Hi
I’ve been trying to post on this site for a few months now. I’ve not even been able to reply and it would have really helped. I’m so glad now I seem to be able to post new topics but I can’t seem to reply!
I have wanted to join for a while. I was diagnosed in May. I am 40, married with 2 boys 7 and 3. I am triple negative, only found that out last week! I have ‘multiple small nodules to both sides of lungs’ So finding out I am triple negative has sent my feelings and emotions back to square one. I had been dealing with things. I have had 2 rounds of FEC chemo, not been too bad. I haven’t had surgery yet as I had quite a large lump that they are trying to shrink down along with the lung nodules.
I have felt very depressed the last few days as feel there is no treatment or that treatment is very limited for triple neg with mets. I feel like I’m going a bit mad with it all now. I have had back pain the last 2 days and now after things I have read on the net, I am convinced it is everywhere. from being positive and dealing with treatment etc I really feel there is no hope and it’s only a matter of time until it gets me, or that it’s spreading day by day.
I’m so sorry for the depressing introduction. I am a member on the macmillan website and have made some good friends on there, not many with triple neg. I joined the secondaries thread and it is so quiet, I just darent google for more answers to triple neg with secondaries as I’ve found some pretty scary stuff.
I hope I can be a part of this forum, I’m not normally so glum I just feel a bit like I did when I was first diagnosed. I have had back pains for the last few days and am worried it’s in my Spain now. I have had back problems since the birth of my youngest but I can’t stop my mind going into overdrive at the moment. i do have some counselling booked next week so maybe this will help too.
I’m really looking forward to getting to know you all and supporting you all too.
Lots of love
Annabel xxxx
Annabel, Hi and welcome to the site no-one wants to join. There is a triple neg secondaries thread here:
so come on over and introduce yourself!
Ist rule of SBC - don’t Google anything to do with stats.
2nd rule of SBC - don’t Google anything… you get the picture.
There are lots of chemos for triple negs so please don’t despair.
Feel free to pm me. Sorry for the short reply but knackered and off to bed.
You could also try the site at Stage IV/Metastatic Breast Cancer ONLY — Breastcancer.org It is based in the USA but there are women from all over the world who use it and there is a specific stage IV (secondary forum).
Hugs
laurie x
Hi Annabel and welcome to the BCC forums, please accept our sincere apologies for the problems you have had accessing the site, we have had many problems over the last few months and our technical team are working hard to rectify the issues.
I am sorry to read that you are having such a difficult time, if you feel it would help to talk things over with someone in confidence our helpliners are here to offer you further support and a listening ear on 0808 800 6000, lines are open 9-5 during the week and 10-2 on Saturdays
The following link will take you to the BCC Secondary information page where you find further support ideas:
http://www.breastcancercare.org.uk/secondaries
Take care
Lucy
Hi again Annie
Just to say that you need to be properly logged on to post. The box at the bottom of the thread won’t appear otherwise. Don’t use the little purple ‘reply’ button as I have found it doesn’t always work. Hope you find your way onto our thread.
Tara xxx
Hi Annie and welcome to the forum that I wish none of us were joining
I am not triple neg but I am new to the secondary club. Still awaiting CT scan to see how far it has spread. All I know at prsent is that it is in my spine in many areas, I Totally understand as will many others about how you feel when you have pains in other areas, it hard not to think the worst. I do all the time.
Annie there is always hope always , I find reading and listening to other ladies helps me to see that life can go on. I have no intention of going anywhere without a fight. but instead of saying maybe later if I have the energy it will be a yes!! So many people waste life we have a chance to live it and not just exisit. I know this is harder for us and we have days that are so hard to even get out of bed and days that being positive is like a swear word . Annie you are also allowed to be glum when you want to be !! Thats the best part of this site we can all be what we want to be at the time we are feeling it and no one judges we just care and support . Sorry I am no help with treatments has I am still new and have no idea as yet but I am sure there will be other ladies on here that will help . Keep in touch Annie.
Love and hugs to all ladies xxx
Sue
Hello to mic929bea.
I guess your next step is to find an existing thread that relates to you most closely or to start one that inspires us! It took me a while to find my “home” thread and get to know people, (triple neg thread started by Gingerbud) but I lurk on others as I have lung and bone mets.
Hope you can find your way round soon!
Tara xx
Hi annabel
nice to see you on here… iv not been on macmillan for a while… its even more difficult to navigate than BCC. hope you join us on the TNBC recurrence and SBC thread.
Lulu xx
Still i am in problem i did not get any solution please advise me a way that i have solve this problem.
Please get me out of that problem i am not get a solution still.
Hi All
Just wanted to Stop in to say hi and also to introduce myself here! The Boards look extremely interesting and I can’t wait to become a member of the community!
Besides, I would like to suggest the moderators and the administrators of this site that there should be a place for every new member for their introduction. Viagra Majority of the people prefer to give their introduction before they could start up.
So if my suggestion is logical and if it does make any sense then an introduction thread should be started here.
Thanks,