Hello,
I am new to this group but thought I’d say ‘hello’. I was diagnosed with breast cancer last year and then in April of this year was told I have secondary cancer of the lungs.
I have amazing friends and family but I need to be able to mix with people undergoing a similar situation to me.
I look forward to be part of the group despite the reasons that have brought us together.
Majestic x
Hi Majestic,
welcome. Lots of similar souls on this group. We are all here for each other, glad you could join us.
Try out the word games, cyber cafe etc,
Moijanxx
Hi and welcome xxx love and warm hugs Deb ?
Hiya majestic
Welcome to our little family …there is some real support and help here to keep you smiling and focus away from the c word.
Hugs xxx
Hi
Welcome to the group that none of us want to be in but together we can give each other strength and support. I also have lung mets but no experience of PE but the main issue is you have got the treatment and I am afraid you will be on many tablets for many different things.
I would also suggest going to the meet up session organised by Breast Cancer care, you are able to meet many ladies living with SBC but not in the digital world.
Good luck and ask any questions.
Morning,
Having re-read my posts from yesterday, I did sound as though I was complaining and I apologise for that. I know I was so lucky to have such an on the ball radiographer who spotted the clot. I suppose like all of us, I hate being ‘out of control’ of my body. I mean that if I have a sore throat, I know myself what it is instantly. Naively I thought people usually got secondaries a few years after the primary cancer rather than a few months. This has been a real eye opener for me as I’m sure it has for so many others before me. I also find it quite hard to get the message to friends that this secondary isn’t ever going to go. It can be controlled with medication but it won’t go like my breast cancer did but I’m fortunate to have a good quality of life at present. I’m frightened for what the future may hold though. xxxx
Hi
People don’t understamd what SBC means and like you I get angry, close friends I push on explaining, anyone else I just leave the conversation as soon as possible and go and have a good cry or shout depending on my mood. People think all breast cancer is curable, (I was part of that group 5 months ago) only people that have experienced it through family and friends understand it.
I have a very close friend who was in the room with me when I got the secondary diagnoses when I asked her what she wanted for her Birthday 3 months later she asked for me to get well, it was like a knife to my heart, of all the people in my life I thought she understood. Please try not to take on other peoples feelings about your illness, their issues arand understandings are theirs not yours.
Keep strong and tap in to this resorce as we do understand.
Hi,
It’s such a comfort to be able to chat to others that DO understand ?? but obviously I wish none of us were in this situation. My closest friend was here at the weekend and I just mentioned casually that I thought it unlikely that I would go abroad again due to the prohibitive cost of insurance. I also have type 2 diabetes. She just laughed and said ’ Don’t be silly, when this one goes you’ll be able to go’. I suppose deep down I’d like to know the timescale insolved but no one can really tell me that! One of my biggest fears is having to have fluid drained off my lungs, although this hasn’t been mentioned yet. I just have an over active imagination unfortunately.
Hugs to everyone who has taken the time to reply to me xxxx
Hiya majestic
People think that by having secondaries …you have chemo and then it goes away !!
I also hate it when people talk loudly and think that because I walk with a stick …I’m deaf too !!
Take a day at a time . Don’t worry about lung drainage at the moment .
Hugs xxxx
Hi Majestic
I was diagnosed with breast cancer in July 2012 and had a clear CT scan apart from the primary in September 2012. I had 3 x FEC followed by 3 Taxotere however the CT scan before my scheduled mastectomy in February 2013 showed lung mets. I wasn’t told at the time however my surgery went ahead as planned. I have remained well throughout albeit on chemo and my scans have been stable since September 2013.
I have an active lifestyle and cancer has not affected this in any way.
Am currently on cycle 80 something (!) of weekly Taxol which is also fine and very doable.
I hope this helps you a little xxx
Hi Majestic, I got venous thrombosis whilst on Cape, and like you i have to inject myself for the rest of my life. We cancer battlers are all at risk because cancer has an effect upon the way our blood clots…eg the ‘clotting mechanism’.
…some people only find out they have cancer, as a result of tests once they get a clot!
anyway, im glad they found yours…and mine, before any worse damage occurred. We need to keep active!
love and hugs, Moijanxx