Hi, I was diagnosed with stage 1 invasive ductal carcinoma in January 2023. I’ve had WLE, radiotherapy and I’m currently on tamoxifen. I’ve had ongoing pelvic and back pain over the past year that is getting progressively worse. I think it may be related to tamoxifen but that could just be a coincidence. I was seen by gynae who found a small cyst but nothing of concern. My GP has taken my blood a few times and discovered that my ferritin level is climbing (well outside normal range). None of my other inflammatory markers are raised. I have read that raised ferritin is associated with malignancy (amongst other things). I spoke with a breast care who said she said she would discuss it with the team. I am very worried about the rising ferritin levels and I’m wondering if I should request/pay for a CT chest, abdomen and pelvis?
Hi MillieMarbles
Thank you for your post.
It’s understandable you’re worried about your rising ferritin levels and are wondering about having further investigation.
It’s very natural to have concerns about recurrence after breast cancer. Nearly everyone who has been treated for cancer worries about it coming back and you’re not alone in being anxious about this. The uncertainty and fear of breast cancer returning is very real.
You will see on the above link that there are, as you say, other things that may cause a raised ferritin level. Sometimes when certain organs like the liver are under increased stress due to treatment or previous damage, ferritin levels can be raised. As you may be aware, tamoxifen can sometimes cause changes in how the liver works although this is usually temporary and resolves when treatment finishes.
It’s good to read you’ve already let your breast care nurse know about your rising ferratin levels and are waiting for a response from your treatment team about the possible reason for this.
It’s important too that you let them know you have been having back and pelvic pain that has been getting progressively worse. They will be able to assess and discuss how your symptoms are affecting your daily life and if necessary, can arrange for further investigation.
You may also be interested to know that we offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.
For more details about all of these services, please see the information on the link, or call our free helpline.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).
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Best wishes
Heidi
Breast Care Nurse
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