Hi, I just had an extremely frustrating phone conversation with a BCN at my local hospital and felt the need to unburden! Basically to cut a long story short in June I spoke to (a different) BCN about coming off Tamoxifen in September as it will be 5 years since my treatment ended and I had such a small low grade BC that I felt the side effects outweigh the benefits of brazening it out for another 5 years or even worse going onto Letrizole. In June the BCN was very optimistic about this however the one I just spoke to is more sceptical and said she would have to run it past the oncologist and get back to me but said it is likely that they will say I can come off for one month to see if it is the meds or the actual menopause causing my side effects and I might then have to continue or go on Letrozole. This is a fate worse than death for me as the side effects are even worse on that and I struggle as it is ? What is most annoying is that I was Ms Average and went through the menopause at 51.I am now 59! Just wanted to know anyone else has been in this zone and if so was there a satisfactory ending?!
I thought Letrozole was standard treatment for post menopausal women these days ? I started last Friday and have been told 10 years is now pretty standard . I think most of us would trade side effects for death ?