Hi. I was diagnosed in feb 2019 and started hormone therapy in oct 2029 following op chemo and radio therapy.
I have suffered with anxiety for many years and I’ve posted on here before saying my anxiety is worse now. I’m struggling daily with anxious thoughts it’s stopping me from living a normal life. I’m on max dose of sertraline, exemestane and still having zolodex jab.
Next October I would have been on hormone therapy 5 years but my surgeon thinks 8 years as I was 49 when diagnosed.
Honestly I don’t think I can cope with another 3 years of this anxiety it’s ruined my life. In one respect this treatment has saved my life which I’m forever grateful for but now I’m living a worse life.
I just don’t know what to do and how much more I can take. I’m scared all the time, I’m getting a bit ocd on things which I never did.
I feel guilty that this cancer has affected my husband and stops me doing normal things.
Any advice would be greatly appreciated on what to do xxx vic xxx
Hi Vic. I am sorry you are struggling with your anxiety. I was diagnosed Autumn 2017 so I am just a little ahead of you and I was on different treatment (Tamoxifen for 5 years and Zoladex injections for 3 years). I was 51 at diagnosis. At my 5 year check with my surgeon she then referred me back to Oncology to discuss my hormone treatment. I was given the option to stay on Tamoxifen for another 5 years (increased risk of deep vein thrombosis and womb cancer although both rare) or to go onto another AI or stop. I found my oncologist to be very informative and she didn’t pressurise me to take any particular path. My Mum has both curvature of the spine and osteoporosis and my father (deceased) suffered with both deep vein thrombosis and ulcerated legs (family history). So I decided to end my treatment at the 5 year milestone. I take a small dose of amitriptyline for anxiety and to help me sleep at night. In summary I am saying let your surgeon know how you are feeling and I am sure they will refer you back to oncology to discuss which options are best for you. Michele x
Thanks for your reply Michelle. I was discharged from oncology over a year ago but i would like to discuss my options. Is 5 years enough etc. Did you need chemo as wondering if thats what they base decisions on.
Vic xx
I feel for you with this Alvilajo, as severe anxiety has plaqued me most of my life. Other events trigger it and boom, I’m a walking ball of anxiousness, palpetations and struggling to get through each day. With the length of hormone treatment, it’s a while back now when I read up on it, but I seem to remember when I was looking at the stats there was precious little difference between 5 and 10 years, hence 5 years is the norm in the UK I think? Maybe you are elsewhere? I would definitely ask for a referral and explain the difficulties you’re having. Hopefully they can tell you what difference the 3 years will make. And remember, you will have a future life without the hormone therapy, something to look forward to
Hi Vic. I consented to chemo but joined the Optima trial and was fortunate to have my tumour tested and advised no chemo required. So I was discharged from Oncology in early 2018. When I had my review after my 5 year anniversary (and referred back to Oncology) the oncologist made it clear that I could be referred back to her at any time x
Maybe i will get reffered back then. I never had a consistent oncologist xx
Hi amber. Is your anxiety easier after stopping hormone therapy xxx
Hi ive been diagnosed with breastcancer this november so not nearly as long as you
Imon hormone therpy letrazole and ribociclid/kisquali which i am told ill have to take for the rest of my life!!
I have utter anxiety surrounding all this i feel incredibly alone
It’s so hard isn’t it.
Hello @Alvilajo
Big hug
You you are reaching out and hopefully you will receive some help to get you through this very difficult time
It’s something I did when I went into a deep dive into menopause after having my Ovaries out. I hit a level of anxiety and dark gloom that I had never experienced before.
A friend suggested the Ladycare magnet, I have worn it constantly since getting it, it helps massively. It enabled me to get back to work, slowly but gradually my old self is back.
Have you heard of the Parasympathetic Nervous System? If not Google away
I’m a Googler, reader and listener, I am drawn to things that can help.
I love mindfulness and reiki and a soundbath in person not online. Are all fantastic for realigning my feelings of wellbeing
Hope you find your route to calm xx
Thank you for your message, I’ve not heard of the magnet but will look up on it xxxx