Hi all had lump removed in December grade 2 eas told it was highly or and we positive and I would only need radio and hormone
Got a call today my score is 37 I’m heartbroken all over agin. I’m afraid of chemo and I know it’s manegable but I don’t want to go through it and out toxins in my body .
What could cause this I’m her 2 negative. I feel like just giving up
Heartbreak I think there have been a lot of us over the years think pre op it will be op tgen rads and then after surgery found out chemo is required. Do please speak to a nurse on here if you can over the phone using the number on here, also maybe the someone like me option, also your team and tell them exactly how you are feeling about having chemo, they will help you each step of the way none of us im sure ever wanted to hear the word chemo, but step by step, treatment at a time and for me without a doubt during chemo the forum was a lifeline, a place where help and support was always a message away, where people who had done and were doing the chemo dance shared their experiences, passed on helpful tips and trick and for me made something that made me want to run for the hills do able. Others will reach out 
I know they will and do be kind to yourself, you are doing amazing already, you are even though it feels like your going down the water shoot from the goonies movie we’re in the pool at the bottom waiting with the dinghy, hot bath robe and a cup of tea for when your through treatments and thinking did that all just happen 
Shi xx
Hi Heartbreak. I’m so, so sorry. Nobody wants chemo and nobody likes chemo. But I do want to say that I think some people have still got ideas from it like 20 years ago. And that’s just not accurate anymore. The new chemos are less toxic with much better drugs to manage side effects. Heck we’ve even got cold capping which can preserve your hair if you want. Also we know now icing the hands and feet save us from neuropathy. Yes we’re all scared of it but we truly need to reshape what we think about it. It’s not toxins that poison your body. They are toxins that poison the cancer in your body. With an oncotype score of 37, regardless of your age, chemo is going to give you massive benefits in your fight to never hear the word breast cancer again. I think like bring your recurrence score down as much as 15 points. That’s huge. And considering it only looks like you had a tiny bit in one lymph node you caught this cancer at a very early stage, a stage where chemo is preventative and not curative, and that’s a great place to be. I had to get chemo due to my oncotype score. It wasn’t fun, I didn’t like it, and it made me feel like dog crap. But all in all I felt like complete dog crap for a few weeks. The most horrible fatigue didn’t hit until almost my last cycle and started lifting about three weeks afterwards. Thanks to cold capping I had a full head of hair a month later. Chemo truly was a blip in my life. It will end up being a blip in your’s.
Now as to why your oncotype score came back high? It’s a pet peeve of mine that so many doctors seem to want to make predictions still with them just because I’ve been on these sites long enough now to know that a biopsy doesn’t give you definitive answers with the score. I’ve seen some grade 3 cancers come back low and some grade 2 cancers come back with a high score. Shoot yesterday on another site I read about a women with a grade 1 tumor getting a high oncotype score. Weird but it happens. There are patterns, like those with high progesterone tend to have lower scores, but not rules. The oncotype test looks at mutations within the tumor itself and that’s not anything your pathology report can predict. It’s great that we have something that does that now because if we hadn’t, maybe you wouldn’t have been offered chemo and we know by your score that would have been a mistake. And some people would be offered it and they wouldn’t benefit from it at all. Anyway, it allows a much more strategic method of care for you specifically and that’s awesome. So in saying that, I’m so sorry that chemo is something that they will recommend for your treatment. But I’m so glad they are confident in saying it will benefit you and that you have the option of it so that you can go and live a long healthy life once your treatment is over.