Thank you so very much, for your kind note and for sharing also your very personal experience!
Yes, im so glad i did find this fabulous side. I actually came on here to see if there are any entire male forums for my husband as a father … and then i started reading to all kind of posts and simply started to write and ask things…the respond from women on here is incredible and so soothing and most important personally to me- HOPE …hope of healing and mending…
i have already told our daughter of this fantastic forum and im sure, she will eventually have a look, what she will make of this forum. and how you rightly did point out, it is a good place foe her to share things, talk about things she feels she dosent want to load on us and also i think, certain things are much better shared with woman on here, which experiancing and going through the same thing. I can see her coming on here, eventually, when all the main tests have been done and she knows in more detail what she is actually diagnosed with. right now she knows hardly anything, as the C BOMB only was dropped last Friday.
Oh Ely, HOW can you be so strong, to go through all this TWICE ( like so - TOO- many other women ???
Yes, i think we have to have faith and trust in all those people involved now with our daughter and also hope in the always changing research of cancer…
returning those HUGS back over to you… stay strong and never stop fighting :people_hugging:

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hello krtea !
thank you so very much, for reaching out and sharing your personal things, so kind of you and helpful. i would like to reply properly to you tomorrow- i dont do rushing… but i just wanted to let you know, that i wont forget you… i just will get back to you properly tomorrow. it was a long day and i wrote on here for some time, so i will “see” you tomorrow

I noticed you mentioned support for your husband. This link may be helpful. It’s states for partners but I’m sure it’s just as applicable for Dad’s

:smiling_face_with_three_hearts:

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hello krtea ! again, thank you so very much, for your kind note from yesterday and for sharing your very personal journey !! this must have come just as a huge shock and loads to take in AND to learn to understand and make sense of. not only is there the impact of the (any) diagnosis but also to get the head around what all this crazy things mean. we are totally all over the place with all these differnt- and so- TOO- many different grades and terms… im so glad for you, that least the diagnosis of spread , was also added on to you !!! so so incredible happy for you, that you are in a better place since aug. 2022 !!! please stay strong and positive… i wish you well and all the very best ! T