Hi
I am 45 & following a visit to Genetics have just got my BRCA 1/2 results back as negative. Due to the family history (Grandmother <50 breast cancer Mother Ovarian) & personal history (Grade 2 diagnosis April this year wle radiotherapy 23 sessions incl 8 targeted boosts) that qualified me for testing in the first place, I am apparently still considered high risk. I found my lump just after my 45th Birthday (!!)
I have been told risk reducing surgery may be discussed if I wish and a risk calculation is being performed by the Genetics Clinic.
Anyone been here & have any words of wisdom for a really confused person? I am on Zoladex & Tamoxifen (feeling ok on these though not loving the early menopause … Needs must though!!).
Hi I feel your pain!! I’ve been in a similar position myself during the last few months.
My diagnosis was grade 2 11mm lump which was removed in June and because of my family history I also had the gene test which came back as positive in July so I had to make the same decision as yourself. After much deliberation I opted for the double mastectomy with implant reconstruction which I had done 2 weeks ago. This was right for me at my point in life with all that’s going on as I didn’t want to be out of action for a long period and so far so good.
I didn’t have any chemo or radiotherapy which my surgeon said at the very beginning would hamper any decision I make as I would have to wait 18 months due to healing so you might want to ask this question if you want to go ahead with surgery.
If this is any help and you want more info feel free to ask, take care Suzie x
Hi All
Have just had my genetics appointment through, currently going through RADS after WLE and SNB in September.
Feeling a bit weird about it all now appointment is through, knew it was coming but seeing the letter makes it a reality. I know because of a strong family history it’s the right thing to do and really not sure what I’d do if it came back positive as I’ve really struggled with going through this surgery and not sure I could cope with anymore, but then could I cope with more treatment if it came back?!!
I know I’m over thinking it all and should wait for the results which I know will take quite a while, but easier said than done. Did anyone else feel like this before even going for the appointment?
Julie :smileywink: xxx